@JennMeagher

Life stolen by Myalgic Encephalomyelitis. Waiting to be rescued by science. Science waiting to be funded by governments. #MECFS

Joined May 2014
  • Tweets9K
  • Following1.3K
  • Followers1.4K
94Media
Jenny Meagher retweeted
Dr Monique Ryan MP@Mon4KooyongOct 24
From Kooyong to Indi 🧡 We send our love and support to Helen, her family, her staff, and her community.
34
76
2
718
7,048
Jenny Meagher retweeted
Adam@ABrokenBatteryOct 25
Short #MECFS explainer for children from German TV. Includes an explanation of post-exertional malaise (PEM), the worsening of symptoms after activity. Note: People can recover. Older studies suggest around 5–10% of adults make a full recovery.
2
12
1
38
1,015
A candle for Helen Haines
2
77
Jenny Meagher retweeted
Peter Cronau
@PeterCronauOct 21
As we think best thoughts for dear Helen Haines, my thoughts go back to this… ▪️The ‘Inquiry into Health Services for the Psychiatrically Ill and Developmentally Disabled’ was the 1983 Richmond Report. ▪️It led to closure of the big institutions replacing them with struggling community-based care and underfunded regional mental health services. ▪️Deinstitutionalisation was sorely needed but the neoliberal laissez-faire number-crunchers saw it just as a way to save government costs. ▪️I saw firsthand the effects, good and bad, and was engaged in picking up the pieces of this systematic failure. ▪️So many lives were lost or wasted, families left in misery, ‘clients’ left to twist in the wind, and generations of under-treated cases of mental illness drifting, sometimes screaming, through our communities. ▪️Only when there are murders - as in Bondi Junction - or attacks on prominent individuals - Helen Haines allegedly - does attention fall onto this monstrous ongoing community disaster. 👉 If this is not good enough, we need to pay the costs to fix it. 👉 If the public coffers are bare, then we need to raise taxes. 👉 We need to make the resource companies, banks, wealthy corporations, and the 1% uber rich pay, they can afford it. Whose community is it anyway? — “I absolutely think there is more that the system can do to prevent people that are unwell causing harm.” theage.com.au/national/victo…

Deleted posts reveal Brendan Nugent’s mental health spiral as police consider more serious charges

The man accused of deliberately running down Helen Haines spoke of living with chronic pain as well as suicidal ideation and stays in psychiatric facilities.

theage.com.au
71
270
19
756
13,330
Jenny Meagher retweeted
Emerge Australia@EmergeAusOct 24
💙 Today is #POTSAwarenessDay We’re introducing our new #decisionaid, #OrthostaticIntolerance: Should I Be Tested? for people with #MECFS or #longCOVID experiencing symptoms when upright. We’d love your feedback. Learn more: zurl.co/aPX3x
Emerge Australia graphic for POTS Awareness Day, 25 October 2026, promoting a new resource. It features a patient decision aid titled “Orthostatic Intolerance: Should I be tested?” for shared decision making, supporting people with ME/CFS, long COVID and their health professionals.

ALT Emerge Australia graphic for POTS Awareness Day, 25 October 2026, promoting a new resource. It features a patient decision aid titled “Orthostatic Intolerance: Should I be tested?” for shared decision making, supporting people with ME/CFS, long COVID and their health professionals.

1
3
9
267
Jenny Meagher retweeted
Patrick McGorry@PatMcGorryOct 23
Helen Haines attack: If Pauline Hanson can wise up, surely everyone else can too theage.com.au/politics/feder… Excellent piece covering what urgently needs to happen. Our precious Australian society is breaking down through a flawed political economy with rampant inequality

Anthony Albanese must call Angus Taylor stat, and here’s what he must say

Every one of us can and should act. We share the pleasures and the pains of the same country. We can all contribute to improving it in this dire moment.

