Anna Jansen retweeted
Happy #WorldBrainDay2024
Let’s join forces & champion #BrainHealthandPrevention
Advocate for prevention & healthy behaviours across the lifespan from prenatal, children, young people to later life. Improving lives of patients & carers
@wfneurology @jansen_ac @sameermzuberi
Getting ready for the @EPNSnews @EACD2024 session on Creative Intervention in Paediatric Neurology with Philip Pearl, Christophe Mattys and Angels Garcia Cazorla
Anna Jansen retweeted
Because of #brainawarenessweek2024, we are thrilled to share that the 3rd edition of #BrainMosaic24 is set to take place in Leuven on the 10-11 October 2024. 📅 More info here: vibbio.tech/3TBDXBG See you there? #neurodevelopment #neurodegeneration #computationalanalysis
Anna Jansen retweeted
However, the panelists also recognised that whilst our community is very powerful and proactive in its advocacy, we need to draw the line between which services fall to us and which we should be provided.
At the start of the INSAR meeting in Melbourne Australia today, INSAR’s president Petrus de Vries highlights the need for autism research to become more diverse, equitable ánd global.
Must read 👇
#insar #autismresearch #lmic #mhgap thetransmitter.org/spectrum/…
I’m attending the 12th European Conference on Rare Diseases and Orphan Products to discuss the TAND Toolkit! #ECRD2024 is the largest, patient-led, rare disease policy-shaping event held in Europe. Join the discussion!
#careforrare @TANDconsortium
invt.io/1txb6e1m6e1
To all who live with TSC
@TANDconsortium advocating for TSC at #ICNC2024 last week
#worldtscday #15may #TSmatters @ETSCAssociation @tscalliance @TSCInternation1
Anna Jansen retweeted
European Paediatric Neuroradiology Congress
13-16 Nov 2024 Budapest, Hungary.
Organized by @ESNRad & @ESPRSociety
1 day fetal imaging course
2.5 days of educational sessions on hot topics, as well as opportunities for scientific paper presentations
esnr.org/event-details/6909
🗓️Friday 24 MAY 2024 2-5PM
📍Universiteit Antwerpen
Join us for an informal get together on brain development research with a focus on brain malformations.
Abstracts welcome! Submissions via [email protected]
#exchange #connect #inspire
Anna Jansen retweeted
@WHO_Europe @WHO Intersectoral Global Action Plan on Epilepsy & other Neurological Disorders #IGAP
EPNS vision #childneurology voice heard
epns.info/intersectoral-glob…
@EU_Brain @EANeurology @IlaeWeb @EpiCARE_ERN @ERN_RND @euro_nmd @icnapedia @jansen_ac @ESNRad @OneNeurology_
Anna Jansen retweeted
Excited to share this labour of love, now out in @Brain1878: 'The clinical and genetic spectrum of GPI anchor deficiency disorders'.
🔗 bit.ly/gpi-anchor
Thank you @StephanieEfthy1 @IonSynapse and many, many others for this incredible collaboration!
📅 17 MAY 2024 BSPN Spring Meeting
Join us for an exciting day on the management of developmental and epileptic encephalopathies @UZAnieuws @SWeckhuysen @FiladelfiaGene1 @HannahStamberg1
Program & Registration 👇
bspn.be/bspn/agenda/
Colleague recently had 2 papers accepted in Human Mutation @Hindawi which remain untraceable in @PubMedOnline despite having a DOI.
Publishers need to ensure science is and remains findable and accessible.
nature.com/articles/d41586-0…
Super powerful testimony of @timbuckinx at @EU_Brain ‘Towards a Rare Brain Disease Ecosystem’
Rare Diseases come with an emotional and financial impact and risk for isolation for the individuals living with rare diseases as well as their families
#RareDiseaseAwareness
Connected to those living with or caring for someone with a rare disease
#RareDiseaseDay #shareyourcolours #deeljekleuren #shareforrare #StrongerTogether
On my way to @EU_Brain to raise awareness on rare diseases
#RareDiseaseDay2024 #shareyourcolours #shareforrare #StrongerTogether @EPNSnews
NEW! Our educational review on MCD is now online
Diagnostic work‐up in malformations of cortical development - Rijckmans - Developmental Medicine & Child Neurology - Wiley Online Library
onlinelibrary.wiley.com/doi/…
#brainmalformations #education #review
Anna Jansen retweeted
EPNS Membership- Make a difference! youtu.be/XEIVYH68_0Y
New members welcome! Share with your colleagues!
@EU_Brain
@EANeurology
@ERN_RND
@EpiCARE_ERN
@euro_nmd
@mackeithpress
@senep_es
@rajeshramnair
@EACDtweet
@ERNIthaca
#paediatricneurology #Neurology #childneurology
Anna Jansen retweeted
The RDRUK mTOR Pathway Diseases Node is holding a 1-day symposium, jointly with the MRC Centre for Neurodevelopmental Disorders (NDDs) on 'Tackling challenges in rare NDDs: an integrated perspective’ on 23rd April 2024!
Information and registration ⬇️
eventbrite.co.uk/e/mrc-cndd-…
