@TGCTSupportorg

The mission of TGCT Support is to improve the treatment and quality of life of #TGCT patients through #research #advocacy #compassion & #education |👇🏻

TGCTSupport.org
Joined November 2021
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  • Following342
  • Followers504
295Media
Day 2 of #ASCO26 coming at cha!
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TGCT Support retweeted
touchONCOLOGY
@touchONCOLOGYMay 13
📢 In this interview, Dr Stern (Head of @TGCTSupportorg Programs) discusses how advances in CSF1-targeted therapies are reshaping the treatment landscape, alongside the continued importance of multidisciplinary care and earlier specialist referral. Read: touchoncology.com/insight/sp…
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TGCT Support retweeted
Rob Ashford@RobAshford2Apr 3
Good work @stern_sydney Need to spread the word @SarcomaEast @BritOrthoOnc @EastleyNick @MrJDStevenson
TGCT Support@TGCTSupportorgApr 3
We’re proud to share the UK TGCT Consensus Guidelines are now live on Bone & Joint Open, alongside a patient-friendly version on our site. Thank you to @BoneJointOpen and all the authors! Medical: boneandjoint.org.uk/Article/…
Patient: tgctsupport.org/uploads/1/3/…
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🤩 Una de las mayores recompensas de ser oncólogo es realizar ciencia con un beneficio tangible en pacientes 🏥 Pimicotinib es un fármaco muy eficaz en pacientes con tumor tenosinvial de células gigantes, #TumorRaro sin fármacos aprobados en España elmundo.es/ciencia-y-salud/s…

Una terapia dirigida ataca con éxito un tumor ultrarraro para el que no había tratamientos aprobados

Nueva alternativa terapéutica frente a un tumor ultrarraro que afecta a las articulaciones. Este tipo de cáncer, denominado tumor de células gigantes de la vaina tendinosa (TGCT...

elmundo.es
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TGCT Support retweeted
PeerView
@PeerViewJan 14
Diffuse #TGCT remains a challenge, but targeted therapies offer new hope. Discover expert strategies for integrating CSF1R inhibitors into personalized care plans. Drs. @WTapMD & @RLRandallMD discuss clinical data and patient cases at #CTOS2025 #MedEd 📺 Participate now: bit.ly/3IpZHxa
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What a pleasure working with @WTapMD & @SilviaStacchia & @stern_sydney. @UCDavisHealth @UCD_Cancer @UCDAggieSquare @UCDavisOrtho @ASCO @AACR @AAOS1 @aoa1887 @TGCTSupportorg @SarcomaAlliance @sarcomacancerca @Sarcoma_UK @CureSarcoma @OncLive @OrthoFeed
PeerView
@PeerView20 Dec 2025
Join us for a deep dive into #TGCT pathogenesis, clinical evidence, and real-world case discussions from the #CTOS2025 symposium! Drs. @WTapMD & @RLRandallMD share strategies and practical approaches to managing this rare disease #MedEd #oncology 🔗 bit.ly/3IpZHxa

Achieving Disease Control in TGCT: Critical Steps For Integrating Evidence-Based Care With CSF1R...

