Oops, @Ice_Breakers, need your help: someone who can鈥檛 have aspartame due to #pku accidentally ate some of your mints. Can you tell us how much *aspartame* there is per mint? Thanks!
馃帀 Celebrate PKU News' transformation to @flokhealth and our community's future with a gift to flok in 2023. All gifts will be matched 馃挭 Amplify your impact and uplift our community by supporting flok today! flok.org/takeflight 馃殌
Exciting news this #NewbornScreening Month! In Oct, National PKU News becomes flok, focusing on #PKU + more inherited metabolic disorders. We're going data-driven & staying community-led. Learn more & get updates at flok.org! #raredisease #patientledresearch
Camp was amazing and we cannot wait for next year!
Announcement: In-person Camp will be May 30 - June 2nd, 2024!
Thank you to everyone who made camp possible, especially YOU campers!
#pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok
LAST CHANCE, VIRTUAL CAMP IS TOMORROW! It's not too late to make connections with the people who get you.
Register before 8pm Pacific Time at pkunews.org/camp
#pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok
Emails are out, boxes are shipped, Virtual Camp is THIS SATURDAY!!
On the fence? Act Fast! Register before 8pm Pacific Time at pkunews.org/camp
#pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok
A great team of volunteers spent last weekend packing more than 215 camp kits!
Haven't registered yet? You can still join the fun on 8/12 and it's only $5 at pkunews.org/camp!
#pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok
The Low-Phe Life is an animated series that explores the lighter side of metabolic living! Catch the season 2 PREMIERE on August 12th!
Register today at pkunews.org/camp
#pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #raredisease #flok
Learn a delicious new recipe and enjoy a live Q&A with Chef Brenda Winiarski as well as meal planning for *all* tolerances with Jenn Beazer RDN.
Register today at pkunews.org/camp
#pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok
Join more than 500 members of the metabolic community for VIRTUAL FAMILY CAMP on August 12th!
Register now: pkunews.org/camp
馃審International 馃應 All Ages
#pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #raredisease #flok









