Global umbrella group of patient-led organisations funding & supporting research into cures for rare, inherited & age related retinal dystrophies RCN: 20206322

Dublin, Ireland
Joined July 2016
Retina International retweeted
Rétinite Pigmentaire, USHER et LEBER, du nouveau basé sur l'ARN ! Sepofarsen, cible l'amaurose congénitale de Leber de type 10. Ultevursen, vise à traiter la perte de vision dans le syndrome d'Usher de type 2a et la rétinite pigmentaire non syndromique. sepulbio.com/company-overvie…
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Retina International retweeted
Exciting news🎉Retina International World Congress 2024, hosted by @fight_blindness, won the Educational Meeting of the Year award at the 2024 @HealthAwardsIrl by @IMT_latest! A huge thanks to @Retina_Int and everyone who made it a success. 👉 shorturl.at/t5LiL #IMTIH2024
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Retina International retweeted
Join Our Free AMD Webinar to hear from top experts on AMD, the #1 cause of sight loss in Ireland for those over 50. Speakers: Eye Surgeon Mr Mark Cahill, Prof of Genetics @mattcampbelltcd @tcddublin & a Researcher from Prof @SDoyleTcd Group. Register here: fightingblindness.ie/news/jo…
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Retina International retweeted
Retina International@Retina_Int20 Sep 2024
Retina International will mark World Retina Day 2024 on September 28th RI will highlight the importance of Patient Perspective in Decision Making and will host a Webinar on September 27th at 12pm CET. Please contact Andrew Ryan [email protected] to register
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Retina International retweeted
@avrilbdaly from @Retina_Int is now speaking about the patient perspective #euretina2024
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Retina International retweeted
Yes!! Well done @orla_comerford - a true champion 🏆 #Paralympics #Paralympic2024 @ParalympicsIRE
BRONZE FOR ORLA COMERFORD🥉🥉🌟 2 Medals in 2 Minutes 🌟 Orla Comerford takes the bronze medal in the T13 - 100m Final ☘️☘️ #TeamIreland | @ParalympicsIRE | @irishathletics
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Retina International retweeted
#raredisease patients & parents gathered today to highlight the urgent need for improved #NBS @OireachtasNews thank you Vicky @RareDiseasesIE @JohnLahart @padraigosull for opportunity
Today we visit Leinster House, calling on Oireachtas members to support our call for urgent action to expand the newborn heel prick test screening services provided to babies born in Ireland. Stay tuned to our socials and visit rdi.ie to learn more #GetRareAware
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Retina International retweeted
Retrouvons en vidéo le congrès de Retina International qui s'est déroulé à Dublin. Ce vendredi démarre à Angers les 3 jours Retina avec le concert de Lilian Renaud suivi du colloque Retina France et de l'Assemblée Générale. @Retina_Int @lilian_renaud youtube.com/watch?v=ZqeC5jtt…
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Retina International retweeted
Congrats Avril on your presentation on the panel. Eloquent and on target as usual. You make us proud. 👏👏❤️❤️❤️
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All set for #RIWC24 👁️ Looking forward to discussing the importance of patient and public involvement in #oculardrugdelivery and #visionloss research during the #PPI workshop this afternoon @fight_blindness @Retina_Int @RIWC24
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Retina International retweeted
That's a wrap for today! We had high quality panel discussions, short talks and poster presentations from global experts talking about gene therapies, diagnostics, clinical trials and more. Join us tomorrow for the #RIWC24 Public Engagement Day; Together we’re Targeting the Cure!
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Retina International retweeted
Final #RIWC24 session for today💫 An incredible panel on the High unmet medical needs in retinal degenerations, with Prof Bennett @Penn, Avril Daly @Retina_Int, Dr Durham @FightBlindness, Mr Morrisey @NIBRT_, Prof Pennesi @OHSUNews, Dr Chung @SparingVision and Prof. Leroy @ugent.
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Retina International retweeted
Replying to @RIWC24 @Retina_Int
Thanks to #riwc24 organizing committee for this opportunity.
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Retina International retweeted
Replying to @DrNabinPaudel
@DrNabinPaudel is the Head of Research and Programmes at the patient-led global umbrella organisation @Retina_Int, which represents the voice of charities and foundations concerned with the promotion of retina research and related health policy in 43 countries. Presenting now!
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Retina International retweeted
Excited about our #RIWC24 Welcome Reception🎉  Our attendees are in for a fantastic night of connections and conversations.  Here's to a great start! @Retina_Int | @fight_blindness
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Retina International retweeted
Great to see you here @wheresclair @Retina_Int – at Dublin City, Ireland
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Retina International retweeted
Dr Chung, CMO of @SparingVision, presented on Gene Agnostic Therapeutic Approaches for IRDs. Dr Chung has significant experience in Ocular Gene Therapies for IRDs and was responsible for the development of the 1st FDA-approved gene therapy for a genetic disease causing blindness.
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Retina International retweeted
The wait is over🎉 Kicking off #RIWC24 Scientific Program with Prof. Jane Farrar @tcddublin and Mr. Franz Badura @Retina_Int. Join us as in our journey to Target the Cure and drive innovation in vision loss research. #StayTuned for updates and highlights through the day! @JNJNews
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Retina International retweeted
We have been filming with @VirginMediaIE this morning! Huge thanks to Prof. David Keegan, Consultant Ophthalmologist at the Mater Misericordiae University Hospital, as well as the paralympians @orla_comerford and Greta Streimikyte for the support. #RIWC24
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