ALT Rare Action on the Road: Join us in Little Rock, Arkansas! Image of US Capitol with NORD Rare Action Network logo and tagline, "Alone we are rare. Together we are strong."

ALT Dozens of California rare disease advocates at the state capitol, preparing to speak to legislators

ALT California rare disease advocates at the state capitol, preparing to speak to legislators

ALT California rare disease advocates at the state capitol, preparing to speak to legislators

ALT California rare disease advocates at the state capitol, preparing to speak to legislators

ALT NORD Policy staff addressing rare disease volunteer advocates in California at the capitol in Sacramento

ALT Graphic titled "Policy Action Alert" featuring an image of the U.S. Capitol building in the background. Text invites to join an event in Sacramento, California, on Thursday June 27, for a Legislative Day of Action. The logo of NORD is displayed at the bottom with the tagline "Alone we are rare. Together we are strong."

ALT White background with text reading "NORD State Report Card" and "22 States Received a 'C' Grade on Reductions in Out-of-Pocket Prescription Drug Costs. See how your state ranks." To the right are four boxes with 3 orange check marks 1 purple "X" and an image of a yellow pencil.

ALT Hand clapping icon with text reading, "Thank you for protecting patients"

ALT Purple background with text reading "NORD State Report Card" and "NORD has released our annual State Report Card revealing trends in rare disease health care coverage. Learn where your state ranks." To the right are four boxes with orange check marks and an image of a yellow pencil.

ALT Photo of NORD Zebra mascot holding a Show Your Stripes sign in midtown Manhattan at night, with the Empire State Building in the background lit up in Rare Disease Day colors of purple, green, blue, and pink.

ALT Photo of Dr. Kristen Kingzett smiling confidently to camera.

ALT Blue background with orange ribbon on top left reading "Rare Community Spotlight" with NORD 40th anniversary logo the right. In the middle, white text reads, "It would have been so helpful to have had a virtual appointment to ask what exactly this disease is and what is the best way for me to manage it. I had to teach myself all of that. To be able to connect with a specialist would be so helpful and would give people the motivation to get on track and manage their illness. Judy A. Patient with IgA nephropathy." with image of Judy on right.

ALT Light blue background with text reading, "June Regional Policy & Advocacy Taskforce Meetings" listing out the regions and their meetings as follows: Region A Wed 6/28 12PM PST, Region B Thurs 6/29 2PM EST, Region C Mon 6/26 12PM EST, Region D Thurs 6/19 11AM EST.

ALT Blue watercolor background with NORD 40th anniversary logo and quote from Jeron H. Individual living with hemophilia: “NORD has been helpful by providing advocacy opportunities for rare disease patients like myself. My hope is to reach out to others who are experiencing difficulties with their rare disease or with getting care for their rare disease, and to help change the barriers they’re facing.”

ALT Quote from Tabitha H., Patient with EDS and POTS. “This is a chance for our stripes to become visible and for people to learn about something that might affect their loved ones, or even themselves one day.” Black and white photo of Tabitha. Blue background with pink ribbon reading "Rare Disease Day Community Stories" with NORD and Rare Disease Day logos.

ALT Quote from Sarah S., Parent to child with CLIFAHDD. “When you share your rare disease story, it can truly change somebody's world.” Photo of Sarah and her daughter. Blue background with pink ribbon reading "Rare Disease Day Community Stories" with NORD and Rare Disease Day logos.

ALT Quote from Clara W., Patient with neurodegenerative langerhans cell histiocytosis. Image of zebra in lieu of photo. “It makes me feel like I belong somewhere, even though rare illnesses are such an individual thing. I still feel that I belong somewhere, and I love that feeling.“ Blue background with pink ribbon reading "Rare Disease Day Community Stories" with NORD and Rare Disease Day logos.

ALT Quote from Melissa A., Patient with idiopathic hypersomnia. “It is vital to bring attention to diseases that are largely unheard of, but which profoundly affect patients, and if they have one, their families.” Photo of Melissa with a big smile. Blue background with pink ribbon reading "Rare Disease Day Community Stories" with NORD and Rare Disease Day logos.