Cerebral Palsy Research Network | Community | Research | Education | A diverse community that moves forward #CP research & quality healthcare.
United States of America
Joined December 2011
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Cerebral Palsy Research Network retweeted
In our latest partner spotlight we caught up with Paul Gross, President, Chief Executive Officer and Co-Founder of the Cerebral Palsy Research Network (@CPRN_org)! Learn more about the great work being done at CPRN and our partnership in the blog below!
nchpadconnect.org/2024/04/05…
Cerebral Palsy Research Network retweeted
We’re better together 👏😊
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Cerebral Palsy Research Network retweeted
Today is the International Day of Persons with Disabilities.
I have cerebral palsy.
Often, people with disabilities are silently judged.
Ignored.
Underestimated.
Forgotten as a group, even in an era which embraces diversity.
We have talents. And hearts. And value.
Cerebral Palsy Research Network retweeted
Fantastic to see World CP Day recognised by one of our prominent world leaders!
Every day, people with cerebral palsy break down barriers and push past boundaries. They make our country stronger and more vibrant - and this #WorldCPDay, we celebrate them. Together, let’s keep working to make sure everyone can live a life without limits.
Cerebral Palsy Research Network retweeted
"To best address our research questions, community involvement is vital" #dystonia in #cerebralpalsy @CPRN_org
Cerebral Palsy Research Network retweeted
#GetToKnow the #WashUNeuroCommunity: Bhooma Aravamuthan, MD DPhil (@drbhooma) of @WashUNeurology aims to better understand dystonia in cerebral palsy (CP) with the goal to optimize diagnosis, predict those at risk for CP and cure dystonia in people with CP.
Looking for postdocs!
Cerebral Palsy Research Network retweeted
"All Wheels Up looks forward to collaborating with the DOT, FAA, and Congress to create a road map for executing the long-awaited wheelchair spot" travelpulse.com/news/airline…
Cerebral Palsy Research Network retweeted
#18 Paralympic medal for me 🤩 I am so proud of myself as well as my teammate . The race was text book! We both took huge risks and it worked out! This one’s for equality, our country and for the movement @Paralympics
Cerebral Palsy Research Network retweeted
Early CP diagnosis is becoming common since evidence based guidelines were published in 2017 by @NovakIona et al.
Following the implementation of our clinic @MonashChildrens:
onlinelibrary.wiley.com/doi/…
here is the implementation from Sydney @CPA_Research:
mdpi.com/2076-3425/11/8/1074
Cerebral Palsy Research Network retweeted
*going over this with trainees immediately* (thanks @alfairhall!!!) journals.plos.org/ploscompbi…
Cerebral Palsy Research Network retweeted
There is no greater feeling than having a mentee's work be recognized. CONGRATS🥳🥳 Dr. Laura Gilbert @WashUNeurology for winning a @ChildNeuroSoc Junior Member Award and being selected to give a Platform Presentation on our work with @CPRN_org on #dystonia in #cerebralpalsy.
Cerebral Palsy Research Network retweeted
An overview of #systematicreview(s) of #earlyintervention for #cerebralpalsy @LongoEgmar @iaacd @aacpdm
Second paper in the series on #earlyidentification and intervention for children with #developmentaldelay and #disability
onlinelibrary.wiley.com/doi/…
Cerebral Palsy Research Network retweeted
✨Can you help us spread the word about the importance of exercise in CP with an RT? ✨ @CPTeensUK @CP_Sport @ifcpf @scope @action_cp @CPRN_org @CP_Cymru @CpScotland
Cerebral Palsy Research Network retweeted
Some hips in #cerebralpalsy can’t tolerate pelvic obliquity even after #spinalfusion. #3DModel helps decide salvage/reconstructive options.
@OrthoAtYale #YaleCPProgram @YNHH #Yale3DCenter @YaleSEAS @YaleMed
🖨:@KristinYu7
Cerebral Palsy Research Network retweeted
Awesome @dmrf! Hoping there's an equal focus on "secondary" dystonias like in #cerebralpalsy - BY FAR, the most common cause of dystonia in childhood
Cerebral Palsy Research Network retweeted
#EarlyIntervention evidence for infants with or at risk for #CerebralPalsy: an overview of #SystematicReviews
onlinelibrary.wiley.com/doi/…
Cerebral Palsy Research Network retweeted
It’s out of reach of the water controls, so a no-go. Unfortunately, the room type I reserved — ADA King with roll-in shower & balcony — doesn’t actually exist. Wild.
Cerebral Palsy Research Network retweeted
An update on what we know (and a lot we DON'T know) about treating #dystonia in #cerebralpalsy. Great work (as usual!) from Emma Bohn, Darcy Fehlings et al. @HBKidsHospital @CPRN_org onlinelibrary.wiley.com/doi/…
Cerebral Palsy Research Network retweeted
And editor of the CP Toolkit! Thank you and thanks to @CPRN_org & @cpdailyliving This is such a great resource for the families we serve in the #CerebralPalsy Program @Nemours cpnowfoundation.org/wp/wp-co…