@NICEGetInvolved

Public involvement team for @NICEcomms - we support people using services, carers & the VCS to influence and work with NICE. Here from 9 - 5, Mon- Fri.

 England, United Kingdom
nice.org.uk/about/nice-communities/public-involvement/public-involvement-programme
Joined January 2015
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  • Following1.3K
  • Followers3.3K
1.9KMedia
Get Involved at NICE retweeted
Parkinson's UK@ParkinsonsUK16 Dec 2024
Two years ago, we followed Jo through her Deep Brain Stimulation (DBS) surgery. From managing symptoms to remembering to charge her device, in this update, Jo tells us how DBS has changed her life, and the impact it's had on her Parkinson's.
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Get Involved at NICE retweeted
NICE
@NICEComms8 Nov 2024
Great to see the positive effect of our recommendation for Ava Rose⤵ Find out more about #HybridClosedLoop systems for #type1diabetes, which we recommended a year ago⤵ nice.org.uk/news/articles/ni… #T1D #DiabetesAwarenessMonth xitter.cf/parthaskar/status/1853…
Partha S Kar 🇮🇳🇬🇧🏏🎥
@parthaskar5 Nov 2024
About a year ago? We said we would fight Today? Amazing Ava Rose gives us an update Every child- without exception - who has #T1D will have this option And we are nearly half way there already A promise made…. #gbdoc “That’s my pancreas” 🥹 #DiabetesAwarenessMonth
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NICE (@NICEComms) is conducting an anonymous survey about your experience with intermittent catheters for long-term urinary management in adults 📋📊 The survey and more information can be found here: nice.welcomesyourfeedback.ne…
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Get Involved at NICE retweeted
NICE
@NICEComms18 Jul 2024
Be a part of our committee looking at compression products for wound care (leg ulcers), what matters when using these? 📅We’re looking for people with lived experience to apply by Friday 26 July: nice.org.uk/get-involved/our…
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Get Involved at NICE retweeted
NICE
@NICEComms22 Jul 2024
We're seeking vital insight from those with lived experience of using intermittent catheters for urinary management. Your feedback will be essential for our late stage assessment. Application deadline: Tuesday, August 6⬇️ nice.org.uk/get-involved/our…
Graphic showing photo of people in a meeting room setting and the following text: Join our committee We are looking for lay members to join the intermittent catheters for urinary management in adults committee.

ALT Graphic showing photo of people in a meeting room setting and the following text: Join our committee We are looking for lay members to join the intermittent catheters for urinary management in adults committee.

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Get Involved at NICE retweeted
NICE
@NICEComms14 Mar 2024
We want to increase and improve how we capture the experiences of the people and communities we serve, gaining valuable insights that can develop and improve health and care services. Give us your views on our draft strategy: nice.org.uk/guidance/indevel…
Graphic showing photo of a person typing on laptop keyboard and following text: Have your say on the new people and community involvement and engagement draft strategy. Give us your views by 27 March.

ALT Graphic showing photo of a person typing on laptop keyboard and following text: Have your say on the new people and community involvement and engagement draft strategy. Give us your views by 27 March.

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Get Involved at NICE retweeted
NICE
@NICEComms19 Feb 2024
We want to hear your views on our new people and community involvement and engagement draft strategy⬇️ nice.org.uk/guidance/indevel…
Graphic showing photo of a person typing on laptop keyboard and following text: Have your say on the new people and community involvement and engagement draft strategy. Give us your views by 27 March.

ALT Graphic showing photo of a person typing on laptop keyboard and following text: Have your say on the new people and community involvement and engagement draft strategy. Give us your views by 27 March.

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Get Involved at NICE retweeted
NICE
@NICEComms11 Jan 2024
We're looking for people with experience of digital platforms for self-management of COPD, and an understanding of issues important to patients, people using services and the public to join our committee as a lay member. 📅Apply by 18th Jan: nice.org.uk/get-involved/our…
Graphic showing photo of committee setting and the following text: Join our committee. We are looking for lay members to join the NICE committee on digital platforms for self-management of COPD.

ALT Graphic showing photo of committee setting and the following text: Join our committee. We are looking for lay members to join the NICE committee on digital platforms for self-management of COPD.

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What should the committee looking at #ticdisorders understand about the people who have them? Can you tell us what matters to children and young people with tic disorders, when looking at how digital health tech could support?#tics #tourettes #digitalhealth @tourettesaction
Get Involved at NICE@NICEGetInvolved14 Nov 2023
We would love to hear from you if you're interested in sharing your experience of tic disorders, email [email protected] with your questions. #tics #tourettes #digitalhealth #NICEguidance
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Get Involved at NICE retweeted
Arrhythmia Alliance@KnowYourPulse15 Nov 2023
Now is the time to Know Your Pulse to know your heart rhythm. It could save your life: loom.ly/XPE2pYs #DetectProtectCorrect #AF #PulseCheck #KYP #KnowYourPulse #KnowYourRhythm #atrialfibrillation #Afib #DetectAF
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Get Involved at NICE retweeted
NICE
@NICEComms17 Nov 2023
Today we’ve published draft updated guidelines for menopause that: 🔹outline new recommendations around CBT for treating some menopause symptoms 🔹give more information about HRT and overall health outcomes. Find out more⬇️ nice.org.uk/news/article/nic…
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We urgently need O negative donors to book an appointment to give blood 🩸 and help us save lives this winter. Just one donation can help save up to 3 lives. 💻 Go online 📞 Phone 🏥 Visit your local donor centre #GiveBlood #SaveLives #NHS #TheGiftThatKeepsOnGiving
We urgently need O negative donors to book appointments to donate blood.

