ME/CFS vault. Research @CiaranJ_Farrell/@Needles_Toosay, curator @Needles_Toosay. Our research, if not it's credited. Reposts not necessarily endorsements etc.

Joined June 2020
May I remind new followers that there's now approximately three years' worth of tweets in this account. Many of the tweets feature rarely seen or forgotten bits of 'M.E.' history for you to study so do go through the archive if you have the time.
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Dr Diane O'Leary has made an excellent comment on Emily Mendenhall's Substack, revealing she had a similar experience with Wessely. We agree that the world would be a better place if the silenced material could be published.
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Royal Free 1955 retweeted
Cluster of mysterious neurodegenerative disorders in New Brunswick is due to various misdiagnoses + FND (AKA mystery neurological symptoms) according to very aged UK neuro/psych MDs. No need for further investigation!
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Royal Free 1955 retweeted
Replying to @LongCovidAdvoc
Emily Mendenhall explains what happened here: emilymendenhall.substack.com…
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Replying to @emmiskyten
It's seems to have been a junior editor but yes, it's not how publishing or academia should be working.
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Source:
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“Wessely read a version of the writing & threatened to sue me if it didn’t include the other side.” - Mendenhall This raises serious questions about academic pressure, power, and whose voices shape the narrative around ME and Long Covid.
🗞️We have a fascinating article by guest writer Dr Elke Hausmann on Mendenhall's new book 'Invisible Illness'. Suffice to say there are complexities & controversies... 🖇️ tinyurl.com/vct9n5ez
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Royal Free 1955 retweeted
The Central New Jersey Home News, US. 7th January 1985. Doesn’t actually say either #chronicfatiguesyndrome or #myalgicencephalomyelitis but does refer to #chronicfatigue and #ebv.
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Royal Free 1955 retweeted
The Sydney Morning Herald. 7th January 1988. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
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Royal Free 1955 retweeted
From Bristol's Evening Post (England) on this day thirty-eight years ago - 7th January 1987. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
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Royal Free 1955 retweeted
The Palladium-Item, Indiana, US. 6th January 1995. #mecfs #myalgice #cfsme #myalgicencephalomyelitis
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Royal Free 1955 retweeted
The Poughkeepsie Journal, US. 6th January 2009. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
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Royal Free 1955 retweeted
The Kingston Whig-Standard, Canada. 6th January 1990. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
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Royal Free 1955 retweeted
The Standard-Star, New York, US. 6th January 1987. #ebv.
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Royal Free 1955 retweeted
The Guardian, UK. 6th January 2023. #longcovid #myalgicencephalomyelitis #myalgice #cfsme #mecfs
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Royal Free 1955 retweeted
About #gulfwarsyndrome #gws but mentions #myalgicencephalomyelitis #myalgice #cfsme #mecfs. The Daily Telegraph, UK. 6th January 2001.
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Royal Free 1955 retweeted
The Independent, UK. 6th January 2010. #xmrv #myalgicencephalomyelitis #cfsme #myalgice #mecfs
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Royal Free 1955 retweeted
Slightly off-topic but perhaps relevant nonetheless. From the Evening Standard, London. Dated 6th January 1988. The article is about Caroline Richmond. As early followers of this account may remember, that name has been mentioned here before and I am assuming it's the same one.
Royal Free 1955 retweeted
Reply to the Dr. Sarah David letter. GP Magazine, 6th January 1989.
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Royal Free 1955 retweeted
Another letter to GP Magazine about the Richmond article in December 88 from a name that you'll recognise. 6th January 1989.
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Royal Free 1955 retweeted
Letter about the Richmond 2nd December 88 article from a now familiar name to followers of this account. GP Magazine, 6th January 1989.
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