The UK charity for all affected by Addison’s disease & adrenal insufficiency. 🗓 29 May: #AddisonsDiseaseDay 🎉#TeamAddisons 📲Learn more: #AddisonsQA

UK & Ireland
Joined February 2015
People with adrenal insufficiency deserve safer adrenal crisis care. Adrenal crisis is a life-threatening emergency that needs a time-critical injection of hydrocortisone. Other life-threatening conditions have auto-injectors or pre-filled syringes. Adrenal crisis doesn’t. (1/3)
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Don’t forget to change your clocks! Tonight in the UK the #ClocksGoBack ⏰ Here are some reminders for those with Addison's disease and adrenal insufficiency: 🌙 Change your clocks before you go to bed so that tomorrow your morning dose will match the new time of day. (1/2)
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💊 On Sunday morning, make sure the clocks in your house are correct to avoid taking future doses at the wrong time. 🔔 Check any alarms you have set for remembering doses. 🕒 If you're on hydrocortisone infusion pump therapy, remember to change the time on your pump. (2/2)
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Members, you’ve got mail! Our Autumn ‘Keeping You Posted’ newsletter is here. Inside: 🏛️Safer Adrenal Crisis Care campaign update 🚑How our training helped on a 999 call 📋Sick Day Rules leaflet 🤝Manchester Get-Together & #URHYTHM Not a member? Join👉 loom.ly/UmUT4bM
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We’re raising GP awareness of Addison's & adrenal insufficiency at the RCGP Annual Conference with our new campaign: 👁️ Spot. Recognise the signs of adrenal insufficiency. 🩺 Stabilise. Manage the condition safely. 🫴 Support. Help patients get the care they need. @rcgp @RCGPAC
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Addison's Disease Self-Help Group (ADSHG) retweeted
Please retweet far and wide. It's not only a charity near to my heart it's also a life saver for me!
We’re taking our campaign for safer adrenal crisis care to Parliament📣 We need you! MPs are more likely to attend if constituents ask. Will you invite yours? ✏️ Send our template letter to your MP➡️ loom.ly/-X822dA In adrenal crisis, every second counts. Thank you.
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This October for #PituitaryAwarenessMonth, we're supporting @Pituitary_org's Symptoms in the Spotlight campaign, raising awareness of the hidden challenges of living with endocrine conditions🧡 🔦 Visit their website to get involved & join online events ➡️loom.ly/69jE_7g
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Addison's Disease Self-Help Group (ADSHG) retweeted
People with adrenal insufficiency deserve safer adrenal crisis care. Adrenal crisis is a life-threatening emergency that needs a time-critical injection of hydrocortisone. Other life-threatening conditions have auto-injectors or pre-filled syringes. Adrenal crisis doesn’t. (1/3)
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Addison's Disease Self-Help Group (ADSHG) retweeted
The louder our voice in Westminster the more likely we are to succeed. All who can, please invite your MP. 🙏🏻
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Addison's Disease Self-Help Group (ADSHG) retweeted
💯 I've had crises where I would have been done if it not for having someone to administer as I was utterly unable.
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People with adrenal insufficiency face a complex process of 12+ steps to prepare an injection, often in pain, vomiting & experiencing brain fog. 1 in 200 adrenal crises are fatal. Patients' lives are at risk, & hospital admissions increase because of delayed treatment. (2/3)
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We’re campaigning for Safer Adrenal Crisis Care & calling on governments across the UK to act. Write to your MP asking them to attend our Parliamentary drop-in on 25 Nov. Use our letter templates ➡️ loom.ly/S1MVWNE Swipe. Share. Write to your MP. Thank you. (3/3)
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Raise awareness this #InvisibleDisabilitiesWeek 📢 People with hidden conditions like Addison’s & adrenal insufficiency may be struggling with symptoms, but you wouldn’t know it by seeing them in the street. 💬 Share your experiences of living with a non-visible condition ⬇️
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Addison's Disease Self-Help Group (ADSHG) retweeted
Replying to @GiuliaBould
Thank you @GiuliaBould! Here's how people can support the campaign for Safer Adrenal Crisis Care. 🏛️Invite MPs to our Parliamentary drop-in 🙋Volunteer skills or expertise to help grow our campaign. ✨Donate or fundraise so we can do more! Find out more➡️addisonsdisease.org.uk/advoc…
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🤧 Get ready for cold and flu season by using our 3-month Prescription Request Letter to ensure you have enough of your steroid medication if you become unwell and need to updose as per the Sick Day Rules. 📄 Download and share with your GP: addisonsdisease.org.uk/adren… @Soc_Endo
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Addison's Disease Self-Help Group (ADSHG) retweeted
Replying to @Bill_Esterson
@Bill_Esterson @andyburnham @YvetteCooperMP I have had Addisons disease for over 28 years! Please attend the drop in about safer adrenal crisis care! This will save lives! #addisonsdisease #adrenalcrisis
We’re taking our campaign for safer adrenal crisis care to Parliament📣 We need you! MPs are more likely to attend if constituents ask. Will you invite yours? ✏️ Send our template letter to your MP➡️ loom.ly/-X822dA In adrenal crisis, every second counts. Thank you.
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We’re taking our campaign for safer adrenal crisis care to Parliament📣 We need you! MPs are more likely to attend if constituents ask. Will you invite yours? ✏️ Send our template letter to your MP➡️ loom.ly/-X822dA In adrenal crisis, every second counts. Thank you.
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This #WorldMentalHealthDay, watch our webinar with @RaremindsUK, which offers practical tools and advice, and covers a range of key topics. 💭 Feelings around your diagnosis ❓ Uncertainty of the future 👨‍👩‍👧‍👦 Impact on closest relationships Plus, much more! youtube.com/watch?v=YPnmRkmk…
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✨What a day! In September, our Manchester Member Get-Together welcomed our community to learn, share & connect. Catch up on the day, from emergency hydrocortisone injection training & expert medical talks to meeting others with Addison's disease & adrenal insufficiency. (🧵1/5)
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Attendees practised emergency hydrocortisone injections in a hands-on session led by endocrine nurses Joanne Brown @Soc_EndoNurses & Amy Glover. A life-saving skill to prevent or treat adrenal crisis when every second counts: addisonsdisease.org.uk/injec… (🧵4/5)
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It’s the generosity, loyalty & ongoing support of our members that allow us to arrange events like this one, which help many people. Haven't been to a Member Get-Together yet? We'd love to welcome you in 2027. 💜 Join us 👉 loom.ly/UmUT4bM (🧵5/5)
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