*#ScottAllen retweeted
Our first lay summary of 2026 examines whether taking cholesterol-lowering drugs has an impact on the risk of developing motor neurone disease.
Read the research made readable at readableresearch.com/mnd/cho…
*#ScottAllen retweeted
Researchers have been examining the potential for earlier detection of Alzheimer’s Disease by looking at the link between brain communication and memory loss.
Read about the findings of their studies, and what it means, in our lay summary at readableresearch.com/dementi…
*#ScottAllen retweeted
Back in July we hosted EnCouRage - our two-day UK event for early career researchers (ECRs) who have chosen MND as their focus of investigation.
It was all about connection, collaboration and sparking important conversations between researchers and the MND community. 🧡
#MND
*#ScottAllen retweeted
🧠💤 Have MND/ALS? We need your voice.
Sleep is more than a symptom, it reflects underlying disease processes, affects quality of life, and may offer clues for new treatments.
Take part in a 15-min @kingsmnd survey to guide future care and research.
🔗 surveymonkey.com/r/D8SYJPQ
*#ScottAllen retweeted
It’s been a great two days at #MNDEnCouRageUK 2025!
We’ve heard the latest #MND #ALS research updates , made new connections and had some interesting discussions!
We’d like to thank everyone who attended and presented this year 👏 We couldn’t hold this event without you 🧡💙
*#ScottAllen retweeted
The Ice Bucket Challenge is back, this time raising awareness for Mental Health amongst a new generation of fundraisers.
You can read more about the origins of the #IceBucketChallenge and how pivotal it was for the MND community here 👇
🧊#MND
*#ScottAllen retweeted
📢 The @APPGonMND has issued a statement on challenges faced by people with SOD1 MND - 2% of the MND population - in accessing ground-breaking treatment, tofersen, through an Early Access Programme.
Read more: mndassociation.org/media/lat…

ALT APPG on MND statement on access to tofersen for people with SOD1 MND. It reads: We urge the Government to step in immediately to find a solution to help people facing this horrendous, terminal illness. It cannot be right that people lose their lives for lack of a small amount of resource to give them a freely-available drug. This treatment has the potential to transform lives and must be provided to everyone who can benefit from it as soon as possible. It is signed by: Ian Byrne MP, Aphra Brandreth MP, Michael Payne MP, Olly Glover MP
*#ScottAllen retweeted
I lost my mum to MND & have been fundraising in her name for 10 years! I’m just £2115 away from hitting £70,000 🎉
We lose 6 people every day to MND so I plan to do 6 events in 2025 to represent those 6 🙏
Link to donate to my 6 for 6 here:
justgiving.com/page/stacey-k…
THANK YOU 💙🧡
*#ScottAllen retweeted
It's #ChildrensBookWeek 📖
Try, written by Rob Burrow and Kevin Sinfield, is a heart warming story about about friendship, kindness and what heroes are really made of.
We are very grateful to receive a donation for every copy sold.
🧡#MND
*#ScottAllen retweeted
As well as summarising scientific research, we want to demystify what happens in our labs.
You’ll often read about ‘tissue culture’ in our reports – but how does that work?
Here's @neuroshef's Marianne King to explain more from inside the lab.
*#ScottAllen retweeted
A study looking into the production of toxic proteins in the development of MND.
It aims to help our understanding of the tests needed to assess future therapies and support the evolution of potential treatments.
Read the lay summary at readableresearch.com/mnd/beh…
*#ScottAllen retweeted
Researchers have been examining how activating the vagus nerve, using a small device held to the side of the neck, could lead to improved movement for those living with Parkinson's.
Our lay summary of this study, from Kate Matheson, is available at readableresearch.com/parkins…
*#ScottAllen retweeted
A human trial of NuNerve, one of the few drugs approved for use in those living with MND / ALS, has produced positive results.
We’ve produced a readable summary of this important Australian research which you can read at readableresearch.com/mnd/nun…
*#ScottAllen retweeted
A huge amount of research is taking place into the impact of COVID-19 on the brain.
Five years on from lockdowns, our latest lay summary focuses on a study which finds a complex and evolving relationship between the virus & inflammation in the brain.
👉 readableresearch.com/infecti…
*#ScottAllen retweeted
A fully funded PhD Studentship funded by @mndassoc to work on the function of TMEM106B at the synapse in ALS/FTD is available to start 1 October 2025. findaphd.com/phds/project/in…
*#ScottAllen retweeted
We’ve written a summary of research into the potential use of a synthetic vitamin A drug, Elloraxine, in those living with MND/ALS.
Read the lay summary from Harry Baker at readableresearch.com/mnd/pro…
*#ScottAllen retweeted
Our team has written a summary of research into the use of energy from the brain’s support cells, astrocytes, in those living with dementia.
You can read the full article from Hollie Wareing at readableresearch.com/dementi…
*#ScottAllen retweeted
Our latest lay summary is on research which aims to help understand the genetics behind frontotemporal dementia where there is no family history.
It's hoped this can help develop treatments for the disease, and other neurological conditions like MND.
👉 readableresearch.com/dementi…
*#ScottAllen retweeted
Scientists have been examining the tolerance of those living with relapsing multiple sclerosis to a drug treatment aimed at slowing down the disease’s progression.
We have written a summary of the 4-year study and you can read it at readableresearch.com/other/o…
*#ScottAllen retweeted
As part of our aim to widen understanding of research, we're extending the topics we cover thanks to our work with @SheffieldBRC.
This new lay summary is on a study into how HIV exhausts the ability of natural killer cells to fight infections.
Read at readableresearch.com/infecti…






















