All tweets discuss low protein foods to help children on low protein diets. All views are my own.
Joined April 2013
- Tweets40.7K
- Following628
- Followers1.9K
- Likes49.2K
Our Sat speakers: Psychological wellbeing, Susan Waisbren; Menopause, Jerzy Gizewski; Comorbidies in PKU, Peter Reismann; Ageing, John Bassatt, Blood Phe Testing, Alex Pinto, New Treatments, Amaya Belanger, Adult Phe targets, Roman Trip and Francjan van Spronsen #ESPKU2026
It was lovely to work with Dr Samreen Safdar from the adult metabolic centre in Manchester at the #ESPKU2026
A great presentation by Dr John Bassatt from Manchester on Aging in PKU: A future PKU. John is doing his PhD on this subject. John is a medics in adult metabolic disorders- he also has PKU and was particularly welcomed by the audience #ESPKU2026
Amazing listening to Jean Marie Criem and Tricia Rutherford being interviewed about the history of the ESPKU which was celebrating its 40th anniversary. John Marie Criem was the founder: a doctor who has 2 children with PKU. The first meeting was at his family home. #ESPKU2026
Wonderful job by Catarina Rodrigues explaining about the gut microbiota and PKU at the #ESPKU2026
Congratulations to Kevin Alexander on receiving the Sheila Jones Award at ESPKU 2026! An incredibly moving and inspirational acceptance speech from a truly exceptional person. Such a well-deserved honour and a wonderful moment of recognition!
One of my favourite photos from the ESPKU 2026 event. 7 Sheila Jones winners on stage. What a moment
One of the hardest working people of the ESPKU2026 conference: Chef Derek. He never stopped for a second and what a great job he did
Anita MacDonald retweeted
📄 We are pleased to share the official programme of the 40th E.S.PKU Conference!
🔗 conference.espku.org/2026/ES…
📩 Participants: Check your inbox for conference details and participation confirmation. No email? Check spam!
#ESPKUConference2026
🤖 Made with AI
Sepiapterin Enables Liberalisation of Natural Protein Intake While Improving Metabolic Control in Adolescents with Phenylketonuria mdpi.com/4136826 #mdpinutrients via @Nutrients_MDPI
Breastfeeding infants with inherited metabolic disorders: review of current strategies and practical recommendations to overcome challenges
pubmed.ncbi.nlm.nih.gov/4287…
Development of a face-validated conceptual model structure for economic evaluation in phenylketonuria, through expert elicitation
pubmed.ncbi.nlm.nih.gov/4221…
The Economic and Humanistic Burden of Phenylketonuria Among Patients and Their Caregivers: A Systematic Literature Review
pubmed.ncbi.nlm.nih.gov/4285…
The Impact of Prescription Barriers to Special Low Protein Foods and Protein Substitutes on PKU Care: Findings from a National Survey of Metabolic Dietitians
pubmed.ncbi.nlm.nih.gov/4279…