See a new #TGCT activity via @PeerView @WTapMD #CTOS2025 #MedEd

lrn.peerview.com
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Replying to @TGCTSupportorg
@TGCTSupportorg @Liferaftgroup @UCDavisHealth @UCDavisOrtho @UCD_Cancer @ASCO @AAOS1 @UCDAggieSquare @UCDavisMed @aoa1887 @SarcomaAlliance @CureSarcoma @sarcomacancerca @Sarcoma_UK @aossm1972 @OrthoFeed
PeerView
@PeerView19 Nov 2025
Watch @WTapMD & @RLRandallMD discuss the latest Achieving Disease Control in TGCT: Critical Steps for Integrating Evidence-Based Care With CSF1R Inhibitors updates from #CTOS2025 @TGCTSupportorg – participate: bit.ly/TGCT25-T xitter.cf/i/broadcasts/1LyxBXEDr…
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TGCT Support retweeted
PeerView
@PeerView19 Nov 2025
Watch @WTapMD & @RLRandallMD discuss the latest Achieving Disease Control in TGCT: Critical Steps for Integrating Evidence-Based Care With CSF1R Inhibitors updates from #CTOS2025 @TGCTSupportorg – participate: bit.ly/TGCT25-T xitter.cf/i/broadcasts/1LyxBXEDr…
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TGCT Support retweeted
PeerView
@PeerView14 Nov 2025
Shoutout to @WTapMD & @RLRandallMD for leading an amazing discussion at #CTOS2025! Real-world takeaways for real-world care. 🗓 Missed it? You’ve got a second chance to join our Live Virtual Symposium on 11/19 from 12–1 PM EST: bit.ly/TGCT25-T Thanks to @DaiichiSankyo, @Deciphera & @Merck for their grant support, and @TGCTSupportorg for collaborating with us! #CME #MedEd
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Another outstanding presentation by Sydney Stern on the TGCT patient registry data! 🌟 Collaboration between patient advocates and clinicians is essential to overcoming disparities in TGCT. Thank you, @stern_sydney, for your effort and enthusiasm! #CTOS2025 @TGCTSupportorg
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Replying to @SolangeSV
@SolangeSV @SylvesterCancer presenting on #TGCT #Sarcoma @ctosociety #ctos2025 @ManuPalmerini @GinaDAmatoMD1 @EmilyJonczak @SteveBialickDO @TSubhawong
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TGCT Support retweeted
PeerView
@PeerView11 Nov 2025
Join William D. Tap, MD (@WTapMD), and R. Lor Randall, MD, FACS, FAOA (@RLRandallMD), on 11/13 at 6:45 PM EST during #CTOS2025 for a #TGCT #MedEd event 🔗 bit.ly/TGCT25-T Produced with @TGCTSupportorg #Oncology
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TGCT Support retweeted
PeerView
@PeerView6 Nov 2025
Achieving Disease Control in #TGCT: Learn how to leverage the evidence for CSF1R inhibitors in customized treatment plans with @WTapMD & @RLRandallMD on 11/13 at 6:45 PM EST Register ➡️ bit.ly/TGCT25-T Produced with @TGCTSupportorg #CTOS2025 #oncology
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Start your #CTOS2025 off with a CME about #TGCT in partnership with @PeerView and then make your way to the TGCT session and hear our oral presentation 🥳 jam packed TGCT knowledge with Drs Tap, Randall, and Stacchiotti Register at PeerView.com/TGCT25 for in-person Nov 13!
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🚨 ROMVIMZA™ approved in EU
🔗 deciphera.com/news/deciphera… 🏷️ Vimseltinib = 1st therapy for TGCT in EU (when surgery not feasible)
📈 Motion↑ | Pain↓ | Function↑ | CR ~23% @97wks
✅ Manageable safety
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We’re proud to announce the @EU_Commission approval of our medicine for patients with symptomatic tenosynovial giant cell tumor (#TGCT) associated with clinically relevant physical function deterioration and in whom surgical options have been exhausted or would induce unacceptable morbidity or disability. Learn more at our press release here: lnkd.in/ed5zs6sQ
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Looking forward to reuniting with my dear friend and colleagues @SilviaStacchia & Bill Tap to discuss the latest in TGCT Tx. @UCDavisOrtho @UCD_Cancer @UCDavisMed @UCDavisHealth @TGCTSupportorg @ASCO @AACR @SarcomaAlliance @CureSarcoma @sarcomacancerca @SU2C
TGCT Support@TGCTSupportorg12 Sep 2025
👀 no further for #MedEd on #TGCT, TGCT Support is proudly collaborating with @PeerView. Experts will share real-world cases, treatment strategies, & best practices. This event is @ctosociety on November 13 at 6:45 PM EST! Register at PeerView.com/TGCT25
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The Life Raft Group @TGCTSupportorg will be represented at the first-ever #TGCT patient conference in Shanghai, China on August 24th. We extend our gratitude to the Chinese Organization for Rare Disorders (@disorders54993) and EMD Serono, Inc., for making this possible.
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Such a privilege for us to partner with @TGCTSupportorg @Liferaftgroup to raise awareness. Great to see pts from across the U.S. descend on @UCDavisHealth to learn the latest. Thank you Dr. Stern and Co! @UCDavisOrtho @ASCO @UCD_Cancer @AAOS1 @aoa1887 @OrthoToday @ORSsociety
TGCT Support@TGCTSupportorg12 Jul 2025
Great talks on #TGCT from Drs @RLRandallMD Carr-Ascher & Copenhaver + an amazing patient story with her case presentation 👏🏻👏🏻👏🏻 @UCDavisHealth @ucdavis
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What an honor for @UCDavisOrtho @UCD_Cancer @UCDavisHealth @UCDavisMed to receive this international honor. @TGCTSupportorg @Liferaftgroup is making such a difference in the global stage for pts suffering from this debilitating neoplasm. @ASCO @AAOS1 @aoa1887 @AACR @ORSsociety
TGCT Support@TGCTSupportorg12 Jul 2025
Awarding Dr @RLRandallMD and Dr Janai Carr-Ascher with the #TGCT Center of Excellence award. We are grateful for their dedication to the community!
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