Our Mission: The Consortium seeks to improve care and outcomes for patients with rare stone diseases.
Joined May 2018
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Rare Kidney Stone Consortium retweeted
The hypothesis that normal HCO3 isn't the whole story with respect to acid handling is definitely out there (this ref from 2017):
ncbi.nlm.nih.gov/pmc/article…
@weddellite
Great work as usual - chipping away at the skeptics! Well done
Rare Kidney Stone Consortium retweeted
Just in, our paper on Kidney Transplant Outcomes in Patients with Adenine... : in Transplantation @RKSC12, @Landspitali and @uni_iceland journals.lww.com/transplantj…
Rare Kidney Stone Consortium retweeted
Most CKD patients die from CV disease. NIDDK says NHLBI must fund anything with CV endpoint. NHLBI won’t fund HD studies ergo there is no funding source for CV trials in ESKD. Catch 22! How do we move the needle and get NIH to fund research on a fundamental threat to our pts?
Rare Kidney Stone Consortium retweeted
"If doctors and nurses clocked out when their paid hours were finished, the effect on patients would be calamitous....The system knows it, and takes advantage." ... the hours were part of the profession before they were exploited nytimes.com/2019/06/08/opini…
New work this week of @LadaLadabl and @RKSC link.springer.com/article/. Proposing cutoffs for screening proteinuria to distinguish Dent Disease (DD) from other CKDs 10.1007%2Fs00467-019-04210-0@NYUnephro
Rare Kidney Stone Consortium retweeted
It's our birthday! The first RaDaR patient was recruited 9 years ago today, on the 18th January 2010. We've come a long way since then, with over 21,000 recruits from 97 hospitals. Many thanks to our supporters @Kidney_Research @kidneycareuk @PKDCharity @RenalAssoc @RenalRegistry
I’m going to support your kids someday soon - The topic clearly appeals to nephrons - Ben told me today that he interviewed a wildlife veterinarian about salt toxicity in beavers in coastal areas...THAT is nephrology!
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Very useful update on genetics of stones
On the genetics of common complex kidney stone disease from @runolfpa and co: link.springer.com/article/10…
And this comprehensive review of our work to develop new drugs for cystinuria by Amrik Sahota of @RutgersU ncbi.nlm.nih.gov/pubmed/3051… @weddellite @NYUnephro @NYUUrology
Interesting work by Dr. Larisa Kovacevic suggesting pathways of stone formation in people with cystinuria ncbi.nlm.nih.gov/pubmed/3051… @NYUnephro @NYUUrology
The Rare Kidney Stone Consortium favors genetic testing of stone formers and @johnasayer’s approach! (Ignore @weddellite, the man behind the curtain; he is confused and ambivalent)
Kidney stone genetics @nckrf @RenalRadar
link.springer.com/article/10…
Precison Medicine in stone formers - with thanks to Fay Hill and as always @weddellite
Rare Kidney Stone Consortium retweeted
@Kidney_Research funded research makes front cover up f The Journal!
@RKSC12 at the Conference on Clinical Research for Rare Diseases @NYUnephro @MayoClinic @HildaLinnet @weddellite @rarediseasesnet
With Amrik Sahota - presenting our Cystinuria research at rarediseasesnetwork.org/rese… @NYUnephro @NYUUrology @pharmakrysto @weddellite
