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SPANIOS.GR

@SpaniosGr

https://teapawt.org/t.co/wvnPrSKzL1 is a voluntary Greek website set up to provide Ιnformation & raise Αwareness ab/ #RareDiseases 🔸fdr @ElinaMiaouli🔸#ΣπάνιεςΠαθήσεις #Υγεία #ΑμεΑ

 Athens / Brussels
spanios.gr/
Joined August 2013
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SPANIOS.GR retweeted
cysticfibrosis.gr (@CFGreece) profile picture
cysticfibrosis.gr@CFGreeceNov 4
🕵️‍♀️ Η Εκπαιδευτική Εκστρατεία «Μυστική Αποστολή: Κ.Ι.²» συνεχίζεται! Νέος κύκλος ΔΩΡΕΑΝ διαδικτυακών σεμιναρίων εκπαιδευτικών - Νοέμβριος έως Δεκέμβριος 2026 με έναρξη: 10/11 Συνεχίζονται οι σχολικές δράσεις για μαθητές Γ΄- ΣΤ΄ Δημοτικού! 🔗cysticfibrosis.gr/2026/11/04…
Image from cysticfibrosis.gr (@CFGreece)
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SPANIOS.GR retweeted
ERDERA (@ERDERA_org) profile picture
ERDERA@ERDERA_orgNov 5
🎯 Shaping the new era of rare disease research. Three days. Six session themes. One #REACTCongress bringing the #RareDisease community together to explore the research and challenges shaping what comes next. 📆 10–12 March 2027 | Budapest 🔗 Register: loom.ly/_fGiC04
Image from ERDERA (@ERDERA_org)
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🇪🇺 Europe has made progress on rare diseases. But the gaps remain. Europe has already built important foundations, but these efforts cannot reach their full potential in isolation. We need a #EURareDiseasePlan. 👉 Explore the Blueprint: go.eurordis.org/PressRelease…
Text asking why Europe needs an EU action plan on rare diseases with a DNA strand and stars in the background.

ALT Text asking why Europe needs an EU action plan on rare diseases with a DNA strand and stars in the background.

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SPANIOS.GR retweeted
Elin@ Miaouli (@ElinaMiaouli) profile picture
Elin@ Miaouli@ElinaMiaouli17h
Μεγάλο πράγμα η Αυτοσυγκράτηση.
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Αμυλοείδωση: Η ύπουλη άγνωστη νόσος με τα πολλά πρόσωπα – Ποιες είναι οι νέες θεραπευτικές επιλογές topontiki.gr/2026/10/27/amil…
Image from ΤΟ ΠΟΝΤΙΚΙ (@TOPONTIKI)
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SPANIOS.GR retweeted
ERDERA (@ERDERA_org) profile picture
ERDERA@ERDERA_orgNov 3
🧬 AI, clinical trials, emerging therapies and the future of rare disease research were all part of the conversation at #WODC2026. 👉 Find out what was discussed and how #ERDERA contributed: loom.ly/dY6Ud8A #RareDiseases #EUHealth
Image from ERDERA (@ERDERA_org)
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Two days of hands-on training in Paris! At the #REMEDi4ALL Bootcamp, patient representatives explored how to identify repurposing opportunities, navigate regulatory pathways and clinical trials, and assess project funding. 👉 Learn more about REMEDi4ALL: go.eurordis.org/Remedi4all
Image from EURORDIS-Rare Diseases Europe (@eurordis)
Image from EURORDIS-Rare Diseases Europe (@eurordis)
Image from EURORDIS-Rare Diseases Europe (@eurordis)
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SPANIOS.GR retweeted
Elin@ Miaouli (@ElinaMiaouli) profile picture
Elin@ Miaouli@ElinaMiaouliNov 3
Ενήλικες να κοροϊδεύουν σαν μικρά κακομαθημένα Παιδιά.
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✨ Some achievements deserve a night to remember! Registrations are OPEN for the 16th #BlackPearlAwards! Join us in Brussels on 15 February 2027 to celebrate those making a difference for the rare disease community. 👉 Secure your place: go.eurordis.org/BPA2027regis…
Purple background promoting the 16th EURORDIS Black Pearl Awards with bronze star-shaped figures and a call to register now.

ALT Purple background promoting the 16th EURORDIS Black Pearl Awards with bronze star-shaped figures and a call to register now.

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Αγνώμων άνθρωπος∙ μίζερος άνθρωπος.
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Εµβόλιο mRNA νικά το µελάνωµα: Μείωσε κατά 42% τον κίνδυνο υποτροπής ή θανάτου - Πότε αναμένεται να κυκλοφορήσει parapolitika.gr/ugeia/articl…

Εµβόλιο mRNA νικά το µελάνωµα: Μείωσε κατά 42% τον κίνδυνο υποτροπής ή θανάτου - Πότε αναμένεται να...

Υγεία - Μια νέα σελίδα στη µάχη κατά του καρκίνου ενδέχεται να ανοίγει µετά την ανακοίνωση των Moderna και Merck (MSD εκτός ΗΠΑ και Καναδά).

parapolitika.gr
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Άνθρωποι αναίσθητοι μπροστά στο ενδιαφέρον, αλλά υπερευαίσθητοι μπροστά στην αδιαφορία.
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⏳ Hurry up! Just 11 hours left to register. Join the 4 Nov Expert Dialogue at the European Parliament on making cross-border healthcare work better for patients. 🚨 Register by 22 Oct: go.eurordis.org/cross-border… @EuropeanCancer @SIOPEurope
Image from EURORDIS-Rare Diseases Europe (@eurordis)
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🇪🇺 How can research become a standard part of rare disease care? 🧬 Join EURORDIS & Rare Diseases Ireland on 13 Nov in Dublin or online for “Research as Care: Why Rare Diseases Matter for Europe's Future”. 👉 Register now: go.eurordis.org/rare-disease…
Event on embedding research and innovation in rare disease care, Nov 13, 2026, Dublin at Radisson Blu Royal Hotel.

ALT Event on embedding research and innovation in rare disease care, Nov 13, 2026, Dublin at Radisson Blu Royal Hotel.

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Every minute counts in a stroke. Know the signs, act fast and call emergency services right away! Share and save this video. It could save a life.
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Μια φορά, δυο φορές, τρεις φορές — δεν πρόκειται για τυχαίο συμβάν, αλλά για επιλεγμένο μοτίβο.
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SPANIOS.GR retweeted
ERDERA (@ERDERA_org) profile picture
ERDERA@ERDERA_orgOct 28
🚀 A week ago, the ERDERA General Assembly Meeting set the stage for the partnership’s third year. 👇Discover the key discussions, takeaways and priorities of the 3rd ERDERA General Assembly Meeting 🔗 loom.ly/FAHGrq4 #ERDERA #RareDiseases #RareDiseaseResearch
Image from ERDERA (@ERDERA_org)
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The #HPV vaccine is highly effective. It can prevent 9 in 10 cases of the most high-risk strains of human papillomavirus (HPV) – the #1 cause of cervical cancer.
Image from World Health Organization (WHO) (@WHO)
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SPANIOS.GR retweeted
WHO/Europe (@WHO_Europe) profile picture
WHO/Europe
@WHO_EuropeOct 28
Accountability is what makes public health work—it's about ensuring every initiative delivers on the region's health needs. Follow the discussion as it addresses this year's accountability report at #RC76CPH: 🎥 bit.ly/4ijetEy
Image from WHO/Europe (@WHO_Europe)
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Θέλουν την Υπέρβασή σου, για να μένουν στη Στασιμότητά τους.
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