Supporting the Scleroderma Community in Victoria

Melbourne, Victoria
Joined November 2015
Join us on Sat 28 Nov for the Scleroderma Victoria 2026 AGM! 💛 Hear from A/Prof Wendy Stevens and Jan Elliott, connect with our community and get the latest updates. 📍 RACV City Club, Melbourne 🕐 Registration from 1 pm 🎫Get your ticket now: eventbrite.com.au/e/2026-scl…
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JOIN US for our November Virtual Education Session featuring guest speakers Dr Brett Thombs and Tracy Mieszczak! 📅 14 November, 10:30am AEDT 💬 Feel Better, Live Better: The SPIN-SELF Program for People with Scleroderma Register here: eventbrite.com.au/e/ves-feel…
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Looking after your feet is important when living with #scleroderma. At our September Virtual Education Session, Professor Debbie Turner from QUT shared practical tips for foot care and protecting foot health. Read here: sclerodermavictoria.com.au/s…
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What does clinical research do and how do researchers decide what aspects of #scleroderma to study? Join Associate Professor Wendy Stevens, consultant rheumatologist at St Vincent’s Hospital Melbourne, live on 18 November at 3pm AEDT. Have your say here: bit.ly/4xjzAvV
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JOIN US for our October Virtual Education Session with guest speaker Dr Karoline Raven! WHEN: Saturday, 10 October at 10:30am AEDT WHERE: Online via Google Meet COST: It's FREE! TOPIC: Environmental triggers for inflammation in #Scleroderma Register here: eventbrite.com.au/e/ves-envi…
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Looking after your skin and hands is important when living with #scleroderma. At our August Virtual Education Session, rheumatology nurse practitioner Emma Bavage shared practical insights into managing skin involvement and digital ulcers. ➡️sclerodermavictoria.com.au/m…
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Your TidyHQ membership questions, answered! #SclerodermaVictoria has moved to TidyHQ to make managing your membership, renewals and payments simpler. Wondering how to access your membership, renew or make a payment? Our FAQs have the answers 👉sclerodermavictoria.com.au/w…
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Whether you live with #scleroderma, support someone who does, or want to stand with our community, becoming a financial member helps us advocate, connect and build a stronger future together. Become a member here: sclerodermavictoria.com.au/j… #SclerodermaVictoria
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MARK YOUR CALENDARS for our September #VirtualEducationSession with guest speaker Professor Debbie Turner! WHEN: Saturday, 12 September at 10:30am AEST WHERE: Online via Google Meet COST: It’s FREE! TOPIC: #Scleroderma and the Feet Register here: eventbrite.com.au/e/ves-scle…
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Living with scleroderma can affect everyday life in many ways. SPIN-SELF is a new, free online self-management program offering practical tools, education and support to help people with scleroderma feel more confident in managing day-to-day wellbeing. sclerodermaaustralia.org.au/…
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DID YOU KNOW? Scleroderma can affect more than health - it can impact everyday life, including the ability to work. On average, people living with scleroderma retire 15 years earlier than their peers. We can raise awareness, support, and advocate for better care and outcomes.
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Big changes are coming to Scleroderma Victoria memberships! We're introducing a new membership system to make renewals simpler, more secure and more convenient. Membership categories, fees and benefits remain the same. Learn more here: svi.tidyhq.com/public/member…
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MARK YOUR CALENDARS for our August Virtual Education Session with guest speaker Emma Bavage! WHEN: Saturday, 08 August at 10:30am AEST WHERE: Online via Google Meet COST: It's FREE! TOPIC: Scleroderma and Ulcer Management Register today: eventbrite.com.au/e/sclerode… See you there!
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Being part of a support group program has numerous benefits for individuals and carers alike! It's about being part of a caring community and knowing that YOU are not alone! Have you attended one of our support groups? We'd love to hear what it's meant to you in the comments.
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Did you know? #Scleroderma can also affect your muscles. It may cause muscle inflammation (myositis), leading to pain and weakness, or muscle scarring (fibrosis), causing stiffness. If you're experiencing these symptoms, speak with your healthcare team. #SclerodermaAwareness
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Thank you to everyone who made our 2026 #GeneSwinsteadMemorialLuncheon so special. Special thanks to GB Galvanizing for their generous $20,000 donation, the London Tavern Hotel, and Penny Richards Fowler. Together, we raised more than $26,000 to support scleroderma awareness.
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Join us for the Scleroderma Fundraiser Luncheon 2026 ! A beautiful 3-course meal for a meaningful cause, supporting vital scleroderma research and care. 📅 26 July 2026 | 12:00 PM - 4:00 PM 📍 Mulgrave Country Club Get your tickets now! trybooking.com/events/landin…
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It’s World Scleroderma Day 💛 Today we honour the strength of everyone living with scleroderma. Support specialist Scleroderma Nurses and help ensure no one faces this rare condition alone. Your donation provides care, support, and hope. Donate today: mycause.com.au/charity/858/S…
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JOIN US for our July #VirtualEducation Session with guest speaker Associate Professor Amanda Saracino! WHEN: Thursday, 16 July at 06:30 PM AEST WHERE: Online via Google Meet COST: It's FREE! TOPIC: Scleroderma ASIG Fellowship REGISTER HERE: eventbrite.com.au/e/ves-scle… #Scleroderma
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Living with scleroderma is challenging enough - work shouldn’t make it harder. Employment lawyer Fay Calderone shared insights on psychosocial safety, workplace rights, and supportive workplaces for people living with chronic illness. Read more here: sclerodermavictoria.com.au/p…
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