Patient-led non-profit with a goal of advancing standards of care for primary aldosteronism. Committed to fostering actionable research/inclusive collaboration.
Joined January 2022
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Why does primary aldosteronism remain so underdiagnosed?
New research identifies important barriers to PA screening and diagnosis -- and opportunities to improve care.
Read PAF’s press release:
einnews.com/pr_news/94035720…
An eye-opener as to burden of disease and the lived experiences of millions of patients with #PrimaryAldosteronism
Thrilled to share my memoir Misdiagnosed for Miles! It’s my journey as a competitive runner overcoming health challenges, including #PrimaryAldosteronism. Huge thanks to @WeArePAOrg for supporting this mission to raise awareness. Pre-order here: a.co/d/ffpepKE #Running
PrimaryAldosteronismOrg retweeted
Thrilled to share my memoir Misdiagnosed for Miles! It’s my journey as a competitive runner overcoming health challenges, including #PrimaryAldosteronism. Huge thanks to @WeArePAOrg for supporting this mission to raise awareness. Pre-order here: a.co/d/ffpepKE #Running
A big thank you to the signers of our Open Letter! Let’s add more signatures and forward the letter wherever we can. Millions of patients with primary aldosteronism need diagnosis and treatment: tinyurl.com/ycyrp6pa
A big thank you to the signers of our Open Letter! Let’s add more signatures and forward the letter wherever we can. Millions of patients worldwide need diagnosis and treatment: tinyurl.com/ycyrp6pa
We’ve earned a Gold Seal from @CandidDotOrg, the world's largest source of nonprofit information. This award reflects our commitment to accountability and impact. On behalf of patients with #primaryaldosteronism, thank you for supporting us! tinyurl.com/4xvxw77b
We have been awarded “2024 top-rated” by #greatnonprofits. Thank you to those who support us, and make advancing standards of care a reality for patients with #primaryaldosteronism. Read our reviews and add your own: tinyurl.com/mv8e58tp
We’re thrilled to announce an initiative aiming to advance standards of care for primary #aldosteronism, a highly prevalent adrenal disease and common cause of #hypertension, in collaboration with over 30 founding members. Read more: prnewswire.com/news-releases…
On #ClinicalTrialsDay, thank you to the patients, doctors, researchers & coordinators working to help those suffering with #PA. The work to advance the development of new drugs & understanding this overlooked disease will change millions of lives. #CTD2022 bit.ly/3vXVmYl
#WorldHypertensionDay: release of international consensus on dietary sodium: rdcu.be/cNIMn. Patients with #primaryaldosteronism cannot eliminate #sodium. They develop #hypertension, and are at high risk for #CVD and #kidney disease. See: bit.ly/3vXVmYl
Today is #WorldHypertensionDay. Primary #aldosteronism, is a common treatable & potentially curable form of #hypertension. Once considered rare, #PA is gaining attention in the medical community. If you have uncontrolled #HTN you may have PA. See here: bit.ly/3vXVmYl
According to the @NIH, #HBP is the 2nd leading cause of #kidney failure in the U.S. Primary #aldosteronism causes #hypertension and damages #kidneys. During #HighBloodPressureEducationMonth, know if you’re at risk & understand the symptoms here: bit.ly/3Hk60fw
According to @American_Heart guidelines, ~half of U.S. adults have #highbloodpressure & most are uncontrolled. If you have uncontrolled #hypertension & take 3+ #BP meds, get tested for primary #aldosteronism. #HBPEducationMonth Who should be tested for PA: bit.ly/350Qus3
Excess #aldosterone causes #heart and #kidneydisease, and systemic inflammation. Diagnostic and treatment are important! Learn more here: bit.ly/3Hk60fw
Primary aldosteronism is the most common specifically treatable and potentially curable causes of hypertension, but can be missed because it has traditionally been considered rare.
How can clinicians diagnose and manage this condition?
bmj.com/content/377/bmj-2021…
We are so encouraged to see #primaryaldosteronism being discussed more broadly. Thank you to this fantastic team for bringing this important diagnosis, that affects so many patients, out of the shadows.
"Primary aldosteronism is missed because it has traditionally been considered rare and screening is not generally recommended in patients without hypokalaemia or resistant hypertension."
How can clinicians diagnose and manage this condition?
bmj.com/content/377/bmj-2021…
Today, we thank the doctors who diagnose and treat patients with primary #aldosteronism. Thank you for saving our lives! #NationalDoctorsDay
#Aldosterone causes systemic #inflammation and may be elevated in women with #endometriosis. Do you have uncontrolled #hypertension and endometriosis? Get tested for PA bit.ly/3LZVuO2 #NationalEndometriosisAwarenessMonth
People with primary #aldosteronism often have #sleepapnea. Do you have uncontrolled #hypertension and morning #headaches, snoring or gasping for air at night? Get tested for PA. bit.ly/3t2apil #NationalSleepAwarenessWeek
Primary #aldosteronism damages the #kidneys. Do you have uncontrolled #hypertension and frequent urination? Get tested for PA and avoid developing #chronickidneydisease. Find out more here: bit.ly/3Hk60fw #WorldKidneyDay
Primary #aldosteronism causes chronic kidney disease. During #NationalKidneyMonth, get tested for PA. It may affect up to 50% of #hypertensives. Its treatment prevents #kidney damage. Find out more here: bit.ly/3vbQbFl
