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Replying to @K_BCCA
The “SYMPTOMS ARRANGED BY PARTS OF THE BODY OR SYSTEMS“ infographic from the ‘Resources for families‘ page of Child Cancer Smart:
cclg.org.uk/childcancersmart…
CCLG say:
“This list should be used in combination with our SYMPTOMS BY CANCER TYPE infographic.”
💜🎗️
The third, & latest, key guidance from Child Cancer Smart (CCLG) provides healthcare professionals with referral guidelines and decision support tools to speed up diagnosis for children & young people presenting with potential soft tissue sarcoma symptoms.
cclg.org.uk/childcancersmart…
Vinnie Kent, September Beads of Courage UK Superstar:
beadsofcourageuk.org/blog/ne…
❤️ 🎗️
BeChildCancerAware 🎗️ retweeted
Marking World Blood Cancer Day (28 May), Sarah Kent is sharing her son Vinnie’s story to highlight the constant need for blood donations and the vital role donors play in saving lives🩸❤️
📰 wbs.wales/VinniesStory
1of2:
The Child Cancer Smart campaign was launched by CCLG in partnership with the University of Nottingham, in August 2025.
It urges parents to trust their instincts if they feel something is wrong with their child's health!
👇👇👇
cclg.org.uk/news-updates/cou…
Aged just 4, Vinnie was diagnosed with acute lymphoblastic leukaemia (ALL) in 2023.
Vinnie & his mum, Sarah, are sharing their story to raise awareness about the common signs & symptoms of leukaemia - & to encourage parents to keep pushing for answers.
fb.watch/KGgDI-TCzq/
BeChildCancerAware 🎗️ retweeted
4/ We’re asking the Government to deliver Hugh’s Law in this Parliament and publish a clear timetable.
Parents will be there anyway. The question is whether the country stands beside them.
Please share and ask your MP to support #HughsLaw.
BeChildCancerAware 🎗️ retweeted
3/ @ChildrensComm for England:
“Families facing serious childhood illness should never have to make the impossible decision between caring for their child and trying to hold down a job during this immensely challenging time.”
BeChildCancerAware 🎗️ retweeted
2/ This call brings together children’s charities, medical bodies, businesses, unions and parliamentarians.
Supporters include RCPCH, @GOSHCharity @YLvsCancer , @ncbtweets and @GMBLondonRegion .
BeChildCancerAware 🎗️ retweeted
🚨 𝗕𝗥𝗘𝗔𝗞𝗜𝗡𝗚 𝗡𝗘𝗪𝗦 💥: Charities, medical bodies, businesses, unions, MPs, peers and over 18,000 parents unite to ask @andyburnham to deliver #HughsLaw this Parliament.
Frances and I take that call to @10DowningStreet today.
No parent should have to choose between their child’s bedside and their job.
6of6:
I believe there are now 6 Sophie’s Legacy approved hosps.
4 in North:
Alder Hey, Liverpool
2 in County Durham - Darlington Memorial & UHND, North Durham
& King’s Mill, Sutton-in-Ashfield
And 2 in South:
Lister, Stevenage
& Southend Hosp., Essex
Who will be No. 7!!?
❤️ 🎗️
5of6:
Today Sophie's Legacy charity have three strict conditions to achieve their “APPROVED HOSPITAL” status, one of which is that the hospital must provide 3 meals a day, free of charge, for parents or carers staying overnight with their child.
4of6:
“Before the charity's intervention resident parents frequently skipped meals, went hungry, or faced massive financial strain due to high hospital prices
Also many parents felt trapped because they were unwilling to leave their critically ill child's bedside to go find food”
3of6:
“Before the campaigning of Sophie's Legacy standard NHS hospital guidelines explicitly advised parents to bring their own food or purchase it from on-site commercial retail outlets, cafes, or vending machines.”
sophieslegacy.org.uk/the-leg…
2of6:
For as long as I can remember, in children’s hospitals in the UK feeding parents who stay with their seriously ill child inpatient - often for days, weeks (or even months!) on end - has been almost nonexistent!
I think it is important to do so!
1of6:
If you were stuck in hospital 24/7 with your young son or daughter who was being treated for a life threatening illness, would you both expect to be fed!!?
wellchild.org.uk/get-support…
@WellChild
1of2:
A recent posting on LinkedIn:
(Thank you Fiona!!)
❤️ 🎗️
“Free Association of British Paediatric Nurses webinar - open to all
‘ARE YOU CHILD CANCER SMART?’
Date and time: 14th January 2027, 16.00-17.00 (UK time)”
eventbrite.co.uk/e/are-you-c…




















