ALT Eric Hartman, CRF Director of Advocacy, poses for a photo before a session at the 2026 NORD Rare Diseases and Orphan Products Breakthrough Summit.

ALT Panelists take part in a discussion on stage at the 2026 NORD Rare Diseases and Orphan Products Breakthrough Summit, with NIH represented during the conversation.

ALT A woman speaks into a microphone behind a podium at the National Organization for Rare Disorders (NORD) Rare Diseases and Orphan Products Breakthrough Summit in 2026.

ALT Alexander Hardy, MBA, President and CEO of BioMarin, poses with Eric Hartman, CRF Director of Advocacy, at the 2026 NORD Rare Diseases and Orphan Products Breakthrough Summit.

ALT Graphic promoting the NYC CHM Patient & Family Meeting with the tagline “Connect. Learn. Build Community.” The free event takes place Saturday, November 14, 2026, from 8 a.m. to 5 p.m. ET at SUNY College of Optometry, 33 W 42nd St, New York, NY, near Grand Central Station. The meeting will feature research updates, clinical information, local resources, and opportunities to connect with the choroideremia community. Participating organizations include SUNY College of Optometry, Foundation Fighting Blindness – NY Chapter, VISIONS / Selis Manor, New York Public Library, Helen Keller Services for the Blind, New York State Commission for the Blind, and Disability Rights New York. The graphic features the New York City skyline, organization logos, and the Choroideremia Research Foundation logo, with a call to register.

ALT Graphic for 2026 World Sight Day featuring the text “Raising awareness for vision loss. Supporting research for a brighter future.” A low-opacity globe appears in the background, with an eye graphic in the foreground featuring the world as its pupil.

ALT Graphic for Blindness Awareness Month featuring text that reads, “October is Blindness Awareness Month” and "A time to raise awareness, promote accessibility and inclusion, and support a brighter future for those living with blindness and low vision."

ALT Seven adults stand together indoors at the VISIONS 40th annual charity event. They are smiling toward the camera in front of large windows overlooking the Fairview Country Club golf course. Standing from left to right; Todd Hudson, Yelena Sionova, Kate Parkin, JR Rizzo, Mahya Beheshti, and two men side by side.

ALT JR Rizzo and Molly Eagan stand together indoors near a large window overlooking a golf course. Together, they hold the award Dr. Rizzo was presented with during the charity event. JR Rizzo is wearing a dark grey suit jacket and light grey pants, Molly Eagan is in a dark green dress stands beside him, and both are smiling toward the camera.

ALT Graphic for the NYC Choroideremia Patient & Family Meeting featuring the New York City skyline. Text announces the free meeting on November 14, 2026, at SUNY College of Optometry in New York City, with information about connecting with individuals and families affected by CHM, learning about current research and clinical developments, and discovering local resources and support services. Registration is required.

ALT Non-viral mRNA-based gene therapy for Choroideremia graphical abstract

ALT Graphic announcing a new publication by CRF Founding Board Member Jason McKinney, MBA, titled “The Therapeutic Mechanism-Trajectories Principle (TMTP): A Framework for Informational Architecture in Chronic Disease Self-Management.” The graphic highlights the importance of disease-specific mechanisms, potential outcomes over time, and informed self-management, and invites readers to read the full publication.