The Bonnell Foundation: Living with Cystic Fibrosis provides financial assistance, Educ. scholarships, & resources to navigate life with CF. #CFMomof2girls
Michigan
Joined September 2011
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Glad to be at the @RareDiseases Summit for some Breaking News.This morning I attended the Rare Disease Regulatory Roundtable, moderated by @ComstockRi54463 Assoc. Director of the FDA rare disease hub. Guest speaker #karimMikhail made an announcement about individual gene therapy. He is Director of CBER. Watch it here! Very exciting! @FDA @DCOfficial #science #innovation
Rare moms meet up at @RareDiseases Summitt. @beckyquick @CNBC Thanks for all you’re doing to raise awareness! You were also a fabulous moderator. #inthistogether
Today’s office! It’s loud with people (which I love), windows and hot coffee! #livingthelife #touslesjours coffee shop
It’s pregame! Set up day for tomorrow’s Gala! We have the best volunteers s and team! Can’t wait for the big fundraising day! @LauraTbonnell Headed to @MiLivonia to Laurel Manor for set up!
Irishman David Howard fresh off the Open Championship talks to Laura about playing golf and raising awareness about cystic fibrosis. He's incredible. livingwithcysticfibrosis.sim…
Have you watched our Emmy nominated documentary? Here ya go. It's a short doc: youtu.be/SlMscQ6Spjg
We discovered a product at the European CF Society Conference that may interest the CF community. The Bonnell Foundation is not endorsing Vecta, we're simply sharing information. Watch our conversation with Roberto Valla to learn what the company says about supporting CFTR modulator absorption.
#CysticFibrosis #CF #CFTRModulators #ECFS @ecfs
youtu.be/ZuZhMfD2JPU
Our IG account just needs 9 more followers to get to 1001!!!!!!! Can you help us???? It would mean a lot to us!
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