To support sickle cell awareness, education, state-of-the-art treatment and research, and to bring hope to families affected by this devastating disease
Baltimore, MD
Joined June 2012
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In Memoriam: A statesman and a gentleman. May you rest in peace, Mr. President. #PresidentJimmyCarter
Sickle Cell Fund retweeted
SCDAA’s Medical and Research Advisory Committee (MARAC) has issued a statement regarding Pfizer’s withdrawal of voxelotor (Oxbryta®) from national and global markets on September 25, 2024. Read the MARAC statement here sicklecelldisease.org/2024/0…
Sickle Cell Fund retweeted
pfizer.com/news/press-releas…. Attention #SickleCell we need to be careful and WEAN people off Oxbryta and not just stop it. Let us know if we can help! We will have new meds-So do not lose hope or give up.
Sickle Cell Fund retweeted
Hi everyone!! It is sickle cell awareness month and we need action and improvements. The National Alliance of Sickle Cell Centers now has >100 recognized #sicklecell center delivering multi-disciplinary care. Check us out! #SickleCellAwarenessMonth
Www.sicklecellcenters.org
Last week was amazing! Big thanks to the @promoandarts for lighting the Bromo Seltzer Arts Tower in RED for #ShinetheLightonSickleCell2024! #WSCD2024
Sickle Cell Fund retweeted
Yesterday, our team of Editors united in support of our blood drive, hosted in recognition of #WorldSickleCellDay. Together, we collected more than 40 pints of blood.
Thank you to all who donated, organized the drive, and extended their support.
#ShinetheLightonSickleCell
Sickle Cell Fund retweeted
ICYMI:
In observance of #WorldSickleCellDay, CGTLive brought together a variety of expert insights on navigating the rapidly expanding landscape of care for this inherited blood disorder.
#SickleCell #ShinetheLightonSickleCell2024 @WEPSCF
More:
cgtlive.com/view/choosing-ri…
Sickle Cell Fund retweeted
Shine the Light on Sickle Cell is an opportunity for people around the country and around the world to stand up and speak out for a universal cure. Learn more about how you can get involved: wepsicklecell.org/sinerge/sh… @WEPSCF