Thalassemia Patients Advocacy Group

🌍 TPAG at GANSID 2026 | Amplifying Patient Voices on the Global Stage 🙏 We are proud to share a glimpse of Ms. Anubha Taneja’s participation as a speaker representing the Thalassemia Patient Advocacy Group (TPAG) at the GANSID 2026 Congress. During the Patient Engagement Session, she contributed to the global dialogue on expanding access to innovative and curative therapies for Thalasse & Inherited blood disorders, highlighting the importance of patient-driven advocacy, equitable healthcare access, and meaningful patient engagement in policy-making. Her participation reflects the growing importance of bringing patient experiences to the forefront of healthcare discussions and building a future where every person living with Thalassemia and other inherited blood disorders has access to quality care and treatment opportunities. 🤝 Stronger Patient Voices. Better Policies. Equitable Healthcare for All.@IBloodDisorders @thalindia #TPAG #GANSID2026 #PatientAdvocacy #ThalassemiaAwareness #PatientEngagement #InheritedBloodDisorders #GlobalHealth

Thanks to @DirectorLHMC and @DghsIndia @MoHFW_INDIA for awarding TPAG on🩸 National Voluntary Blood Donation Day 2026 🩸 We are proud and deeply honoured that Thalassemia Patients Advocacy Group (TPAG) has been felicitated with a Certificate of Appreciation for its contribution towards promoting voluntary blood donation and strengthening blood transfusion support in India. 🩸 Every Blood Donation Gives Hope. Every Donor Can Save a Life. This recognition inspires us to continue working for: ✨ Voluntary Blood Donation ✨ Safe & Quality Blood ✨ Better Transfusion Support ✨ Stronger Patient Advocacy 🙏 Our sincere gratitude to the National Blood Transfusion Council (NBTC), Directorate General of Health Services, Ministry of Health & Family Welfare, Government of India, for this honour. Donate Blood. Save Lives. Give Hope. ❤️🩸 #NationalVoluntaryBloodDonationDay2026 #DonateBloodSaveLives #BloodDonation #VoluntaryBloodDonation #Thalassemia #TPAG #SafeBlood #BloodTransfusion #PatientAdvocacy #NBTC #GiveHope #SaveLives

This #VBDD TPAG through this podcast -highlights the struggles of thalassemia patients dependent on blood -thanks @MoHFW_INDIA for VBDD campaigns and invites corporates to partner. -encourages thalassemics to be aware about #SafeBlood to avoid #HIV like infections -thanks all donors as #WeLiveBecauseYouGive @thalindia youtu.be/xgLF5dRSQiA?si=wYvS…

On the 9th Anniversary of Thalassemia Patients Advocacy Group (17th Sep) here is a #podcast dedicated to all those teachers who did not discriminate against a #thalassemia student, to all those friends who lifted the doused spirits, to all those family members who supported through thick and thin, to all those #doctors, #nurses and #scientists who did not loose hope, to our parent body Thalassemics India and those NGOs that continue to raise issues related to thalassemia, to all the policy makers who removed the #barriers, to all those strangers who came out for #VoluntaryBloodDonation…and to the whole of human race for not letting #thalassemia win against the basic human instinct of survival! You are the reason TPAG found the inspiration to be born. To survive. To drive the fight against thalassemia. For better life. For better India. @thalassaemiaTIF @thalindia @PriyaVaswani3 youtu.be/V33BjNdvwl4?si=CWWS… lnkd.in/p/ga6YFmZi

#TPAG is delighted to be represented at the GANSID Congress! @thalindia

At the #PatientFirstLeadershipRoundtable, TPAG founder member Nishtha Madan, Patient Advocate, Thalassemia Patients Advocacy Group, made a powerful case for including patients in the policymaking process! #PolicyMaking #PatientAdvocacy @thalindia Join us 🌐 Know more: ihwcouncil.org/patientfirsts…… 📅 23 October 2026 📍 Mumbai

