The MS Register is a ground-breaking study designed to increase our understanding of living with MS in the UK. Let's make sense of MS.
Swansea University
Joined June 2011
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We are currently taking a break from X, but you can find us on lots of other platforms!
We would love to connect with you on LinkedIn, Threads, YouTube, Instagram and Facebook 👋🫂
You can also sign up to our mailing list by contacting: [email protected] 📩
UKMSRegister retweeted
Great to see Rod from @UKMSRegister on this!
futuremedicine.com/doi/epdf/…
UKMSRegister retweeted
The UK Multiple Sclerosis (MS) Register helps research into this condition by gathering data to answer fundamental questions and giving researchers safe access to this information.
Find out more - popdatasci.swan.ac.uk/centre…
@SwanseaMedicine @SwanseaUni @UKMSRegister
@mssocietyuk
UKMSRegister retweeted
It's nearly the end of Brain Awareness week! 🧠
Are you aware of Multiple Sclerosis (MS) and did you know about UK MS Register?
The MS Register is a ground breaking study designed to increase our understanding of living with MS in the UK.
Find out more: bhtresearchandinnovation.org…
UKMSRegister retweeted
📽️Watch MS Register analyst, Sarah Knowles discuss the findings and impact of her new paper on late onset MS, published in Annals of Neurology👉youtu.be/UwEfhkI2AAc?si=dCk9…
#Lovedataweek @UKMSRegister @SwanseaUni @SwanseaMedicine @mssocietyuk @mscymru
UKMSRegister retweeted
✍️@UKMSRegister blog - Late Onset MS
Newly published research by Sarah Knowles found that MS looks different when it develops in the later stages of life.
Read more about the findings of this study here👉popdatasci.swan.ac.uk/uk-ms-…
@mssocietyuk #msresearch #lateonsetMS
UKMSRegister retweeted
The @UKMSRegister is definitely a useful tool if you have MS.
This Post is from an account that no longer exists. Learn more
UKMSRegister retweeted
Thank you very much to the @UKMSRegister Team for the Christmas card and chocolates. We hope all of the team have a lovely Christmas and New year, and we look forward to continuing to work with you throughout 2024.
UKMSRegister retweeted
🎉@UKMSRegister Highlight from the Year!🎉
The Register facilitates recruitment for the 'Octopus' trial,revolutionising progressive MS testing - this is a pivotal moment in global #MS research and could
speed up life-changing results.
mssociety.org.uk/research/ex…
#PDShighlights2023
UKMSRegister retweeted
A lot of questions that require answers but how to #prioritise & rank your #MS #registry questions🤯
💡Everyone wants to ask ALL questions but it's important to assess questions in the core data set
➡️ Are they
🔴 impossible to answer
🟢 easy to answer
🟡 complex, but possible
UKMSRegister retweeted
📢Insights from the latest publication using data from the @UKMSRegister.
Comparing the pathology, clinical and demographic characteristics of younger and older‐onset #MS👉onlinelibrary.wiley.com/doi/… @UKMSRegister @mssocietyuk @SwanseaUni
UKMSRegister retweeted
MSDA @msdataalliance and EMSP now leading on a lively workshop with MS societies from Western Europe on setting up #MS #registries to ensure updated and relevant #data is available for improved care and advocacy and informed #decisionmaking.
#DataSavesLives #MultipleSclerosis
UKMSRegister retweeted
🎉We're @QAPrizes winners!
🏆For our groundbreaking work with the @SAILDatabank!
🌍From vital COVID-19 research to global initiatives, SAIL's achievements offer crucial insights for informed decisions & positive societal outcomes bit.ly/47e782f @SwanseaUni
Fantastic news! Population Data Science at Swansea University awarded Queen’s Anniversary Prize for world leading databank 🏆
@PopDataSci_SU @SAILDatabank @SwanseaUni popdatasci.swan.ac.uk/popula…
UKMSRegister retweeted
✨Spotlight on Population Data Science Summer Interns✨
To delve deeper into the interns’ motivations, acquired skills, and overall program experiences, we took a moment to catch up with each of them 👉popdatasci.swan.ac.uk/spotli…
@SwanseaUni @SwanseaMedicine @SAILDatabank
UKMSRegister retweeted
Great to see the fantastic work from the @UKMSRegister @mssocietyuk @SwanseaUni at the @ADRUK2023 @adr_uk 🎉
UKMSRegister retweeted
🌟 Spotlight on Excellence 🌟
📽️Unveiling insights from the Summer Intern Showcase Award Winners!
Meet Deepak Pant, the winner of the Technical and Development! 🏆
@g5maniac @SAILDatabank @SwanseaUni @UKMSRegister
youtu.be/OfDpAmdWOcE?si=WtJR…
Well done to our intern Deepak who is featured here discussing his internship 👏
It was great having Deepak working with us over the summer months. Before he finished he was able to share his work at the showcase event 👇
This year's summer intern showcase event saw our interns successfully present their summer projects to an audience of academics, government policy advisors, and members of the public.
Read more👉popdatasci.swan.ac.uk/intern…
📽️Watch the video👇
youtube.com/watch?v=heZrfTzO…
@SwanseaUni
UKMSRegister retweeted
This year's summer intern showcase event saw our interns successfully present their summer projects to an audience of academics, government policy advisors, and members of the public.
Read more👉popdatasci.swan.ac.uk/intern…
📽️Watch the video👇
youtube.com/watch?v=heZrfTzO…
@SwanseaUni
New video podcast from @shiftms focusing on #MultipleSclerosis and women's health, including:
☑️Medical gaslighting
☑️Awkward conversations with HCPs
☑️A lack of research on women with #MS
☑️Changing HCPs
This is the 1st episode in a 6 part series ⏯️youtube.com/watch?v=skfc8gPs…