
ME/CFS vault. Research @CiaranJ_Farrell/@Needles_Toosay, curator @Needles_Toosay. Our research, if not it's credited. Reposts not necessarily endorsements etc.
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ALT A social media post by Diane O’Leary dated Jan 20. The text reads: "I had a similar encounter with Wessley, who was selected as a reviewer for an article on ME/CFS I submitted to Journal of Medical Ethics. Reviewers messed with that thing for a full year! Finally we got it into a form that everyone was excited about - even Wessley - but he had raised some serious legal concerns along the way. Just when the paper was enthusiastically recommended by all reviewers, JME changed editors and the new one flatly refused to publish it. He wouldn’t admit that the legal issues worried him, so there was literally no justification. He just would not budge. It was an appalling thing to do to an author after demanding a year of work on an article. I sent it to Bioethics then, along with the comments and final refusal to publish at JME in spite of an unusual level of enthusiasm from all reviewers. They accepted it immediately, with no revisions. "

ALT A screenshot of a text-based post or comment. The text reads: "The recommendations I made in that article - along with many of the wise recommendations made by the ME community in the UK - were ultimately embraced in the new NICE guideline. I have often wondered whether Wessely recommended my paper knowing that, in the end, his legal concerns would override it. For what it’s worth, I’m guessing the world would be better off overall if you went ahead and published that silenced material. I don’t know the legal issues you’re dealing with, but the power he has over ME discourse is certainly not consistent with usual standards for peer review." At the bottom, there is a heart icon next to the text "LIKE (3)" and a three-dot menu icon.

ALT A promotional graphic with a dark, blurred gradient background. The text reads: "'These are not verifiable conditions' Thoughts on Emily Mendenhall's new book 'Invisible Illness: a history, from hysteria to Long Covid' - by Dr Elke Hausmann. Long Covid Advocacy." The bottom includes the website "LONGCOVIDADVOCACY.SUBSTACK.COM" and a Substack logo.