Stand a chance to won the #Photography Award at #GANSID congress in Oct at Hyderabad! Register and Apply by 18th Sep! Registered deligates are eligible for “Through the Lens” Photography Exhibition (GLOBAL) - Due September 18 TPAG encourages all registered delegates-clinicians, researchers, patients, and advocates to submit their original photographs. This exhibition will serve as a visual narrative of our global community, bridging the gap between the microscopic science of inherited blood disorders and the macro reality of living with them. Two winning photographs in each category will win the prestigious Peoples's Choice Best Inherited Blood Disorders #Photography Award! @PriyaVaswani3 @IBloodDisorders @thalindia #thalassemia

When #thalassemia is your reality and you have compassionate caregivers, hospital feels like home in a good way…thalassemia patient celebrating #Birthday in his #transfusion centre! @PriyaVaswani3 @thalindia

TPAG supports GANSID’s Congress in India. Check out this poster to find out more and register! 👇@IBloodDisorders #thalassemia

मरीजों को मिलने वाला Blood कितना Safe ? | Thalassemia| Blood Donation Ti... youtu.be/cri1BDHjTzw?si=m7XC… via @YouTube #thalassemia #blood @thalindia

TPAG is proud to have Dr. Vasundhara Sharma from J&K and geography wizard Chitradip Das from Shantiniketan as the winners of the 3rd Edition of the Santosh & Arjun Dev Taneja Memorial Awards for Excellence. #SADT We are amazed at and proud of the invincible spirit of these #thalassemia warriors who refused to recognise boundaries set by thalassemia. We are grateful to Shri Rajat Sharma for giving away the coveted awards. IndiaTV News Thalassemics India #disability #inclusion @thalassaemiaTIF @thalindia

BIG NEWS on how TPAG and parent body TI have set out on this formidable journey of #SADT awards and #EmpoweringThalassemiaWarriors that not only celebrate the exemplary feats of thalassemics but also encourage their inclusion in mainstream employment. @businessnews businessnewsthisweek.com/hea… @thalindia

TPAG extends sincere gratitude to Shri @RajatSharmaLive for being the Chief Guest for #SADT awards and #thalwarriors awards. We are grateful to the evergreen host of #AapKiAdalat @indiatvnews for motivating the achievers who refused to recognise boundaries set by #thalassemia. @thalindia @shobhatuli @Nannisingh4

“Thalassemia patients need not waste time and energy in education.” This was the prevalent belief not many years back. Today, patients with #thalassemia are becoming #doctors, #engineers, #lawyers, etc. Come and experience the magic of #education! Watch how determination and passion can take you closer to your dream. You could be the next #SADT award winner or thalassemia warrior winning cash prize! @thalindia @DisabilityIndia @MoHFW_INDIA

It is heartening to see the regulator attempting standardising of the #blood transfusion system. This is an important step and will help to control infections like #HIV but must be followed by a push for #VoluntaryBloodDonation and #NAT #thalassemia @thalassaemiaTIF @thalindia

TPAG is excited to be part of #GANSID Congress 2026 to be held in October in Hyderabad. DM us to know more!! We encourage patients, parents and healthcare providers interested in learning about various aspects of #thalassemia to not miss out on this unique opportunity. @IBloodDisorders

BIG @TOIIndiaNews covers the pain of #thalassemia patients struggling with shortage of essential imported medicine. Drug price increasing. Patients dying of iron overload. Government trying to reform policy. #desferal still missing from government hospitals. @DirectorLHMC @SafdarjungH #desferal! @thalassaemiaTIF @thalindia

Big victory for advocates of #bloodsafety! #thalassemia timesofindia.indiatimes.com/…

Announcing the 3rd edition of #SADT awards for excellence worth 1 lakh for #thalassemia patients who remain unstoppable! #InternationalThalassemiaDay @thalindia