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Sofia's Helping Hand

@hand_sofia

This is a charity organization that was started by Sofia a 13 year old girl. When hearing her diagnoses of an incurable disorder called #EDS #POTS #MCAS

sofiashelpinghand.wixsite.com/1charity
Joined October 2020
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My Marfan Foundation Speech at the Marfan Walk for Victory. Joining forces for connective tissue disorders. #SofiasHelpingHand #childcharity #ehlersdanlossyndrome #EDS #determination #scoliosis #syringomyelia #POTS #MCAS #Marfan #MarfanWalkforVictory2022
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I am Sofia from Sofia's Helping Hand, and I am honored to be The Marfan Foundation 2022 South Florida Teen Ambassador Chair. Please help me support The Marfan Foundation by making a donation through my page. give.marfan.org/fundraiser/3… #EDS #POTS #MCAS #Marfan #MarfanWalkforVictory
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See this Instagram photo by @sofiashelpinghand instagram.com/p/CTnVeA_lm6y/…
Image from Sofia's Helping Hand (@hand_sofia)
My ferret and I are ready for the @MarfanFdn walk on Sunday. We can not wait to participate in person next year. THERE IS STILL TIME LEFT TO DONATE! Help us get answers through research and support. give.marfan.org/sofia #SofiasHelpingHand #mafan #ehlersdanlossyndrome
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We are approaching $1000 raises for the @MarfanFdn ONLY 3 MORE DAYS TO RAISE MONEY OR JOIN OUR TEAM! Help us raise funds for the Marfan Foundation. give.marfan.org/SofiasHelpin… give.marfan.org/sofia #SofiasHelpingHand #ehlersdanlossyndrome #zebrastrong #determination #marfan
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Zebra pile up!!!! A bunch more zebras going out today for kids with Ehlers Danlos Syndrome:) #pleaseaskmeaboutmyinvisibleillness #SofiasHelpingHand #childcharity #ehlersdanlossyndrome #EDS #zebras #zebrastrong #determination #scoliosis #MCAS #POTS #syringomyelia
Image from Sofia's Helping Hand (@hand_sofia)
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#pleaseaskmeaboutmyinvisibleillness #SofiasHelpingHand #childcharity #ehlersdanlossyndrome #EDS #zebras #zebrastrong #determination #scoliosis #MCAS #POTS #syringomyelia
Image from Sofia's Helping Hand (@hand_sofia)
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When your big toe keeps dislocating and your ankle hurts during hot weather you tape up, put on your ankle brace and rock cute sandals anyway. That is how I roll. #pleaseaskmeaboutmyinvisibleillness #SofiasHelpingHand #ehlersdanlossyndrome #scoliosis #MCAS #POTS #syringomyelia
Image from Sofia's Helping Hand (@hand_sofia)
When you wake up in pain and dislocating and your little brother and sister just want you to feel better. So my sister gives me a massage and my little brother brushes my hair. They are so cute how much they care about me. #SofiasHelpingHand #ehlersdanlossyndrome #MCAS #POTS
Image from Sofia's Helping Hand (@hand_sofia)
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To bring awareness to invisible illnesses so we can all have a better understanding and support for each other I want to start sharing the hashtag #pleaseaskmeaboutmyinvisibleillness Please help me share invisible illness knowledge by using this hash tag.
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