@maxs_foundation

We fund research into inherited cardiac conditions in pre-adolescent children and support those affected by these conditions.

 London, England
linktr.ee/maxsfoundation
Joined March 2016
  • Tweets318
  • Following55
  • Followers329
129Media
This is absolutely amazing and will mean so much to so many ❤️
European Society of Cardiology
@escardio25 Aug 2023
NEW: 2023 #ESCGuidelines for the management of #cardiomyopathies 👉escardio.org/Guidelines/Clin… #ESCCongress
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Check out the @WinFinchleyFC team in their new shirts featuring our logo! We are proud to be partnering with them for the 23/24 season and wish them all the best! #charity #localfootball #cardiomyopathy
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We are delighted to announce a new partnership with @WinFinchleyFC . Football was a massive part of Max’s life and we are honoured to be associated with such an amazing community organisation. Thanks to the club, and all their players & supporters. #charity #fundraising #football
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Amazing piece in @thetimes today about #cureheart project and treatment of #hcm
Ben Spencer@Ben_Spencer19 Feb 2023
Over the last six months I’ve been speaking to the geneticists, chemists and cardiologists at the forefront of an audacious attempt to cure inherited heart disease. My long read is published in the Sunday Times Magazine today and online ⁦@thetimes⁩ thetimes.co.uk/article/f6f31…
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Max’s Monsters are doing a 10k Halloween walk through London today with @UltraChallenges to raise funds for research into Cardiomyopathy in children. Please support them and click the link! Thank you 👻🎃❤️ #halloweenwalk #fundraising bit.ly/3U3qOyK
Max's Foundation retweeted
Juan Pablo Kaski@jpkaski19 May 2022
Our new paper on preadolescent HCM out in @JACCJournals - outcomes in young children with HCM are similar to older adolescents, highlighting importance of early screening, risk stratification and including children in clinical trials! jacc.org/doi/10.1016/j.jacc.…

Clinical Features and Natural History of Preadolescent Nonsyndromic Hypertrophic Cardiomyopathy:

jacc.org
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We’re so proud of George and want to thank him and his family for their support of ongoing research into genetic heart conditions co-funded by @maxsfoundation to find new ways to identify and treat HCM patients. #heartssetonchange
Great Ormond Street Hospital Charity@GOSHCharity5 Jan 2022
Meet George. He has a condition called hypertrophic cardiomyopathy. It's where the muscle of the heart becomes abnormally thick and makes it more difficult to pump blood around the body. (1/3)
GOSH patient George stands outside a sign for Great Ormond Street with his thumbs up.

ALT GOSH patient George stands outside a sign for Great Ormond Street with his thumbs up.

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Max's Foundation retweeted
Molly Schiller@Molly_Schiller_3 Dec 2021
If you’ve discovered Max’s Foundation today please consider becoming a monthly donor ❤️🥰
Max's Foundation@maxs_foundation3 Dec 2021
Hello! We are so grateful to have your support and attention - we want to share something new with you. We are now using Give As You Live as a platform for all donations! Click the link in our bio to become a regular donor or to make a one-off donation and help save young lives.
Become a monthly donor and help us continue to fund our important projects. Visit the link in our bio to donate or https://donate.giveasyoulive.com/charity/maxsfoundation Funding research into and supporting those affected by genetic heart conditions in children.

ALT Become a monthly donor and help us continue to fund our important projects. Visit the link in our bio to donate or https://donate.giveasyoulive.com/charity/maxsfoundation Funding research into and supporting those affected by genetic heart conditions in children.

About us: Max's Foundation was set up as a lasting legacy to 10 year old Max Schiller, who suddenly passed away from an undiagnosed genetic heart condition, known as hypertrophic cardiomyopathy, in 2015. In partnership with Great Ormond Street Hospital, we fund two research positions, both of which play vital roles in research projects into the detection and treatment of genetic heart conditions in children. We also recognise how important peer support is for children and young adults with these conditions. In partnership with Cardiomyopathy UK, we fund a Youth Manager to run their Youth Panel, helping to ensure that children affected by cardiomyopathies receive the emotional and practical support that they need to live with their conditions and realise their potential. Thank you for your support - it really does mean so much.

ALT About us: Max's Foundation was set up as a lasting legacy to 10 year old Max Schiller, who suddenly passed away from an undiagnosed genetic heart condition, known as hypertrophic cardiomyopathy, in 2015. In partnership with Great Ormond Street Hospital, we fund two research positions, both of which play vital roles in research projects into the detection and treatment of genetic heart conditions in children. We also recognise how important peer support is for children and young adults with these conditions. In partnership with Cardiomyopathy UK, we fund a Youth Manager to run their Youth Panel, helping to ensure that children affected by cardiomyopathies receive the emotional and practical support that they need to live with their conditions and realise their potential. Thank you for your support - it really does mean so much.

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Hello! We are so grateful to have your support and attention - we want to share something new with you. We are now using Give As You Live as a platform for all donations! Click the link in our bio to become a regular donor or to make a one-off donation and help save young lives.
Become a monthly donor and help us continue to fund our important projects. Visit the link in our bio to donate or https://donate.giveasyoulive.com/charity/maxsfoundation Funding research into and supporting those affected by genetic heart conditions in children.

