Digital writer, coeliac blogger, pizza eater. 🍅🍷🍕Eating #glutenfree since before it was cool. Opinions my own.
London / Bath / travels
Joined February 2010
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Issi | GF in London retweeted
The Cost of Gluten Free Food on TV 🍞
Fab piece of coverage on @itvnews regional programmes last night featuring @C_Burke5 & @Coeliac_UK 🧡 Not that we didn't already know.. but gluten free food is too expensive!
Definitely take a watch. What do you think? 🤔
Issi | GF in London retweeted
1/ Following the recent inquest into the death of an 80-year-old with coeliac disease and other complex health conditions who was fed gluten in hospital, Coeliac UK is calling for improvements to hospital food guidelines.
Issi | GF in London retweeted
If you ever need cheering up just remember that every July thousands of Kate Bush fans gather around the world to perform Wuthering Heights dressed head to toe like Kate Bush herself
Issi | GF in London retweeted
“Zara believed that a woman should be able to walk home.”
Please, take the time to read every word of this tribute to Zara Aleena by her family. I’m not sure I’ve read anything quite like it before.
Great news. 👏Drugs like this could make such a difference for people with food allergies – not having to worry so much about cross-contamination would ease a lot of stress. If there was an equivalent for people with coeliac disease I would consider taking it.
Peanut allergy sufferer George, 10, tries new drug bbc.in/3yprd6H
This is not acceptable – @foodgov has previously recommended that people with food allergies or coeliac disease don't sign waivers, and that these do not stop the restaurant from being legally responsible.
...having to sign my life away just to get some lunch today 😑 this is illegal isn't it? I'm very grateful but my anxiety hasn't subsided since 😥
@NatashasLegacy @foodallergyuk @FoodAllergyAW @FoodAllergy @AnaphylaxisUK @Coeliac_UK @AllergyEpidemic @Allergyhour @AllergyUK1
Issi | GF in London retweeted
I still can't believe this 😡
How can somebody be admitted to hospital with coeliac disease and then be fed gluten multiple times?
Coeliac disease so often is just not taken seriously
We need to do better to ensure we aren't making things worse for coeliac inpatients 😢
Important to note this after today’s BBC article falsely claiming that vomiting is not usually a symptom.
That poor woman. 😔 Vomiting is a symptom of a coeliac reaction for me too, I’m not sure why they’ve said it’s not in this article…
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Today in coeliac: Wondering if using a phone case made from wheat straw would be a health risk.
(these ones: wavecase.co.uk)
All of these steps are important, but it's most helpful to have as much info as possible before visiting/before sitting down to eat, so that you can make the decision on whether or not you can eat safely (and well!) somewhere.
Here’s a look at eating out pathway we used to guide the structure of our survey. Do these stages of the eating out journey make sense to you? Which do you think are the most important? #allergyhour
If they vaguely promise that they have "loads of gluten free options" but won't be specific.
If I ask about separate fryers etc and they clearly haven't considered cross-contamination.
If they are rude or only willing to state legal disclaimers.
This is important for us to understant better too! If you ring up the restaurant before you go - what is it about what they say that makes you decide NOT to go? #allergyhour