Scientific Director at the Dravet Syndrome Foundation; PhD from CU-AMC. Views and opinions are my own. Science & advocacy with a splash of puppies and TheOffice
Johnson City, TN
Joined October 2016
- Tweets620
- Following1.3K
- Followers673
- Likes5.8K
Veronica Hood retweeted
📢If you want to challenge yourself with an exciting gene therapy project for DEEs and join a fantastic, passionate and motivated team, do not hesitate to apply for this position.
Veronica Hood retweeted
2024 DSF Research Grant applications are now open!
We offer five grant categories! To find out more details about each grant category and apply today, visit bit.ly/3THkqP7!
Veronica Hood retweeted
Today, we honored our loved ones during our 3rd annual butterfly release at our Wings of Hope event. 🦋✨ Each butterfly represents a story of resiliency, love, and our collective hope for a cure.
#DSFConference #DravetSyndromeAwarenessMonth #CureDravet #DravetCommunity
Veronica Hood retweeted
Welcome to the 2024 DSF Family & Professional Conference! 🌟 Now that our setup is complete, we’re ready to embark on a journey of learning, sharing, and connecting with all of you.
Veronica Hood retweeted
The @CookChildrens art robot 🤖 #Spikelangelo is back at work today on another portrait for #DravetSyndrome Awareness month! Stay tuned to see the final product later today! @curedravet
Loved getting to meet and hear more about the research Dr. Alhajj and her colleagues at @UHhospitals have done looking at limb swelling in #Dravet.
We just spoke with a trio of experts this morning on limb swelling in #Dravet syndrome at #AANAM! Featured below are Mandy Alhajj, DO, James Dolbow, DO, & Neel Fotedar, MD, from @UHhospitals. @AANmember @curedravet
I'm looking forward to hearing more from Dr. Papedlis about his work on biomarkers for #Dravet at the upcoming DSF Conference! Are you joining us? See the agenda and register: DSFConference.org
Christos Papadelis, PhD, director of research at @CookChildrens, talked about ongoing research on biomarkers to enhance treatment and improve cognitive outcomes. #NeurodegenerativeDisorders #BiomarkerEnhancement
Watch here: neurologylive.com/view/resea…
Veronica Hood retweeted
At UCB, we understand the power of listening to and learning from patient communities to help us deliver better outcomes. This #PurpleDay2024, learn from rare #epilepsy leaders Karen and Veronica in our most recent episode of Raring to Listen.
Click to listen⬇#EpilepsyAwareness
It was my pleasure to be a guest on UCB's Raring to Listen Podcast discussing quality of life for families and patients living with a rare epilepsy
As Scientific Director for @curedravet, Dr. Veronica Hood understands the power of patient communities coming together and advocating to solve unmet needs. Hear more from Dr. Hood in the latest episode of UCB’s Raring to Listen. 📻
Veronica Hood retweeted
Catastrophic neurological disorders in children are often caused by a single gene mutation. Most have no effective treatments, making it a huge unmet need. @hcmefford, MD, focuses on neurological diseases like epilepsy & works with PTNI to alter the landscape of these disorders.
Veronica Hood retweeted
This position is still open for US board certified epileptologists who want to care for people (adult+peds) with genetic forms of epilepsy. Strong clinical genetic support and research environment provided.
Please share‼️Our center for Neurogenetics, is jointly (adult Epilepsy & pediatric neurology) recruiting a neurologist with focus:
➡️ Exclusively genetic epilepsies 🧬
➡️ Peds 👦👧🏿 + adult 👩 👨🏽
➡️ Care 💊+ research 🧐 [academic + industry sponsored]
careers.uth.tmc.edu/us/en/jo…
Veronica Hood retweeted
Time is ticking... The #ILAE e-Forum: Optimal models of care during transition from childhood to adulthood is in 2 DAYS on 16 February at 14:30 UTC. Register now for free and gain access to the pre-reading materials: ilae.org/e-forum4.
#epilepsy #epilepsyeducation @yesILAE
ALT ILAE E-FORUM SERIES 2023 16 February 2024, 14:30 - 16:00 Optimal models of care during transition from childhood to adulthood 2 days to go!
An important announcement this morning for the #Dravet community as Encoded Therapeutics shares regulatory clearances enabling them to move forward with trials for their #genetherapy candidate in the US and Australia
businesswire.com/news/home/2…
Veronica Hood retweeted
"A comprehensive & innovative approach to reduce sudden death in patients with epilepsy.”
Our SUDEP & Seizure Safety Checklist is a simple tool that enables health professionals to have that conversation with patients about risk safety.
Find out more: sudep.org/checklist
Veronica Hood retweeted
Key point: "Discovery of SCN1A variants as genetic biomarkers for Dravet syndrome has aided diagnosis & may partly explain the higher number of articles identified for Dravet syndrome than Lennox–Gastaut syndrome."
Find this & more from @EpilepsiaJourn at p0.vresp.com/buWt6p.
ALT A systematic literature review on the global epidemiology of Dravet syndrome and Lennox–Gastaut syndrome: Prevalence, incidence, diagnosis, and mortality Joseph Sullivan, Arturo Benítez, Jeannine Roth, J. Scott Andrews, Drishti Shah, Emma Butcher, Aimee Jones, J. Helen Cross First published: 22 January 2024 Epilepsia ILAE
Veronica Hood retweeted
A heartfelt 💟Thank You💟 from #TeamDSF to each and every member of our incredible community. Your unwavering support, generous donations, and inspiring stories fuel our mission every day. 💜🦋 #dravet #dravetsyndrome
Great insights as always on #AES2023 from @CNSdrughunter! Lots of promise for #Dravet and other DEEs, but still some challenges to overcome
Here are my main insights from #AES2023
-Epilepsy as a collection of rare diseases
-Gene therapies also for non-genetic epilepsy
-All syndromes need better treatments, even #Dravet
-The 3 mountains to climb for dis-mod therapies
-Impressive patient groups
draccon.com/dracaena-report/…
Veronica Hood retweeted
@curedravet kicked off the weekend at #AES2023 by bringing together researchers, physicians, advocates, & industry for their annual Research Roundtable, which focused on research projects the DSF has funded to address challenges associated with Dravet syndrome and other DEEs.
Veronica Hood retweeted
We greatly appreciate the funding support provided by @curedravet to work w/ @LoriLIsom1 on a new #MGE transplantation project in rabbits
dravetfoundation.org/dsf-ann…
Veronica Hood retweeted
Among patients without identified cause for their #epilepsy:
19% of clinicians would consider WGS ONLY for patients where TREATMENT options were available based on results
HEAR THIS 📣
Knowing the etiology of epilepsy AND
Connecting to a community of people with THAT etiology IS TREATMENT - it may be one of the most beneficial “precision treatments”!!
#AES2023