theage.com.au
6
19
2
39
2,056
Jenny Meagher retweeted
Cheryl Kernot@cheryl_kernotOct 24
AND WE & THEY KNOW mental health supports are threadbare! Bits of funding over the years have been inadequate and can no longer be relegated in budget priorities.
Patrick McGorry@PatMcGorryOct 24
The horrific attack on Helen Haines revealed 2 threats to Australian society. The surge in abuse of & threat to our elected representatives & the threadbare state of State mental health systems which must be completely rebuilt. Community safety at stake. We can’t jail this away.
7
45
1
130
2,075
There's a sad irony here. A court has heard the man who allegedly drove his car into MP Helen Haines suffers from a neurological disorder, and concussion. Recently, Dr Haines called for a neurological nursing workforce and national action plan for such conditions.
17
51
3
241
5,366
Jenny Meagher retweeted
Patrick McGorry@PatMcGorryOct 24
The horrific attack on Helen Haines revealed 2 threats to Australian society. The surge in abuse of & threat to our elected representatives & the threadbare state of State mental health systems which must be completely rebuilt. Community safety at stake. We can’t jail this away.
38
94
12
308
14,714
Jenny Meagher retweeted
Beth Dobbin
@BethDobbinOct 21
We’ve been blown away by the response to my interview with @BBCSport & @KatieFalkingham , thank you so much to everyone who has taken the time to read and engage with it ❤️ millions of views across multiple platforms really is immense. We have since written to @andyburnham , calling on the @UKLabour government to fund research into this horrific illness. I know there’s so much more we could say, but with limited capacity, we’ve tried to focus on the lack of funding, resources in the NHS and how much it’s actually costing the government. As you can see on the slides, it has been drastically underfunded compared to other illnesses and it is currently costing the UK Government far more than it would cost to fund research. ME is most often a post-viral illness. Therefore, since the start of the Covid pandemic, we’ve seen cases increase drastically and they will continue to increase. We need funding into research urgently. With estimates of people with ME being around 1.35 million, this is a lot of lives destroyed. I’ve had thousands of messages on multiple platforms since sharing my story so please bear with me ❤️ Thanks to @ThereForME_UK and @wecrunchme for the stats.
108
412
36
1,523
39,378
Jenny Meagher retweeted
ThereForME@ThereForME_UKOct 22
Olympian @BethDobbin has written to Andy Burnham to ask for increased funding for ME research. We are working with her to amplify her message, and you can help (if capacity allows). Write to your MP to back her call - and to make things easier, we have a template for you.👇
Images of Beth Dobbin and Andy Burnham with a graphic of an email going from Beth to Andy. Under Beth is her quote "I believe you need to fund research into this spiralling illness and help us all get our lives back." and also there is a small chart showing UK Govt Reearch funding 2019-2024. ME - £6.6m, Parkinsons, £79.1m and Dementia £496.4m. The text says "Beth Dobbin has written to Andy Burnham asking for increasing funding for ME research. You can help! Support Beth's call for ME funding by writing to your MP. Template letter available!"

ALT Images of Beth Dobbin and Andy Burnham with a graphic of an email going from Beth to Andy. Under Beth is her quote "I believe you need to fund research into this spiralling illness and help us all get our lives back." and also there is a small chart showing UK Govt Reearch funding 2019-2024. ME - £6.6m, Parkinsons, £79.1m and Dementia £496.4m. The text says "Beth Dobbin has written to Andy Burnham asking for increasing funding for ME research. You can help! Support Beth's call for ME funding by writing to your MP. Template letter available!"

4
63
5
149
3,563
Jenny Meagher retweeted
charlos@loscharlosOct 19
“Researchers often compare it to Russian roulette: Any infection could be the one that leads to #LongCovid. ‘Every time there’s a wave, there’s another wave that’s going to follow with patients developing new onset long Covid’”— @VirusesImmunity
NY TIMES Long Covid as Russian Roulette Doctors tend to be more concerned about the chance that someone will develop long Covid from repeated infections than they are that a person will get very sick in the acute phase of the illness. Covid can cause long-term damage to nearly every part of the body and repeated cases can compound those harms. A number of studies have shown that each time someone contracts Covid introduces an opportunity to develop long-term symptoms. Researchers often compare it to Russian roulette: Any infection could be the one that leads to long Covid. “Every time there’s a wave, there’s another wave that’s going to follow with patients developing new onset long Covid,” said Akiko Iwasaki, an immunologist at Yale University.

ALT NY TIMES Long Covid as Russian Roulette Doctors tend to be more concerned about the chance that someone will develop long Covid from repeated infections than they are that a person will get very sick in the acute phase of the illness. Covid can cause long-term damage to nearly every part of the body and repeated cases can compound those harms. A number of studies have shown that each time someone contracts Covid introduces an opportunity to develop long-term symptoms. Researchers often compare it to Russian roulette: Any infection could be the one that leads to long Covid. “Every time there’s a wave, there’s another wave that’s going to follow with patients developing new onset long Covid,” said Akiko Iwasaki, an immunologist at Yale University.

