Clinical Psychologist working in neurorehab 🧠 Interested in all things neuro, chronic conditions & palliative care. Special interest in PoTS. Views my own
Joined December 2011
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Sam Waterman retweeted
Delighted to see the devastating impact of #PoTS being addressed, it’s a very difficult journey for patients and their families @UKPoTS @LWNurses @SmartHealth_UK
Sam Waterman retweeted
I’ll never tire speaking to new trainees and assistants about how varied, rewarding, interesting and (appropriately) challenging a career in #neuropsychology is. ‘I thought it was just about doing tests with people’ - it’s so much more than that!
Sam Waterman retweeted
❗️Research alert 🧠
If you are the partner or spouse of someone who has had a #braininjury or a #stroke, please consider taking our survey about how your relationship and your well-being has been affected.
#rehab #neuropsychology #research
Follow tinyurl.com/lifepostinjury
Sam Waterman retweeted
As a neurologist, I can tell you that "people with #chronicillness in general don't fake being ill, they mostly fake being well."
#MedTwitter #Dysautonomia #MECFS #LongCovid #EhlersDanlosSyndrome
As a primary care doctor, I can tell you that “People with #LongCovid don’t fake being ill, they mostly fake being well”
Sam Waterman retweeted
The authors from the @Brain1878 study with a false claim that #POTS is psychogenic respond to all of the letters with more false claims. I'll try to outline them here 🧵:
1. They say, "the underlying cause of POTS remains elusive, and regrettably, there is no effective 1/n
You know your study is very flawed when you get criticism letters from @TeamSRRaj @DavidSGoldstei2 @davidtuller1, Roald Lambrechts and all other co-authors, including myself. Collectively, we told the authors & @Brain1878 that #POTS is not psychogenic!
academic.oup.com/brain/advan…
Sam Waterman retweeted
Swedish researchers just published the first #POTS symptom score, based on the 12 most common symptoms reported by 1000s of patients in the Big POTS Study, a collaboration between Dysautonomia International, Vanderbilt & Univ of Calgary. This is progress!
onlinelibrary.wiley.com/doi/…
Sam Waterman retweeted
A 🧵on #FND, #Neuropathy and #EhlersDanlosSyndrome
Was referred a patient with a diagnosis of "possible FND." She is in her late 30s with a b/l carotid artery aneurysms repair, a long-standing history of headaches and neuropathic pain, GYN surgeries, joint pain, easy bruising 1/n
Sam Waterman retweeted
This. All of this. Every word.
#RoeVsWade
Sam Waterman retweeted
In Nov 2017 I was told I had ALS and should prepare to die. By 2018 I had decided to fight with every single breath.
This is the trailer for what happened next. I hope you like it, will share it with everyone and get ready to change the world.
Good night moon.
Sam Waterman retweeted
I would like to see more provision for community rehab no matter where a person lives, and enough funding for teams to provide long term support at the right intensity #ActionForBrainInjuryWeek
It is #ActionForBrainInjuryWeek with the theme 'See the Hidden me', highlighting the impact of hidden disabilities. As a collective, we asked the question - 'if you could change one thing for people living with ABI, what would it be?' - what would you change?
Sam Waterman retweeted
Short 🧵on symptom measurement in #LongCovid / #MECFS and other chronic illnesses. We need to do better. Many of the symptoms that we're trying to track don't have a physical biomarker, and while patient-reported outcomes (PROs) are helpful, then need to be far more (1/n)
Sam Waterman retweeted
When I say, "Does that make sense?", it's not because I don't think you're smart. It's because I think that I am incoherent.
Sam Waterman retweeted
Just heard on the radio 'I don't think we'll ever see the Queen in a wheelchair' she wouldn't give in. Can we all (including the media) stop this idea that using a wheelchair is giving in or so awful that we couldn't possibly see a 95 year old use one if she needed.
Sam Waterman retweeted
Shared with permission:
This is the sort of abnormal postural variation of heart rate due to #Dysautonomia in #POTS.
This previously athletic, fit and healthy young man has been suffering with these symptoms ever since his #LongCovid set in nearly 8 months ago, with no respite.
Sam Waterman retweeted
Will my life’s work be changing medical notes from ‘wheelchair bound’ to ‘wheelchair user’?? Why are we still using this word!!
Sam Waterman retweeted
Saw 3 patients today with long covid, something I feel that’s not being considered when talking of lifting restrictions. If we continue to let COVID rip through society & lift important measures like face masks, we risk more people suffering with debilitating chronic illness
Sam Waterman retweeted
#MultipleSclerosis was once thought of as functional neurologic disorder and would fall under "medically unexplained symptoms." A cautionary tale for other disorders we're currently labeling as such because we haven't identified their biomarkers yet. #NeuroTwitter #Neurology
Sam Waterman retweeted
1/3 @UKPoTS Chair Prof Lesley Kavi has written a fantastic new article for @BJGPjournal- ‘Postural tachycardia syndrome & #LongCovid’
We hope this will be extremely useful in helping #GPs to recognise/manage #PoTS & it’s relation to #Covid-19
bjgp.org/content/bjgp/72/714…
#MedTwitter
Sam Waterman retweeted
One moment of silence can help a community feel heard. This is our BBC
@RoseAylingEllis @pernicegiovann1 @bbcstrictly
