Cerebral Palsy Research Network | Community | Research | Education | A diverse community that moves forward #CP research & quality healthcare.
United States of America
Joined December 2011
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I am excited to be presenting at the University of Michigan's Learning Health System Collaboratory. Tune in if you want see what 10 years can get you! docs.google.com/forms/d/e/1F…
We are extending our work into the NICU with early detection and now a registry for hypoxic schemic encephalopathy (HIE). Join us for a webinar with @HopeforHIE and Principla Investigator @DanielleGBarber. Register at cprn.org/mycp-webinar-series….
Cerebral Palsy Research Network retweeted
In our latest partner spotlight we caught up with Paul Gross, President, Chief Executive Officer and Co-Founder of the Cerebral Palsy Research Network (@CPRN_org)! Learn more about the great work being done at CPRN and our partnership in the blog below!
nchpadconnect.org/2024/04/05…
Great work! If this can create improved practices uniformly, it will greatly benefit what we can do for the CP community and "protocolize" care more.
The *NEW* @AANmember Child Neurology Quality Measures set opens for public comment on March 8! Amongst the new measures are 2 I'm esp. proud of: genetic testing for everyone with #cerebralpalsy, and documentation of GMFCS for everyone with #cerebralpalsy
Thrilled to have hired Joyce Trost, PT, PhD as our Director of Registries! Her track record @GilletteChildrn as their Director of Research will serve our growth and research needs. cprn.org/dr-joyce-trost-hire…
So true!
Iona is a huge force in the field of #CerebralPalsy. Well deserved, and congratulations to my good friend.
Thanks for all your hospitality and generosity!
The brightest minds in #CP research united in Wilmington, DE for the annual meeting of the @CPRN_org, hosted by the esteemed Nemours Children's CP Center. Together, we're advancing the frontiers of cerebral palsy research. 🤝💡 #CPRNAnnualMeeting #CPResearchLeaders
Do you want to be at the center of the fastest growing registry for #cerebralpalsy research? Do you have a PhD in clinical epidemiology, rehabilitation science, or several years of clinical research with a masters level degree? Apply: linkedin.com/jobs/view/35889…
We are excited to share the details and benefits of our new partnership for both the community members and the research community for #cerebralpalsy. 1+1=(a lot more than 2)!
Tune in TONIGHT for a convo with leaders from CPARF & @CPRN_org to learn more about our partnership that will benefit people with #CP, parents, caregivers, researchers & medical experts by ensuring that proven science makes its way to more people sooner ➡️bit.ly/CPResearchPartnership…
We share in the excitement with @ResearchForCP where our priorities are aligned and are skills are very complementary. We look for to doing great things together for the #CerebralPalsy community -- people living with CP, caregivers and families and the clinician researchers!
We’re excited to announce that we’re partnering with @CPRN_org to transform the lives of people with #CerebralPalsy! The partnership will generate new findings about #CP & ensure that people with CP and their parents, caregivers & medical teams can benefit from proven science.
ALT a square tile split down the middle with solid green on the left and white on the right. A CPARF logo appears on the left and a CPRN logo appears on the right, This represents the two organizations entering a partnership.
ALT An announcement for a webinar featuring Michael Pearlmutter, CPARF’s Executive Director and Paul Gross, the CP Research Network’s President and CEO. Details are included in the caption of this post and the link to sign up is in our bio on Instagram
As always, we expect this webinar to be clear, meaningful and well thought out. Join@Dr Bhooma to learn more about more about Adults with intellectual and developmental disabilities!
This webinar and all others in this series will be posted at our Adult IDD Webinar YouTube Channel: youtube.com/@adultiddwebinar…
Happy to be sharing more #CPStories with today's glimpse into the motivations and impact of @drbhooma who is truly a bright light, a rising star and an incredible leader in the care of people with #CerebralPalsy. cprn.org/cp-stories-pediatri…
Gina Kline is powerfully summarizing the importance and opportunities to innovate for the disability economy at the #RemarkableTechSummit. Thanks @RemarkableTech for putting together such a meaningful program about #AssistiveTech that will impact #cerebralpalsy outcomes.
Very excited to be at the #RemarkableTechSummit to see how the CP Research Network can help #AssistiveTech entrepreneurs bring advances to market to help the #cerebralpalsy community. Thanks to @RemarkableTech!
So excited to be partnering with Steve Wisniewski, PhD, from Pitt's Epidemiology Data Center to be our new Data Coordinating Center PI! Pitt will host our two #cerebralpalsy registries and be our partner in research for numerous studies under development. cprn.org/cprn-partners-with-…
Very excited to be in Chicago for the return of our in-person #CerebralPalsy #ResearchNetwork annual investigators' meeting with so many sites and community members represented. See you soon @drbhooma, @cppositive, @orthodawg91, and numerous @aacpdm research focused clinicians.
Our #60MileChallengeforCPResearch kicked off today and people are already racking up miles to raise funds to support #cerebralpalsy research. You can still join in the fun on Facebook: facebook.com/cpresearch/post… or on our challenge website: cprn.salsalabs.org/60MileCha…. Make May count!
This is important work. We should add a field to the CPRN forms about the *communication* of the etiology to the family and drive that number toward 100%! And we should also empower parents to ask!
People with #cerebralpalsy want to know what's caused their CP...and most don't. Our video abstract/podcast on community views on CP diagnosis is now out #DMCN @mackeithpress @ProfBernardDan @CPRN_org @s_searchlight youtu.be/-8TGBV5bI74