Working with the CF community to find out if we can reduce long term nebulised treatments once people with cystic fibrosis are established on triple therapy.
United Kingdom
Joined April 2022
- Tweets67
- Following61
- Followers236
- Likes20
CF STORM retweeted
✨ Welcome to CF Week 2023! ✨
Join us as we come together, raise awareness of #cysticfibrosis and unite for a life unlimited.
Head to our website to find out how you can unite with us this CF week. 💛
➡️ ow.ly/GnjR50OKAOB
CF STORM retweeted
Now available on YouTube: the 2022 North American Cystic Fibrosis Conference! Get caught up on the action and watch the recordings from plenaries, symposia, workshops, many discipline groups, and lunch and learns. #NACFC on.cff.org/NACFC2022
CF STORM retweeted
Combined approaches of SIMPLIFY and our UK @cfstormstudy (12 month follow up) key to understanding both short & long term impact of stopping nebulised mucoactive therapies in an era of CFTR modulators. Building an evidence base to support decision making #cysticfibrosis
CF STORM retweeted
Join Prof Kevin Southern and Dr Gwyneth Davies to discuss #cysticfibrosis and ways they are investigating reducing treatment burden in the @cfstormstudy
🗓 Thu, 14 July 2022, 10 AM
➡️ bit.ly/live-cfstorm
See you there! 👋
CF STORM retweeted
A helpful overview, given by Dr Gwyneth Davies, of the common features & differences between the SIMPLIFY and @cfstormstudy studies. #ECFS2002.
CF STORM retweeted
Happy #ICTD2022!
Thanks to public & patient contributors, amazing Chief Investigators & dedicated site teams who make trials possible
LCTC is proud to be part of @UKCTUNetwork
#clinicaltrialsday
@UKTMN
@LivHPartners
@MRCNIHRTMRP
@NIHRResearch
@NIHRTakePart
@ECMC_UK
@LivUni
CF STORM retweeted
Great sharing perspectives on rapidly changing therapeutic landscape in CF at #ATS2022. A multi-pronged approach to generating the evidence base is needed to support decision making. Highlighted contribution being made by UK @cfstormstudy. Thanks @LindsayJCaverly @JenTaylorCousar