ALT Become a monthly donor and help us continue to fund our important projects. Visit the link in our bio to donate or https://donate.giveasyoulive.com/charity/maxsfoundation Funding research into and supporting those affected by genetic heart conditions in children.

About us: Max's Foundation was set up as a lasting legacy to 10 year old Max Schiller, who suddenly passed away from an undiagnosed genetic heart condition, known as hypertrophic cardiomyopathy, in 2015. In partnership with Great Ormond Street Hospital, we fund two research positions, both of which play vital roles in research projects into the detection and treatment of genetic heart conditions in children. We also recognise how important peer support is for children and young adults with these conditions. In partnership with Cardiomyopathy UK, we fund a Youth Manager to run their Youth Panel, helping to ensure that children affected by cardiomyopathies receive the emotional and practical support that they need to live with their conditions and realise their potential. Thank you for your support - it really does mean so much.

ALT About us: Max's Foundation was set up as a lasting legacy to 10 year old Max Schiller, who suddenly passed away from an undiagnosed genetic heart condition, known as hypertrophic cardiomyopathy, in 2015. In partnership with Great Ormond Street Hospital, we fund two research positions, both of which play vital roles in research projects into the detection and treatment of genetic heart conditions in children. We also recognise how important peer support is for children and young adults with these conditions. In partnership with Cardiomyopathy UK, we fund a Youth Manager to run their Youth Panel, helping to ensure that children affected by cardiomyopathies receive the emotional and practical support that they need to live with their conditions and realise their potential. Thank you for your support - it really does mean so much.

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Max's Foundation retweeted
Katja Gehmlich@GehmlichKatja19 Oct 2021
Well done Amar @amarjazad for running the Oxford Halfmarathon and raising £500 for Max's Foundation @maxs_foundation, a charity to fund reserach in into inherited cardiac conditions in pre-adolescent children and support those affected by these conditions.
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It’s so wonderful to have such fab people supporting us and raising awareness for HCM and Max’s story ❤️
Max's Foundation@maxs_foundation19 Oct 2021
Our fantastic @RoyalParksHalf and @OxfordHalf runners have raised over £1000 for us in the past couple of weeks. Both Hannah and Amar did amazingly and worked so hard to finish their half marathons! We are so proud and thankful to have such fantastic supporters. Thank you! ❤️
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Our fantastic @RoyalParksHalf and @OxfordHalf runners have raised over £1000 for us in the past couple of weeks. Both Hannah and Amar did amazingly and worked so hard to finish their half marathons! We are so proud and thankful to have such fantastic supporters. Thank you! ❤️
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Well done Amar! ❤️
Katja Gehmlich@GehmlichKatja19 Oct 2021
Well done Amar @amarjazad for running the Oxford Halfmarathon and raising £500 for Max's Foundation @maxs_foundation, a charity to fund reserach in into inherited cardiac conditions in pre-adolescent children and support those affected by these conditions.
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One of my best friends Hannah will be running her first half marathon today for the @RoyalParksHalf in support of @maxs_foundation! I’m so so proud of her and thankful that she’s doing this for us. If you want to sponsor her and help fundraise you can here uk.virginmoneygiving.com/fun…
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Amazing Molly! It is so important to be able to raise awareness of #HCM and it’s symptoms ❤️
Molly Schiller@Molly_Schiller_21 Sep 2021
Huge thank you to @theJeremyVine and @BBCRadio2 for having me on your show. It means so much to me to be able to raise awareness for the devastating effects of HCM in young children and what we do at @maxs_foundation in memory of my gorgeous little brother ❤️
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We are delighted to introduce our new research assistant funded by our supporters! Annabelle joins Dr Juan Kaski’s team at the Centre for Inherited Cardiac Diseases @GreatOrmondSt alongside our Research Nurse, Ella Field. To find out more, check out fb.watch/7byZjet-Pr/
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There’s nothing better than the sound of singing from children and the Almost Famous kids have donated their time to create a song for us. If you’d like to support our fundraising to help diagnose HCM in children please donate – and enjoy the song here! tinyurl.com/zrnyapez
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How about some good news for a Friday morning? The lovely people at Almost Famous performing arts in Elstree have written and performed a song for us! All donations gratefully received!Let’s raise some funds for @GOSH! For full video click here youtu.be/O0v7_8qtpQk
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TO DONATE: Text ALMOSTFAMOUS 5 to 70085 to donate £5 Text ALMOSTFAMOUS 10 to 70085 to donate £10 Text ALMOSTFAMOUS 20 to 70085 to donate £20 (All texts cost £3 plus one standard rate message) ❤️❤️❤️❤️
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Massive huge luck to the amazing @AlexJWalpole who is walking the entire 83 miles of the Norfolk Coastal Path this weekend to raise funds for us and @ParkinsonsUK. Show your love and support for him by donating here tinyurl.com/4sdtpryk ❤️❤️
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