ALT We urgently need O negative donors to book appointments to donate blood.

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Get Involved at NICE retweeted
Asthma + Lung UK@asthmalunguk15 Nov 2023
Today is #WorldCOPDDay! Chronic obstructive pulmonary disease (COPD) is the name for a group of lung conditions where it’s difficult to breathe air out of the lungs. Do you want more information on COPD? Head to our website to find out more: bit.ly/479cOut
A man wearing an oxygen mask is hugging his daughter. Next to him is the text world copd day.

ALT A man wearing an oxygen mask is hugging his daughter. Next to him is the text world copd day.

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Get Involved at NICE@NICEGetInvolved2 Nov 2023
A big thank you to those who have answered this survey already! We appreciate the time you have taken to tell us about what you think about #digitaltherapies and apps for managing #psychosis. The anonymous survey is open until 19 Nov, please share @MindCharity @Rethink_
Get Involved at NICE@NICEGetInvolved18 Oct 2023
NICE is looking at #digitaltherapies and apps for managing #psychosis and preventing #relapse. If you, or someone you care for, have experience of psychosis - used tech or apps or not – we’d love to hear your views. nice.welcomesyourfeedback.ne… #GetInvolved @MindCharity
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Get Involved at NICE retweeted
Mind
@MindCharity2 Nov 2023
Times are tough. Waiting lists are long. But we have some good news. We’re offering a free 6-week mental health support course. You don't need a GP referral to sign up for our one-to-one supported self-help service. Sign up👇🏼 bit.ly/3tNUBUd
A graphic promoting our supported self-help offer. In bold blue on a lime green background it says: "Free mental health support". In light blue underneath, it says: "Sign up today".

ALT A graphic promoting our supported self-help offer. In bold blue on a lime green background it says: "Free mental health support". In light blue underneath, it says: "Sign up today".

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NICE is looking at #digitaltherapies and apps for managing #psychosis and preventing #relapse. If you, or someone you care for, have experience of psychosis - used tech or apps or not – we’d love to hear your views. nice.welcomesyourfeedback.ne… #GetInvolved @MindCharity
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We'd like to know what people thought of using #Gaitsmart for their risk of #falls, or people having #hip or #knee replacements via our survey: nice.welcomesyourfeedback.ne… Deadline of 2 Nov if you please @WeAreARMA @VersusArthritis @Arthritis_ACTN Pls could you share? #GetInvolved
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Get Involved at NICE retweeted
Rethink Mental Illness@Rethink_19 Oct 2023
🔀 Share if you agree.
An orange background with a Rethink Mental Illness logo at the bottom. Words in the middle read: We need a Mental Health Act that is fit for the 21st Century.

ALT An orange background with a Rethink Mental Illness logo at the bottom. Words in the middle read: We need a Mental Health Act that is fit for the 21st Century.

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Get Involved at NICE retweeted
NICE
@NICEComms13 Oct 2023
Sign up to the @WorldEBHCDay ‘Introduction to evidence and global health equity’ webinar on 19 October. You’ll hear from key experts about how people working within and across global evidence ecosystems can embed and prioritise equity🌍 eventbrite.com.au/e/introduc…
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Get Involved at NICE retweeted
Mind
@MindCharity10 Oct 2023
Today is #WorldMentalHealthDay 🌍 And it’s time for action. Take that first step to getting help. Or share this post and help us reach someone who really needs to see it 💙
Reach out this World Mental Health Day Mind logo with phone number 03001233393 open 9am-6pm weekdays. Samaritans logo with phone number 116 123 always open Campaign Against Living Miserably logo with phone number 0800 58 58 58 open 5pm- midnight If you're in Wales: C.A.L.L logo with phone number 0800132 737 always open If you're under 25: The Mix logo with phone number 0808 808 4994 open 4pm -11pm weekdays

ALT Reach out this World Mental Health Day Mind logo with phone number 03001233393 open 9am-6pm weekdays. Samaritans logo with phone number 116 123 always open Campaign Against Living Miserably logo with phone number 0800 58 58 58 open 5pm- midnight If you're in Wales: C.A.L.L logo with phone number 0800132 737 always open If you're under 25: The Mix logo with phone number 0808 808 4994 open 4pm -11pm weekdays

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