#LongCovid 2/2020=BEFORE vaccines ~ International #LongCovidAwareness ~ #LongCovidKids *Long Covid better be on my death certificate when I die. ✌🏼💛😷✝️
PNW🌲U.S/"The Twilight Zone"
Joined January 2022
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I told them back then who who knows how my trajectory will go--also have reactivated EBV diagnosis & no one knows what all will happen with all of us with Long Covid..Maybe MS diagnosis in my future, BUT no one knows.
They were basing off my symptoms & neuro exams at first then MRI(had some inflammation/ruled out MS lesions), labs to see if something else they could find, my diagnosis remains Long Covid. Some of my symptoms that seemed MS like have improved, some symptoms have worsened.
💛Lady w/ LongCovid💛 retweeted
My heart reaches out to Gavin’s family and friends. My heart also reaches out to everyone in the LC community here on this platform. Every time we lose one of our own, it takes away a little bit from all of us.
Absolutely heartbreaking to hear this morning that my mate Gavin @Gavtaraysin has gained his wings 🪽🥲
G was such a lovely person who always showed me support and kindness. I will miss my our chats, banter.
May he now rest in eternal peace ❤️
💛Lady w/ LongCovid💛 retweeted
Challenge: Get #LongCovidSuperDad ✊ Trending and VOTE Daily for FREE (it takes 1 minute) + Donate on Double Vote Days to benefit @CMN_HQ 🙏👇💯
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@AceHardware @OmahaSteaks
#LongCOVID
#PublicHealth
💛Lady w/ LongCovid💛 retweeted
Here at the pain doc. Nurse didn’t have a clue what Long Covid was. I schooled her a bit, but could tell she was drifting and not listening. This is endlessly exhausting.
ALT Photo of a bald white male wearing red and green glasses and a white n95 respirator with a dark blue hoodie
💛Lady w/ LongCovid💛 retweeted
This man had #LongCovid from an infection in 2022. He was reinfected in 2024 and it made things worse.
This was his last tweet.
He’s now dead.
Because #LongCovid kills.
And there will be many more.
💛Lady w/ LongCovid💛 retweeted
Absolutely heartbreaking to hear this morning that my mate Gavin @Gavtaraysin has gained his wings 🪽🥲
G was such a lovely person who always showed me support and kindness. I will miss my our chats, banter.
May he now rest in eternal peace ❤️
💛Lady w/ LongCovid💛 retweeted
Sadly, another person with LongCOVID has passed away. I didn’t know Broden well but he was a really nice, kind person and I came across this post from August, which is absolutely tragic because he was really struggling.
My condolences and best wishes to those closest to him.
ALT Broden @Gavtaraysin Fighting for social justice and fairness for all. My interests are; #disability, and have been fighting #LongCovid since Dec '22. Broden 十 @Gavta... • 8/30/26 It takes a lot of self control not to be angry with the person who gave me covid, which turned to long covid. At the time I was skeptical of covid. But living as a semi recluse I thought I shouldn't gamble with my health so started take precautions. But I didn't calculate on my family being the biggest threat to my health.
💛Lady w/ LongCovid💛 retweeted
A fellow Long Covid friend, is gone.
Forever missed.
His last post was about 5 weeks ago, calling for paramedics and asking us to wish him luck
Now he’s gone.
I’m so sick of watching this disease destroy people while nothing real is being done.
Year 7. People are still dying. People are still disappearing. And the world acts as if nothing is happening.
RIP friend. You deserved better than this.
Absolutely heartbreaking to hear this morning that my mate Gavin @Gavtaraysin has gained his wings 🪽🥲
G was such a lovely person who always showed me support and kindness. I will miss my our chats, banter.
May he now rest in eternal peace ❤️
💛Lady w/ LongCovid💛 retweeted
Our Long Covid advocacy groups are too busy having in-person workshops with poorly kids & no mitigations during a COVID wave to talk about prevention. I’m sure they told them to lie down afterwards to prevent PEM though 🫠😵💫
💛Lady w/ LongCovid💛 retweeted
He Died of #LongCovid his banner says LongCovid his bio says LongCovid..
#RIP
🖤Gavin @Gavtaraysin🇬🇧 † 18.September 2026🖤
Schon wieder ein Abschied für immer von einem Freund💔
Gavin's letztes Lebenszeichen auf X war seine Ankündigung, dass er den Notruf wählen musste🚨
Leider kam er nie mehr zurück nach Hause
#MEKills☠️
xitter.cf/Gavtaraysin/status/210…
I got sick w #COVID Feb 2020 & stayed sick, 2021 my neurologist said certain that I had MS on top of #LongCovid--
Turns out it wasn't MS..
It's still LC..
We need biomarkers so people can get properly diagnosed & real treatments can be proved to help people w/ specific diseases.
💛Lady w/ LongCovid💛 retweeted
Dear Friends, there is no “may be” here.
Covid also fuses our neurons.
And the processes that we hear are only occurring in those mysterious LongCovid bodies are happening in everyone after enough Covid infections. Good luck & Godspeed. sciencealert.com/brain-scans…
💛Lady w/ LongCovid💛 retweeted
So it’s back in the house again (not me … yet). Doesn’t get clearer than that. Lit up in seconds. Positive on first day of symptoms for family member - constant sneezing, streaming runny nose & muscle aches.
Let’s hope my personal precautions hold 😷
E Midlands, UK
💛Lady w/ LongCovid💛 retweeted
Tomorrow, I aim to establish an initial world record for N95s worn during a 5K.
4 will be for my respiratory protection (1 at a time). The cape is made of 104 (39 + 26 + 39).
Here's a sneak peek of the cape layers.
ALT n95 cape layers
💛Lady w/ LongCovid💛 retweeted
“If Covid was causing immunodeficiency, there would be signs.”
Deadly, brain-liquifying fungus is on the rise in the US - and scientists don't know why trib.al/kZKKhCK
💛Lady w/ LongCovid💛 retweeted
I couldn’t read a book for over two years after I got Long Covid. Anyone else?
