Delighted that Roisin has been awarded the @IntChildHealth Student Engagement Prize The prize is for Roisin's work to develop core outcomes & common data elements for paediatric #hydrocephalus. Her work will transform lives. @LeedsMedHealth @RCPCHtweets

Is your family affected by paediatric #Hydrocephalus? We want to understand the experiences of families after a diagnosis of paediatric hydrocephalus. Your voice matters! Get in touch on: [email protected] #CoreOutcomes #Hydrocephalus

Families, clinicians & researchers! ▶️ What paediatric hydrocephalus outcomes matter to you most? ▶️ What information should researchers collect as part of all paediatric hydrocephalus studies? Your voice matters! Get in touch: [email protected] #CoreOutcomes #Hydrocephalus

Help us get our new 'Hydrocephalus: What I wish I'd known' book to as many families as possible who need it. Pls share far & wide. To get a free copy email [email protected] #Donations always welcome☺️#hydrocephalus @jayjayamohan @hine_hin @BBC_Hampshire @leahlockhart15

When families find out their child has #hydrocephalus the consultant will often ask. Any questions? It's hard to know what to ask. We're looking for families to take part in an online Zoom to find out what questions to ask at diagnosis. Pls get in touch if you'd like to help.

This is brilliant!

Different experiences of parents who took part in our survey to understand more about attitudes to screening in pregnancy and #hydrocephalus. Thank you to @HillNon @RHVolunteering students for conducting this vital research. Full report available. #HydrocephalusAwarenessWeek

During #HydrocephalusAwarenessWeek we wanted to reflect on our recent survey. Whilst congenital #hydrocephalus can be discovered during routine pregnancy scans, it can be missed. We wanted to find out what parents thought of the possibility of having a scan in later pregnancy.

Think Harry was pretty chuffed!😊 Only achieved because every involved and who all do so voluntarily, work so hard!!

Despite all the odds, we got to say 'I do' Definitely not the big white wedding, but pretty perfect all the same- if Harry's condition has taught us anything it is to cherish every special moment. 💙💙

The collective sense of fear & uncertainty, may be new to many. For families with a child with a life-threatening condition however, this sense of a lack of control is sadly all to familiar. Do one #goodthing today. #Share this page & help more people learn about #hydrocephalus

Please support this important study to help improve understanding of the impact that #COVID19 is having on children, young people and families affected by #hydrocephalus.

Please share your views. #hydrocephalus #COVID19 #vpshunt