Cade was diagnosed with hereditary spastic paraplegia. Without treatment he will lose motor and cognitive control. Follow his story as we work to defy all odds!
Juneau, AK
Joined April 2024
- Tweets9
- Following23
- Followers7
- Likes3
Maybe @elonmusk would help fund the clinical trials for pediatric gene therapy? It is groundbreaking research that will save countless lives! The treatment we need is currently sitting in a refrigerator but we can’t get access to it without the clinical trials. #curespg50
Even though Cade can’t walk he still tries to tumble with the girls. They are so supportive in everything he learns. What little boy gets to say he has 25 big sisters who love him so much?! #gymnastics #curespg50 #raredisease #supportsystem
We go walking at the @Mendenhallmall almost every day! Cade needs to continue to be able to walk with his walker to be qualified for clinical trials of gene therapy, so we work on his walking every day! #CureSPG50 #raredisease #cureforcade
At 3 years old, Cade doesn’t speak much but his communication gets better all the time. Watch him recognize and sign crackers and water. #ASL #raredisease #curespg50
At age 3, Cade uses a posterior walker to move around. We are hopeful that life saving gene therapy is the answer to stopping the progression of his disease and maintaining his ability to move around and play!