15
329
25
804
21,929
Jenny Meagher retweeted
Dee Madigan@deemadiganOct 20
Pauline Hanson now says the cartoon mocking Jacqui Lambie's prolapse "wasn't as tastefully done as it could have been". Taste is about execution. There is no tasteful way to mock a veteran's service injury.
348
405
10
2,065
21,781
Jenny Meagher retweeted
Adam@ABrokenBatteryOct 13
“The indifference is just unbelievable. It’s just incredible how people have shut their minds to the terrible suffering that’s going on.” George Monbiot on what needs to change for people with #MECFS, and the need for more advocates, journalists and politicians to speak up.
6
64
3
180
2,895
Jenny Meagher retweeted
Dr Monique Ryan MP@Mon4KooyongOct 12
The Albanese Government is the most secretive federal government we've had in decades. It protects lobbyists, keeps ministerial diaries closed, and has repeatedly made FoI requests more challenging and more expensive. We need to put a stop to the bully boy tactics the Albanese Government is using in the courts, by threatening those seeking transparency with massive legal costs. We have to support those who are looking to hold the government to account for its spending and its decision-making. theage.com.au/politics/feder…

‘Bully boy’ accusations fly over nuclear waste secrecy

The Albanese government is fighting to keep these FOI documents hidden. Jacqui Lambie and others on the crossbench aren’t happy.

theage.com.au
69
238
16
714
7,702
Jenny Meagher retweeted
Dr Dunny Kruger@DrDunnyKrugerOct 13
‘Australia without migrant workers’ Who made this? 👏 Mandatory viewing for any fool who still doesn’t understand the implications of slamming the gates shut.
3,678
5,429
709
26,063
3,608,278
Jenny Meagher retweeted
davidtuller@davidtuller1Oct 10
WTF, Springer Nature? Removing offensive language about patients being "combative" and "reproachful" is not enough. You need to explain why the language was there in the first place. virology.ws/2026/10/10/trial…

Trial By Error: Springer Nature Removes Description of "Fatigue" Patients as "Combative" and...

By David Tuller, DrPH UPDATE POSTED AN HOUR LATER: Shortly after posting this blog, I learned that Volker Köllner, the senior co-author of the chapter in qu ...

virology.ws
9
56
3
224
3,753
Jenny Meagher retweeted
Adam@ABrokenBatteryOct 12
“The time in hospital was awful for her. She had a very severe crash and could not sit and because of that she was brought home lying down in an ambulance.” 9 year old Annabelle’s mum talking about her #MECFS which she developed following Covid. #LongCovid
1
38
2
111
1,847
Jenny Meagher retweeted
Tom Kindlon@TomKindlonOct 11
Low Vasopressin in Myalgic Encephalomyelitise/Chronic Fatigue Syndrome Vasopressin is also known as antidiuretic hormone endocrinepractice.org/articl… Screenshot from AMMES October 2026 newsletter #MEcfs #PwME
Photo of someone lying, collapsed on sand looking exhausted With the following text LOW VASOPRESSIN IN MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME In a consecutive series of ME-CFS patients, majority had very low vasopressin levels, relatively high plasma osmolality and low urine osmolality, in absence of overt hypothalamic or hypophyseal pathology. Chronic down-regulation of vasopressin mimicking central diabetes insipidus may contribute to the core symptoms of ME/CFS. Read more here>>

ALT Photo of someone lying, collapsed on sand looking exhausted With the following text LOW VASOPRESSIN IN MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME In a consecutive series of ME-CFS patients, majority had very low vasopressin levels, relatively high plasma osmolality and low urine osmolality, in absence of overt hypothalamic or hypophyseal pathology. Chronic down-regulation of vasopressin mimicking central diabetes insipidus may contribute to the core symptoms of ME/CFS. Read more here>>

7
30
2
112
8,337
Jenny Meagher retweeted
Dr Monique Ryan MP@Mon4KooyongOct 7
Our immigration policies have to be based on need and evidence. They have to respect the pressures on housing and infrastructure while considering potential effects on our economy. The Coalition is refusing to release the economic modelling for its migration policy, but has already conceded that the aged care sector will be affected. If it wants to be taken seriously the Coalition must be transparent about how its proposed savage cuts to immigration numbers will affect the aged care, childcare and healthcare sectors.
227
91
13
241
11,731
Load more