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RARE Northeastern (@Rare_Neu) profile picture

RARE Northeastern

@Rare_Neu

We are a student organization at Northeastern University that aims to increase awareness for rare diseases and provide support to those in need.

 Boston, MA
facebook.com/rareneu/
Joined October 2017
  • Tweets58
  • Following193
  • Followers248
This week we welcomed Mike Miller of the Huntington’s Disease Society of America! Thank you to everyone who came to our first speaker event of the semester! instagram.com/p/B7_sF0xAWre/…
RARE Northeastern retweeted
Rare Disease Day (@rarediseaseday) profile picture
Rare Disease Day@rarediseaseday7 Jan 2020
Out now! Download the official poster for #RareDiseaseDay 2020 now available via rarediseaseday.org/downloads. Share it today to show your support for the rare disease community!
Image from Rare Disease Day (@rarediseaseday)
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Marking our return to Twitter with an important PSA: We’re at Curry Crossroads today until 6pm selling insomnia cookies! 🍪🍪🍪
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Update: THIS FUNDRAISER WILL BE MOVED to a later date due to an unforeseen cookie emergency! – at Boston, MA
First General Meeting - mailchi.mp/e86e02c6a262/rare…
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BBC News - 'Amazing' gene-silencing drugs reach NHS bbc.co.uk/news/health-489079…
'Amazing' gene-silencing drugs reach NHS

'Amazing' gene-silencing drugs reach NHS

Doctors say the drugs are making the "previously untreatable, treatable" and have huge potential.

bbc.co.uk
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RARE Northeastern retweeted
Yoni - יוני (@Primary_Immune) profile picture
Yoni - יוני@Primary_Immune11 Dec 2018
The Power of Public Awareness & #SocialMedia Exemplified - Rarest of Blood Found Following Unprecedented Global Search theepochtimes.com/donor-foun… #IoT #ITRTG #IT #advocacy #SciComm #MedEd #tech #blood #technology #awareness #BigData #RareDisease #inspiration #hematology #cancer
Image from Yoni - יוני (@Primary_Immune)
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RARE Northeastern retweeted
Rare Disease Day (@rarediseaseday) profile picture
Rare Disease Day@rarediseaseday11 Dec 2018
Did you know that your organisation can support Rare Disease Day 2019 by becoming a friend today? >> rarediseaseday.org/become-a-… #RareDiseaseDay #ShowYourRare
Image from Rare Disease Day (@rarediseaseday)
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#OpenEnrollment ends on Saturday, December 15. Learn more about this critical time in choosing a 2019 #healthinsurance plan in webinar recording from #NORD policy department here: ow.ly/71c450jUPoX
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Join RareNeu at @NUafterHOURS tonight for a free musical performance by TEGA. All proceeds will be going to @SCDAAorg to support sickle cell disease! Succulent fundraiser at 7, concert at 8 🎤🎼🎉
Image from RARE Northeastern (@Rare_Neu)
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@GBSickleCell
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RARE Northeastern retweeted
Rare Disease UK (@rarediseaseuk) profile picture
Rare Disease UK@rarediseaseuk1 Jul 2018
Did you know.... The average #raredisease patient waits four years before receiving a correct diagnosis. That's why we call it 'diagnostic odyssey'.
Image from Rare Disease UK (@rarediseaseuk)
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RARE Northeastern retweeted
Raremark (@RaremarkHealth) profile picture
Raremark@RaremarkHealth29 Jun 2018
About 80% of #RareDiseases have a genetic cause. Learn about basic #genetics in our Genetics 101 infographic! raremark.com/articles/geneti…
Image from Raremark (@RaremarkHealth)
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What is Stiff Person Syndrome? Despite being rare there are many sites where you can get information. ispub.com/IJN/7/ @lizblows @DrPas84Ele #stiffpersonsyndrome #sps #oneinamillion #tinman #raredisease
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Retweet for #WednesdayWisdom: 30 Million Americans are living with #rarediseases and more than half of those individuals are children.
Image from National Organization for Rare Disorders (NORD) (@RareDiseases)
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We had a great time hearing from the Executive Director of @targetcancer this week! #rarecancers #rareresearch #raredisease
Image from RARE Northeastern (@Rare_Neu)
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Our members celebrated Rare Disease Day the best way we know how - spreading awareness to other students! #RareDiseaseDay #PatientDriven
Image from RARE Northeastern (@Rare_Neu)
Image from RARE Northeastern (@Rare_Neu)
Image from RARE Northeastern (@Rare_Neu)
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We’ll be tabling with these adorable Valentine’s Day succulents to raise awareness for @1p36DSA tomorrow in Curry Table #1B 10am-4pm, and Wednesday 12-6pm!
Image from RARE Northeastern (@Rare_Neu)
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Looking forward to our first spring general meeting tomorrow! We’ll be having a panel with NEU students impacted by rare diseases and discussing our plans for the semester
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RARE Northeastern retweeted
WeHealth (@WeHealthNews) profile picture
WeHealth@WeHealthNews12 Jan 2018
Today we celebrate Lily. A survivor and thriver of a rare disease called Ehlers-Danlos syndrome 🦋 🌟💜 @some1likeyouco
Image from WeHealth (@WeHealthNews)
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