PCD & Children's Respiratory CNS, @NIHRCommunity & @FNightingaleF scholar, Autism Ambassador and Independent Visitor with @theadvocacypeople. Views my own.
Southampton, England
Joined March 2011
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Amanda Harris retweeted
BEAT-PCD has reached the final step in its digital transformation!
Explore our new, simplified website at beat-pcd.org for faster access to resources, research, and community updates.
Amanda Harris retweeted
We are exploring how we can prevent young children from developing asthma. Our NIHR funded asthma prevention trial is now recruiting in Isle of Wight, Southampton, London, Sheffield and Staffordshire. More details at our website papastudy.uk/.
#prevention
Amanda Harris retweeted
We are now recruiting into the CARE-UK study in Southampton. Does a single combination reliever inhaler works better than having two separate asthma inhalers. If your child has asthma and are 6-11 years of age, please visit careukstudy.uk/ to find out more. #asthma
Amanda Harris retweeted
If you’re interested in the work of BEATPCD and at the ERS next week - Please do join our BEATPCD management meeting to hear more about our research
First donation made!
Rosie and I are running the London Marathon.
Following two surgeries, Rosie is a third of her way through chemotherapy for pancreatic cancer.
To read more of our story or to donate, please follow the link 💕
2027tcslondonmarathon.enthus…
This week I received a wonderful scrapbook of well wishes from colleagues I’ve worked with for the last two decades. Today, I’ve added emails, texts, cards and well wishes from patients and families. Thank you PCD & Respiratory, its been a blast 🥰
And on to my next adventure 😁
Amanda Harris retweeted
This #AskAboutAsthma week, make sure your child has an asthma action plan.
You can ask your GP or Nurse to provide you with one, or download free from the @asthmalunguk website!
Amanda Harris retweeted
Chickenpox is common. Usually it is just unpleasant, but it can be severe or life threatening.
A long established vaccine to prevent it will be offered to all children rather than only those who can pay.
Immunity by vaccination is safer than by infection.
We're launching a chickenpox vaccination programme which will protect around half a million children each year.
From January 2026, eligible children will get an MMRV vaccine to protect against measles, mumps, rubella and chickenpox.
Eligibility will be announced in due course.
ALT Graphic that reads "New NHS chickenpox vaccination programme to protect children. From January 2026", featuring a diverse group of adults holding young children.
Amanda Harris retweeted
The agenda for the 2025 PCD patients conference, organized in collaboration with @EuropeanLung, is now accessible on our website. You can also find the link for registration there. The event is set to take place on November 19th.
beat-pcd.squarespace.com/eve…
Amanda Harris retweeted
🗓️ Join us on 14-15 October 2025 at Hope Church for two days of learning and networking.
Plus, join our PAFTAs social at Shoal after day 1 (14th Oct). See you there!
Register now 👉 piernetwork.org/pier2025.htm…
#PIERConference2025 #PIER2025
Amanda Harris retweeted
In recognition of PCD Awareness Month, BEAT-PCD and @PCD_UK will host a webinar on patient collaboration in PCD research. Watch for registration details soon, and mark your planner. More info is available on our website: beat-pcd.squarespace.com/eve…
Amanda Harris retweeted
🚨 NEW: The full list of the 108 Labour MPs who have signed the reasoned amendment to the welfare reform Bill in an attempt to block it completely
It marks one of the biggest rebellions against the Government so far, with the Bill’s first vote due next week
Amanda Harris retweeted
Myeloperoxidase is a green protein contained in neutrophils. So if the sputum is green, patients have a lot of inflammation and are at high risk of exacerbation
Simple and clinically useful!
No… Not thinking of repainting a room. One of the best biomarkers for those of us living with bronchiectasis is sputum color! Very handy to keep this chart in mind… #Bronchiectasis #sputum #Phlegm #Mucus
Amanda Harris retweeted
If you feel down or today seems overwhelming, get outside and reconnect with nature. It helps 🌤️
Amanda Harris retweeted
You may find lay summaries of this and all our publications on the Living with PCD study website in English, French, German, Spanish, and Italian pcd.ispm.ch/en/publications/ – at Berne, Switzerland
We are pleased to announce the publication of a new article exploring the fertility experiences of people with Primary Ciliary Dyskinesia (PCD) and their family caregivers: ‘Nobody Has Ever Spoken to Me About PCD and Fertility Issues’: onlinelibrary.wiley.com/doi/… @ISPMBern @mgoutaki
If you feel you have something constructive to say, please consider participating in this government consultation. Maybe your input will help shape the practical support those with disabilities will receive once the financial support has been removed.
gov.uk/government/consultati…
Amanda Harris retweeted
Misinformation around disability benefits and “free cars” needs addressing urgently. Here are the clear facts: a thread🧵
Blue Badges
•Blue badges DO NOT mean a free car.
•A car displaying a blue badge is not necessarily a Motability car.
continued…
Amanda Harris retweeted
Researchers and healthcare staff at @unisouthampton and @UHSFT were a crucial part of the UK’s pandemic response.
Discover five ways this work has had a lasting impact 📽️👇
Five years on from Covid, here are five ways we made an impact.
From vaccine trials and testing to life-saving equipment, our academics worked with others to play a crucial role in tackling the pandemic.
@SouthamptonBRC @UHSFTresearch @UHSFT