The only patient organisation for families living with #parathyroid conditions in the UK & Ireland. #rare #hypopara #hyperpara Tweets by @lucyweigall
East Grinstead, UK
Joined May 2009
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Parathyroid UK retweeted
I am retiring as volunteer CEO of @ParathyroidUK today after 20 years so I just wanted to thank you all for your wonderful support and say a heartfelt goodbye. It’s been the privilege of my life.
Did you know that people with hypoparathyroidism may experience a range of physical, cognitive & emotional symptoms that can significantly impact their quality of life?
We’re raising awareness with @AscendisPharma’s #SeedsofChange campaign:
seeds-of-change.com/UK/b
Parathyroid UK retweeted
$AZN acquired drug shows positive results in treating hypoparathyroidism, offering new hope for patients with this rare condition: ibn.fm/OnFCi
#AstraZeneca #Biopharma #Hypoparathyroidism #ClinicalTrials #HealthcareInnovation
Another great conference! Thanks to @Soc_Endo for having us, to all our dedicated medical advisors & speakers, to our friends at i@AscendisPharma and to our brilliant volunteers who, as patients with a rare condition, are just amazing for keeping going. #hypopara #SfEBES2025
Thank you @DrNeilGittoes!
We’ll be excited to see @DrNeilGittoes present these encouraging results from the phase 3 Yorvipath by trial by @AscendisPharma at the SfE BES endocrine conference in Harrogate next month.
endocrine-abstracts.org/ea/0…
We were very proud to have our poster accepted at #SfEBES2025 showing results of our patient survey on the burden of medication regimens in #hypoparathyroidism. Thank you to the brilliant doctor @AtiyaKenworthy for representing us. @AscendisPharma @Soc_Endo
Parathyroid UK retweeted
Final day at #SfEBES2025 with Chair of @Soc_EndoNurses Louise Breen's talk on the launch of the 3rd edition of the @Soc_Endo Competency Framework for Adult Endocrine Nursing & SfE's work with Patient Support Groups.
🩺 Read P279 - Adult Endocrine Nursing: endocrine-abstracts.org/ea/0…
Parathyroid UK retweeted
@AscendisPharma along with @ParathyroidUK and the @Soc_Endo unveiled a butterfly mural on Monday. The artwork reflects the lived experiences of individuals with a serious condition called #hypoparathyroidism, commonly known as #hypopara.
rarerevolutionmagazine.com/b…
Excellent! @DrFahadArshad
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Dr Narendra Reddy introduced the new #UKHypoparathyroidismRegistry at the Bone & Calcium Network meeting today supported by Tania Gelmetti from Parathyroid UK. A long awaited and much needed resource #SfEBES2025
The #Hypopara Butterfly was launched today at the #SfEBES2025 . Visit our stand to find out more.....
We’re excited to be at the #SfEBES2025 this week where we'll be supporting the @AscendisPharma #SeedsofChange awareness campaign and unveiling the #Hypopara Butterfly, presenting our patient survey results and talking about the UK HypOparathyroidism registry. Do visit our stand.
Welcome to the #SfEBES2025!👋
We can't wait to connect with our community for this year's premier event, advancing both research and clinical practice.
Let us know which sessions you're most excited about, and don't forget to tag us @Soc_Endo!
It's @rarediseaseday ! A time to raise awareness for all of those living with rare diseases. We are proud to support such a wonderful cause.
We’ll be excited to see @DrNeilGittoes present these encouraging results from the phase 3 Yorvipath by trial by @AscendisPharma at the SfE BES endocrine conference in Harrogate next month.
endocrine-abstracts.org/ea/0…
Many thanks to @DrNeilGittoes and @drdavidbull @TalkTV for raising awareness of #PrimaryHyperparathyroidism. Watch here at 2.51 watch.talk.tv/watch/replay/1…
Chronic #hypoparathyroidism is associated with low bone turnover & abnormally dense bone structure but new study finds 35% of postmenopausal women have #osteoporosis and recommends skeletal monitoring in postmenopausal women and men over 50 with hypopara link.springer.com/article/10…
#WorldCancerDay Be aware that rising levels of #thyroidcancer also means rising levels of post surgical #hypoparathyroidism. Choose your surgeon wisely parathyroiduk.org
Parathyroid UK retweeted
Although hypoparathyroidism management practices in Eastern and Western countries share similarities, there are significant differences, particularly in access to parathyroid hormone (PTH) replacement therapy.
Read more: medjournal360.com/hypoparath…
#Hypoparathyroidism #Thyroid
Parathyroid UK retweeted
Recent research by Jino Johns Lalitha et al. @OffCMCVellore analyses the risk factors of #hypoparathyroidism and #hypocalcaemia after total #thyroidectomy.
Read it here 👉 doi.org/10.1530/EO-24-0022
