A nonprofit established in 1993 Working toward a cure for cyclic vomiting syndrome. Learn more on our website: https://xitter.cf/t.co/2JhXeWJkbO
Milwaukee, WI
Joined February 2015
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Imagine the difference it makes when someone believes you instead of questioning your experience.
Being believed, recognized, and understood can change everything.
Listen to the "Episodes" Podcast for more on this inspiring conversation here: cvsaonline.org/stories/cvsa-…
Interested in lending your artistic vision to benefit CVS awareness?
Submit a design to be voted on by the CVSA community for the 2027 CVSA CVS Awareness Tee!
See more on the opportunity or submit your design here: docs.google.com/forms/d/e/1F…
Earlier recognition can open the door to better care. @migraineschool is helping schools identify students who may need further evaluation for migraine.
What would earlier recognition have meant for you?
Check out "Episodes" here:
cvsaonline.org/stories/cvsa-…
Schools are starting to adopt fragrance-free policies.
Have smells or odors triggered your symptoms? What accommodations do you wish schools offered?
Hear more with Sarah Arndt of @migraineschool on the "Episodes" podcast: cvsaonline.org/stories/cvsa-…
Wanna help a young CVS patient become a superhero?
Let's put the weight of a community behind this young man living with CVS. #CVSAwareness #CommunityStrength #CVSPatient
thefacts.com/news/west-colum…
Voting link:
tinyurl.com/4k869xz2 #CVSAwareness
We talk about Access, Accommodations, Advocacy on our latest addition to our "Episodes" podcast. CVSA & Sarah Arndt of Migraine at School share tools to help students with CVS, migraine & chronic conditions thrive. What do you wish every school understood?
cvsaonline.org/stories/cvsa-…
“Migraine of the stomach” is a phrase sometimes used to help explain the connection between migraine and conditions like CVS.
But CVS and abdominal migraine are two distinct conditions. They can occur individually, or they can occur together.
Hear more: cvsaonline.org/stories/cvsa-…
CVSA U.S.A. retweeted
Did you know? Many experts consider cyclic vomiting syndrome to be known as "migraine of the stomach."
CVS causes recurring episodes of severe nausea and vomiting that can last hours to days, often with symptom-free periods in between. It shares many features with #migraine, including triggers, family history patterns, and some of the same treatments.
Learn more about the relationship between cyclic vomiting syndrome and migraine through our comorbidity article, in partnership with the @cvsaonline.
🔗 facebook.com/CyclicVomitingS…
“We were told our child didn’t need an education.”
How is that acceptable?
CVS can disrupt education at any age. But illness should never mean giving up the opportunity to learn.
We're talking about it and more on the "Episodes" podcast: cvsaonline.org/stories/cvsa-…
Getting prompt access to medication at school shouldn’t have to be a battle.
On the "Episodes" podcast, we revisited our challenges getting access to CVS medication when it was needed during the school day.
Listen to "Episodes" and share your experience: cvsaonline.org/stories/cvsa-…
One thing we learned the hard way, document everything: meetings, conversations, decisions, and accommodations. Records help when advocating for a child with CVS. If something doesn't work? Try again.
Hear more on the CVSA podcast: cvsaonline.org/stories/cvsa-…
On the "Episodes" podcast we sat down with @MigraineDisordr (AMD) to talk stigma, and the resources changing how people understand migraine and CVS.
Because no one should have to "power through" to be believed.
Check out "Episodes" here: youtube.com/playlist?list=PL…
Sometimes helping a child succeed at school means changing how they get there. For students with CVS, accommodations can remove barriers while letting them learn and show what they know.
Check out Episode 10 of the CVSA podcast: cvsaonline.org/stories/cvsa-…
Sometimes, asking a simple question can reveal there may be more going on.
On "Episodes", in a conversation with @MigraineDisordr (AMD), we share how a simple question helped reveal migraine and abdominal migraine alongside CVS.
Listening Matters: youtube.com/playlist?list=PL…
CVS and abdominal migraine are often used interchangeably, but they're still different conditions.
In the latest episodes of our podcast, with Kylie Gagan from @MigraineDisordr (AMD), we discuss why recognition, awareness, and clearer distinction matter.
cvsaonline.org/stories/cvsa-…
CVS and migraine have an important connection. On the CVSA podcast, Kylie Gagan from the @MigraineDisordr (AMD) joins us to talk about why we are working together and more, with a CVS update coming to their comorbidity library.
Watch or listen: cvsaonline.org/stories/cvsa-…
CVSA U.S.A. retweeted
2% of both children and adults experience #cyclicvomitingsyndrome. That's millions of people dealing with recurring episodes of severe nausea, vomiting, and abdominal pain, often misdiagnosed or dismissed. If this sounds familiar, you're not alone.
Learn about cyclic vomiting syndrome, its connection to #migraine disease, and available treatment options in our comorbidity article, created in partnership with the @cvsaonline.
🔗 migrainedisorders.org/cyclic…
What school accommodations have made a difference for your child with CVS?
On the "Episodes" podcast we share accommodations that helped make school more manageable while supporting learning.
Accommodations remove barriers. They don't lower expectations.
youtube.com/playlist?list=PL…
“They’re absent again.”
For students with CVS, absences can be unpredictable and unavoidable. The right accommodations and wording can make a difference.
Hear our experience on the latest Episodes or explore CVSA’s school resources.
youtube.com/playlist?list=PL…
School was tough, but doing nothing wasn't the answer. Getting an education with CVS meant keeping balance. On "Episodes", we discuss education hurdles, fatigue, goals and moving forward without overdoing it.
Watch or listen to the full podcast here: youtube.com/playlist?list=PL…