Advocate, Writer, Songwriter & Cyber Security Student Cal State Long Beach

Los Angeles, CA
Joined July 2009
Join #MDA's #Neuromuscular #Advocacy Collaborative (#NMAC) on 12/12 to support the Accelerating Kids’ Access to Care Act (#AKAC). NMAC includes 30+ NMD-focused organizations supporting advocacy. Help ensure kids living w/ NMD get the care they deserve! votervoice.net/MDA/Campaigns…
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As of 2023, a mere 0.02 percent of models with visible disabilities are featured in fashion campaigns, especially during NYFW. The number of Black models that exist in that demographic has yet to be documented. In an effort to combat the lack of disabled inclusion in the fashion industry, The Runway of Dreams Foundation (RoDF) was formed in 2014.
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#MDA Ambassador Rodrigo Duran, who lives with congenital #MuscularDystrophy (#CMD) and epilepsy, is the @PracticalNeuro Cover Artist featuring his work: Rock Island. Check out his beautiful work here as we celebrate #WorldArtDay! practicalneurology.com/
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California is expanding opportunities to work for the state. @CalHR_gov has removed college degree requirements for 169 types of jobs so far—opening pathways to careers and helping Californians find meaningful work. Apply for a state job today: calcareers.ca.gov
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Calling all artists 📣 MDA moderator @Pyra_Sydannia is hosting the first @MDALetsPlay virtual art show on December 28 at 7 pm ET. Submissions are open to #MDA members who would like to share their talents here: docs.google.com/forms/d/e/1F…
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#GivingTuesday is 1 week away! #DYK MDA not only supports research for effective treatments, but also connects families with vital services? This #GivingTuesday, let's come together and push the boundaries of what's possible! Support #MDA: MDA.org/HOLIDAY #LightOfHope
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MDA thanks @SenatorRounds for his support to boost severely outdated SSI asset limits that trap people with disabilities in poverty. Empower millions of folks with disabilities to earn/save more + #UpdateSSI with the SSI Savings Penalty Elimination Act. #DemolishDisabledPoverty
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Kudos to @SelmaBlair @IsaacMizrahi & @QVC for launching an #accessible clothing collection. 30 yrs+ after passing #ADA, still barriers for those with #disabilities including access to equal and #accessible #healthcare. msn.com/en-us/lifestyle/wedd…
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#ICYMI: We at @MDAorg continue to hear troubling accounts of insurance denials of #FDA-approved treatments. The latest are denials of Elevidys for #Duchenne and Qalsody for #ALS. This. Has. To. Stop! Read our latest statement for more: votervoice.net/MDA/BlogPosts…
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Registration for the 2024 #MDAconference is open! While this is a technical conference geared toward medical and scientific professionals, people in the neuromuscular community registered with MDA may attend virtually at no cost. Learn more in #Quest: mdaquest.org/registration-fo…
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When having a Neuromuscular Disease it’s important to find a way to exercise even if it looks different from others. Be kind to your body & Love yourself 💗
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Nikki Diaz retweeted
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BREAKING! Congress just passed a major spending bill with MANY #MDA priorities, including: ✅ABLE Age Adjustment Act ✅#FDA & clinical trial reforms ✅Full funding for #ACTForALS Expanded Access Grants ✅#NewbornScreening funding ✅#Telehealth policies Thank you MDA advocates!
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Today and everyday we are thankful for all the paid and unpaid care workers in our lives 💜 Who are you thankful for? #ThanksGiving #NationalFamilyCaregiversMonth
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Deaka said it best at today's LA Board of Supervisors' meeting, advocating to raise wages for IHSS: "The client needs the worker and the worker needs the pay increase. This is not a luxury, ladies and gentlemen, this is a necessity. We need your support. Your support is essential
I appointed Deaka McClain to the @CountyofLA Commission on Disabilities because of her commitment and creativity in advocating for people with disabilities. Today she brought that power to our Board meeting.
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ACTION ALERT: From testing access to cost confusion, there are too many hurdles when trying to obtain a diagnosis via genetic testing. Let’s change that. Urge your members of Congress to support key legislation to make #genetic medicine more accessible! votervoice.net/MDA/Campaigns…
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Both of my parents were able to live at home until the end of their lives thanks to extraordinary in-home healthcare workers. What IHSS workers do is in invaluable -- and ultimately they save the county money by keeping people out of congregate living facilities and hospitals.
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