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@ccoo_ss_hgua @sanidadgob @M_Presidencia @sumar @SocialistesVal @gpssenado @Monica_Garcia_G @CarlaAntonelli @nah_gon @cofino @javierpadillab @rosamariaartal @interviu @efesalud @elpais_salud @sonsolesonega @YAhoraSonsoles @susanadiaz @susannagriso @LaMesa_A3 @EspejoPublico
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Descubren cómo empieza el daño renal en una enfermedad autoinmune y una posible vía ... - goo.gl/alerts/2RU6Nt #GoogleAlerts
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¿De dónde vienen las enfermedades autoinmunes? - The New York Times - goo.gl/alerts/AeZaEX #GoogleAlerts
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ES INHUMANO. DESGARRADOR.
Leila tiene 13 años, un tumor cerebral y un 86 % de discapacidad.
Su madre lleva 20 días esperando 6 horas diarias a las puertas de su instituto para cambiarle el pañal porque la Generalitat del PP no sustituye a su educadora.
¿Qué clase de personas nos gobiernan en la GVA, si es que se les puede llamar así?
informacion.es/alicante/2026…
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Los pacientes con lupus tienen el doble de riesgo de sufrir un infarto o un ictus que la ... - goo.gl/alerts/9KgFmP #GoogleAlerts
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Necesitamos ya que se empiece a reconocer la discapacidad invisible en todos los sitios: transporte público, supermercados... De qué vale presumir de accesibilidad si se olvidan de gran parte de las personas que necesitamos ayuda?
Por ejemplo, todos los días laborables cojo (+)
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'Ciencia de cerca' recibe un premio de divulgación científica - Noticias de Almería - goo.gl/alerts/yiAHRu #GoogleAlerts
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La dura batalla de una atleta olímpica contra la encefalomielitis miálgica: "He perdido mi ... - goo.gl/alerts/sWKEPE #GoogleAlerts
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Vivir con dolor neuropático: quemazón, hipersensibilidad al roce de la ropa, pinchazos o ... - goo.gl/alerts/wr13P2 #GoogleAlerts
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Look no further than the Nano Needle. The researcher at Ron's lab who invented it spent years working on it, came up with a diagnosic test that was super accurate, actaully highly *unlikely* *not* to work, was so cheap to manufacture we could have had it in every lab around the world and thus could have diagnosed every single ME/CFS patient worldwide in a short time. It was brilliant. And NIH would not fund it for baffling (or disgusting) reasons and it kind of ruined his career. He's now at another university trying to start over when he should be famous for changing the world.
Anyone else want to sign up for a field of research like that? Any takers? You get kicked to the curb for a brilliant invention that would completely change the world and save millions of lives. 🤦😨🤬
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“He was a doctor who ran marathons. Now, walking to the bathroom is harder than any marathon he ever ran. In this grade of severity ME is only invisible if people purposefully look away.”
Evelien van den Brink calling for biomedical #MECFS research in European Parliament in 2019
1) We have written an article with more background information on the €7.5 of European funding for #MECFS. 👇
While a historic achievement, one project can not undo decades of underfunding. Our goal is a long-term support for ME/CFS research.
europeanmecoalition.com/e-7-…
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Enfermedades autoinmunes en adultos jóvenes: lo que debe saber share.google/hF5LIHPyD5wundA…
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To everyone who thinks….
people with #MECFS or #LongCovid
are exagerating,
are being dramatic,
are fighting and
being agressive
about getting help and support.
Imagine your spouse, your child, your parent, your best friend or someone else that is very close to you or yourself, is suddenly so sick that they cannot walk, talk, bear light or sound and deteriorate over months and years with no help.
How would you see it then???
Are so many people not able to reflect? Not able to empathize? Not able to show compassion?
Is life just about „survival of the fittest“?
Is society about ignoring chronically ill people and treating them as outcasts?
Neglecting people with ME and LC and actively refusing to learn about the most current guidelines of how to diagnose and offer treatment to reduce and manage symptoms, is the biggest medical scandal.
Rush🐺 retweeted
Brain Pressure in Long COVID
Do you ever feel like there is pressure deep inside your brain? Not necessarily a headache, but a fullness or heaviness or pressure sensation, often concentrated in the back of your head? I hear this repeatedly from patients. 🧵
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Algunas nubes impresionan, pero es peor la que portamos dentro 🥹 los pacientes de dolor crónico y que no se ve. ¿O no? – at Olmos de Esgueva, España
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Logra pasar a una incapacidad permanente absoluta tras años cobrando una ... - Tododisca - goo.gl/alerts/yD98rC #GoogleAlerts
