
Providing quality of life support for hypothalamic-pituitary brain tumor survivors 🧠 #braintumor #craniopharyngioma
Joined February 2017
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Our FY26 Impact Report is here!
Behind every initiative, advocacy effort, and community program is a person or family navigating life after a hypothalamic-pituitary brain tumor.
Explore our interactive report and see what your support makes possible rawfimpact.org
Last chance to vote for "Benign is Not Fine" by Eugenie Hsu to win The 2026 Rare Artist Contest!
Vote Now! zurl.co/nIKGL
Register for tonight's Survivor Support Group, hosted by Jason Burris!
Email email [email protected] to join !
Don't miss Experiencing Grief While Managing a Chronic Illness/Brain Tumor Diagnosis!
This workshop will explore the ways individuals can experience grief when diagnosed with a brain tumor or chronic illness, & how to process them.
October 21st, 7pm EST
zurl.co/CIIK4
Meet our newest speaker for HOPE Austin!
Marci Serota, RAWF Board Member and Author of Hungry for Solutions: A Mother’s Quest to Defeat Hypothalamic and Childhood Obesity
When: Nov 8 10:00-2:00
Where: Courtyard Marriott Downtown Austin
Register Now: zurl.co/Ego6I
Meet Bob, one of our dancers for the DC's Dancing Stars Gala!
Bob is honored to bring his energy in support of the Raymond A. Wood Foundation and its mission to improve the lives of brain tumor survivors and their caregivers.
Donate to vote for Bob! pages.donately.com/dcsdancin…
Join Rhythm for a webinar on Understanding Acquired Hypothalamic Obesity: Disease Education and Treatment Options. This program is designed for patients and families in the U.S.
October 19th at 7pm
To register, please scan the QR code or visit:
bit.ly/4xwv6mi
Meet our speaker for HOPE Austin!
Vincent Horne, MD, MS from Texas Children’s Hospital | Baylor College of Medicine
Dr. Horne will share his expertise on HO and answer questions from families during an interactive Q&A.
Registration is FREE: zurl.co/Ego6I
Don't miss our upcoming workshop
Experiencing Grief While Managing a Chronic Illness/Brain Tumor Diagnosis, hosted by Grief Support Specialist and Grief Coach Holly Gainsboro.
Register FOR FREE on Eventbrite! zurl.co/68tGJ
Registration is now open for HOPE Austin, a free half-day gathering for individuals and families affected by hypothalamic obesity.
When: November 8, 2026, 10:00 AM - 2:00 PM
Where: Courtyard Marriott Downtown Austin
Registration is FREE: zurl.co/DzXwf
October is here! Join us for some of our monthly events. Email [email protected] for more information or registration details!
It's not too late to join Team RAWF for the Philadelphia Marathon Series November 20–22!
We have limited spots remaining to join the race with us, so opt for either the 8K or the Half Marathon.
To learn more, email [email protected].
Don't miss our upcoming workshop, Experiencing Grief While Managing
a Chronic Illness/Brain Tumor Diagnosis, featuring Grief Support Specialist and Grief Coach Holly Gainsboro.
October 21st, 7pm EST
zurl.co/2GfnA
Join Rhythm Pharmaceuticals for a webinar on Understanding Acquired Hypothalamic Obesity: Disease Education and Treatment Options. This program is designed for patients and families in the U.S.
September 30th 7pm EST
To register, please visit:
zurl.co/qmdCp
Join us for our Caregiver Support group tonight at 8pm EST, hosted by caregiver and RAWF board member Eugenie Hsu! Email [email protected] to join
Save the date for HOPE Austin, our first ever Regional Family Summit, sponsored by Rhythm Pharmaceuticals!
This half-day summit will focus on living with acquired hypothalamic obesity (aHO).
November 8th in Austin, Texas
Stay tuned for more information and how to register!
These are the last few days to take our AVP-D survey!
The survey is available in English and Spanish.
Please log in to your registry account, or create one if you haven’t already, and complete our latest AVP-D survey I zurl.co/qwFxH
Join us for our Survivor Support Group, hosted by brain tumor survivor Jason Burris!
Email [email protected] to join
Join us for an interactive workshop exploring the various ways individuals can experience grief when diagnosed with a brain tumor and how to process them.
Featuring Holly Gainsboro, Grief Support Specialist and Grief Coach.
October 21st, 7pm EST
zurl.co/0UTKc
We conquered New York, now we're on the way to Philadelphia!
Join Team RAWF fo have limited spots remaining to join the race with us! The registration deadline to register is approaching, so don't miss out!
To learn more, email [email protected].





















