Lisa EDS retweeted
Today is PoTS Awareness Day!
Find resources, videos, and information on how this is diagnosed here: ehlers-danlos.org/what-is-ed…
Signpost your GP to the EDS Toolkit and emerging major associations at ehlers-danlos.org/toolkit #PotsAwarenessDay #PoTS
Lisa EDS retweeted
Today is ⭐️#PoTSAwarenessDay⭐️
✨PoTS on a Page - GP Guide✨
If you are a healthcare professional please download this guide which summarises information about #PoTS
For those seeking a diagnosis or attending medical appointments, please take this along to increase knowledge & awareness of PoTS.
PDF link for this information sheet: potsuk.org/wp-content/upload…
#TeamGP #MedTwitter #HCP #MECFS #EDS @HMSACharity @RCPhysicians @theRCN @DrNeenaJha @DrSdeG @GSTTnhs @BMA_GP @rcgp_ni @DrNighatArif
Look who’s now got #EDSZebraRocks helping us raise awareness of Ehlers-Danlos Syndrome and the EDS UK petition petition.parliament.uk/petit…
Lisa EDS retweeted
We were also able to share all of the information and support EDS UK provides to its patients and to health professionals across the four nations.
A well-received session and an amazing opportunity to raise awareness with Welsh rheumatologists!
Lisa EDS retweeted
We were very fortunate today to be able to take part in the Welsh rheumatologists academic meeting where Dr. Kazkaz represented EDS UK in delivering some training to 27 Welsh rheumatologists on recognising the signs of #EhlersDanlossyndrome and #hypermobilityspectrumdisorders.
Lisa EDS retweeted
facebook.com/groups/54661807… Thank you to Bannatyne for helping support us with the EDS UK petition. @EDSawareness1 @Ehlersdanlos @Bannatyne
Lisa EDS retweeted
200 mile walk planned starting mid August called 'P2P on the Bannatyne Trail'. 🚶♀️ I'm linking Bannatyne Health Clubs to get signatures for the EDS UK petition -100,000 signatures needed for a debate. Please share. 😀🦓 @Bannatyne @bbchealth @Ehlersdanlos
Lisa EDS retweeted
The misconception that hEDS and HSD are rare means that the government overlooks this condition. It's wrong and unjust. This petition plays a crucial role in enabling a debate which will challenge current attitudes toward EDS and HSD. @bbchealth @TheEDSociety @Bannatyne
#EnoughIsEnough campaign update!
To date over 15,000 people have come together to join our campaign. Whether that’s through signing our petitions, creating and sharing their personalised social media graphic or writing to their MP. ehlers-danlos.org/enough/
Lisa EDS retweeted
On Saturday it's the NHS 75th birthday celebration. Please wear something blue in support but also how about an additional dash of yellow? The Bradford Ukrainian Club will also be with us as it's the 500th day of the Putin's invasion of Ukraine so come along and give generously
Lisa EDS retweeted
Thankyou to Bradford Parkrun for giving us a couple of minutes at the start to talk about EDS and the petition. We appreciate all your support. ❤️ @parkrun @TheEDSociety
Lisa EDS retweeted
Today there are 13,400 signatures on the petition created by EDS UK. Getting to 100,000 signatures by November seems impossible unless something changes. Please sign and share. It HAS to get better. @TheEDSociety @Ehlersdanlos @LaraBloom
Lisa EDS retweeted
Just 18 days left until my #BHF #L2B ride for @ehlersdanlosUK! With miles under my belt and determination in my heart, there's no hill too high or path too tough. Grateful for the journey, and even more so for the cause. Here's to tenacity, and #EDS awareness! 🚴♂️💪 #RideLondon
Lisa EDS retweeted
Stand with Fran, stride with purpose, and echo her journey of #COURAGE , #determination , and #resilience .
This is more than a walk, it's a #Movement for change!
We are powerful together. We are visible together. Let's unify our stripes 🦓💪 #EDS #ehlersdanlos @HMSACharity
Lisa EDS retweeted
Fran Heley, a tenacious advocate for those affected by #ehlersdanlossyndrome (#EDS), has raised an astounding £4,000 towards her £5,000 goal. She is making an impressive 210 mile walk from Leeds to London to raise awareness for EDS and to aid @ehlersdanlosuk
@TheEDSociety
Lisa EDS retweeted
Pathway to Parliament!
Fran Heley has raised an amazing £860 so far towards her goal of £2000 in aid of EDS UK. Fran is walking from Leeds to London to raise awareness and support others in limbo for diagnosis and care. justgiving.com/fundraising/f…
.@campaignforleo @SimonHarrisTD People living with #EhlersDanlosSyndrome need a consultant now! my.uplift.ie/petitions/appoi… via @UpliftIRL
Lisa EDS retweeted
The amazing Anna Higo💫
This award from EDS U.K. is so well deserved
Thank you EDS U.K. 🙏@higo_anna @GemmaSPearce @ProfSheaPalmer @ehlersdanlosuk @TheEDSociety @hEDStogether m.facebook.com/story.php?sto…
.@campaignforleo @SimonHarrisTD People living with #EhlersDanlosSyndrome need a consultant now! my.uplift.ie/petitions/appoi… via @UpliftIRL
Couldn’t have been prouder to present this award to @higo_anna greatly deserved for all she does to help and support EDS zebras m.facebook.com/story.php?sto…