Now retired in the Outer Hebrides, love walks, runs, art, felting, sea swims, wild nature - still passionate about dementia justice, voice, autonomy
Joined January 2010
- Tweets187
- Following1.2K
- Followers392
- Likes528
Philly Hare retweeted
(and a cheeky 3, whether you now actively encourage dementia being described as a 'living death' by communicators, journalists etc?)
Woke up thinking about @WendyPMitchell. Not even 4 months since she left us but feels like forever. The world is definitely a little less bright without her wonderful humour, intelligence, bravery, kindness. Sending love to all who miss her x
Fun at the beach today! Video by @caroline_walker_stonebalancing instagram.com/reel/C7wwOqzN1…
Philly Hare retweeted
our #AGoodLifeWithDementia course was observed by @UoY_SBS - a course FOR ppl w dementia designed and developed locally BY ppl w dementia. #transferability #hope #recoverymodel
📢 Recent findings from the Good Life with Dementia evaluation, highlights how a course run by people with dementia, for people with dementia, can provide support, friendship and hope after a diagnosis.
Read more key messages 👇 york.ac.uk/business-society/…
ALT Older people sat around a table talking. Text reads: Good life with dementia. A key message from the findings shows that people with dementia value the safe space a peer-led course provides, to be able to share their experiences and support each other, together.
Philly Hare retweeted
'People with dementia at the heart of research' is a ground-breaking new book by @phillyhare and Rachael Litherland. 📖
Topics include giving up driving, GP dementia reviews, living alone with dementia and using artificial intelligence (AI) platforms: uk.jkp.com/products/people-w…
ALT Green and white poster. Text reads: People with dementia at the heart of research. Black, yellow, red, and cream abstract shapes that look like people are at the bottom of the poster.
Philly Hare retweeted
Really great new #ReadingWell list for people with #dementia and #carers We've been delighted to be part of this process by running a #coproduction group of people with dementia and carers to shape the new list.
We're excited to announce the launch of our new #ReadingWell for dementia booklist this #DementiaActionWeek! 🎉
The expert-endorsed list is designed to support people living with dementia, their families and carers. 📚
Browse the full booklist at 👉️ reading-well.org.uk
ALT Reading Well for dementia programme title surrounded by illustrations of open books. Text reads: Recommended books chosen by people living with dementia, carers and health professionals, www.reading-well.org.uk Logos for The Reading Agency, Arts Council England and Libraries Connected are displayed.
#DAW2024 #DementiaActionWeek
This year more than ever we need to highlight how ppl w #dementia can continue to contribute their skills + experience
Have you ordered @Innov_Dementia's new book yet?
uk.jkp.com/products/people-w…
#DementiaActionWeek
@HildaHayo (CEO @DementiaUK) says new @Innov_Dementia book is:
"an essential read for researchers + academics, challenging the myths + misconceptions about the ability of people with #dementia to actively participate in research."
Order from JKP or Amazon
Philly Hare retweeted
EVERY week is #DementiaActionWeek and the tutors creating the next #AGoodLifeWithDementia course in Bridlington @East_Riding are honing their messages to share. #peerlearning A course FOR ppl w dementia BY ppl w dementia @elhijodevera @GWStorr
Philly Hare retweeted
.@pollykaiser - sorry miss you off this important list!
"Let's talk about death shall we?"
In #DyingMattersWeek it's a good time to revisit this fabulous resource co-created with #peoplewithdementia from @OldhamDementia with @JacquiBingham @tonyhusband1 @dementiaunited @PennineCareNHS and many others bit.ly/4dtxTmJ
.@BBCWomansHour
Huge respect for the views of @thelizcarr
But some ppl w disability do rationally decide it's better to be dead.
We need to give choice to ppl like @WendyPMitchell who had #dementia . She recently had to stop eating &drinking as the only way to end her life
Philly Hare retweeted
The way we talk about dying matters.
#DyingMattersWeek
Listen to the experts - dying people, and their closest loved ones.
In the end, it's about giving them an opportunity to control the conversation - listening, respecting, supporting.
Thanks @DyingMatters
Dying Matters Awareness Week starts today 💛
Patricia, Mumtaz & Lucy add their voices to this @dyingmatters animation exploring the power of language at the end of someone’s life.
👉 Please help share this post. Thank you.
#DMAW24 #TheWayWeTalkAboutDyingMatters @NLondonHospice
"My life was for living, but now it’s time for dying"
In #DyingMattersAwarenessWeek I recommend @WendyPMitchell 's final book "One Last Thing"
And her last blog whichmeamitoday.wordpress.co…
Philly Hare retweeted
What difference does it make when people with dementia lead their own research? Watch our short film here bit.ly/3WCH8Lg and find out more in our new book about #DementiaEnquirers available from @JKPDementia uk.jkp.com/products/people-w…
#DementiaActionWeek
"This inspirational book marks the emergence of a new research culture for dementia studies" (@Richard_Ward_1)
Order YOUR copy of @Innov_Dementia's new book about the groundbreaking #DementiaEnquirers project
Go to uk.jkp.com/products/people-w… or Amazon.
Philly Hare retweeted
I confess, I felt like an imposter at #adi2024 today. I'm just a 3rd Yr PhD student surrounded by amazing people. Everyone appeared to have come with someone. I felt alone, overwhelmed & desperate to have confidence to speak to others more. But, I learned a lot from the speakers.