Welcome to the official X handle for Sickle Cell Alliance Uganda (SCAU) , a united platform bringing together organizations committed to improving the lives of people living with sickle cell disease across Uganda. #SickleCellAllianceUganda #TogetherForSickleCell #OneVoice
Sickle Cell Alliance Uganda -SCAU retweeted
So, today after church, I checked social media during the one hour I set aside for it each day—and found a wonderful surprise.
I learned that Sanius Health had recognized me as one of the top 80 influential advocates and people in sickle cell research 2027.
Sickle Cell Alliance Uganda -SCAU retweeted
Well in Mr. Isaac Okello 👏🔥 , the Executive Director of @RaisingHopeInt2 and President of the Sickle Cell Alliance @SCAUuganda
Congratulations on being named among the Top 80 Most Influential Advocates and People in Sickle Cell Research 2027 recognized by Sanius Health UK.
Your efforts towards better care and management for people living with Sickle Cell Disease don’t go unnoticed .🎊🎉
CELEBRATING GLOBAL RECOGNITION! 🔥🎉
Join us in congratulating Mr. Isaac Okello, President of the Sickle Cell Alliance Uganda (SCAU), on being named among the Top 80 Most Influential Advocates and People in Sickle Cell Research worldwide by Sanius Health UK.
Thank you for the great work you’re doing @uscrfuganda 👏
Happening now: find us today at Lutengo Primary School, Lutengo Mukono as we carry out Sickle Cell screening, advocacy, awareness and counselling at a Medical Camp hosted by Rotary Club of Kiwatule
We are grateful for the effort that Rotary Club of Kiwatule has added on our fight for a Sickle Cell Free Uganda.
Remember a Sickle Cell Free Uganda starts with you knowing your status.
Sickle Cell Alliance Uganda -SCAU retweeted
Replying to @MukisaFound
@MukisaFound and Berakhah medical center in partnership with Friends Sicklecell Foundation Uganda call upon community members around Wakiso, Kasengejje, Najjemba and surrounding areas on 31st-10-2026 for a one day medical camp.
@OfSicklers will conduct Sicklecell disease Awareness and free voluntary sicklecell screening to members of the community.
Sickle Cell Alliance Uganda -SCAU retweeted
Proud to join the Gulu Mental Health Run under the theme “Lived Experiences Heard: Real Voices, Real Change.”
For the sickle cell community, mental health matters just as much as physical health. Beyond pain crises, warriors often face anxiety, stigma & emotional exhaustion. – at Gulu, Uganda
Sickle Cell Alliance Uganda -SCAU retweeted
We have had the Stakeholder's Meeting where the Ministry of health has Launched the National Sickle Cell Disease Research Agenda and Development of the National Sickle Cell Prevalence Survey Protocol
General objective was to convene stakeholders to officially launch the National Sickle Cell Prevalence Su and its protocol development, and to begin the National SCD Research Agenda.
The objectives are
1. Share current evidence on the SCD burden and recognise the researchers behind it
2.Identify and prioritise SCD research across the care continuum
3.Draw lessons from UPHIA, malaria surveys and US3 to guide the survey design
4. Launch the survey; announce the p team and stakeholder roles
5. Agree a coordination mechanism, roadmap and timelines for the research agenda
6. Strengthen collaboration and data sharing among MoH, academia and partners
This Launch was officiated by the State Minister for Primary Health Care; Hon. Dr. Charles Ayume in the presence of Ministry of Health, Partners, University representatives, CSOs, Medical Personnels and researchers whose primary goal is Sickle Cell Disease.
@MinofHealthUG @Microhaem
@MakCHS_SOM @RaremarkFdn
@PCAUganda @cphluganda @MbararaUST @CIUuga @MulagoReferral @bayloruganda @TCHGlobalHealth @RaisingHopelnt2 @qcil_uganda2 @GHU_Official @jcrc_official1 @NPA_UG @NutritionistKD @UncdaUg
Sickle Cell Alliance Uganda -SCAU retweeted
Happening now: Stakeholder's Meeting on the National Sickle Cell Disease Research Agenda and Launch of the Development of the National Sickle Cell Prevalence Survey Protocol by the Ministry of Health at Kampala Marriott Hotel.
@MinofHealthUG @Microhaem @MakCHS_SOM @RaremarkFdn @PCAUganda @cphluganda @MbararaUST @CIUuga @MulagoReferral
Sickle Cell Alliance Uganda -SCAU retweeted
HAPPENING NOW | Marriott Hotel, Kampala 🇺🇬
Today, the @MinofHealthUG and partners are convening stakeholders to shape the future of sickle cell research in Uganda. The meeting covers the National Sickle Cell Disease Research Agenda and the official launch of the development of the National Sickle Cell Prevalence Survey Protocol.
Today's goals:
🔹 Agree on a research coordination mechanism, a roadmap and stakeholder commitments.
🔹 Launch development of the National SCD Prevalence Survey Protocol and Research Agenda, and set up the protocol development team
🔹 Identify and prioritize key research questions, including on other congenital and inherited conditions
🔹 Share the latest evidence on the burden of SCD in Uganda and honour the researchers who built it
Good data leads to better policy, and better policy leads to better lives for people living with sickle cell. 💛
#SickleCellUganda #SCDResearch #EndSickleCell #DataForHealth
Sickle Cell Alliance Uganda -SCAU retweeted
We continue to support our warriors with the best possible support, today we outsourced food for them. @SCAUuganda
Sickle Cell Alliance Uganda -SCAU retweeted
We have relocated!
Find us at:
Plot 111, Block 220, Kyambogo Road, Ntinda, next to Arch Apartments, Kampala
📞 +256 772 745 057
✉️ [email protected]
Same mission. Same hope. New home. 🙏
#RHIF #BridgingSickleCellGaps #SickleCellUganda #SickleCellAwareness #NewHome #Ntinda #Kampala
Sickle Cell Alliance Uganda -SCAU retweeted
Behind every brave face is a story we must learn to understand.
Let’s tackle sickle cell disease together.
Let us replace stigma with understanding.
Let us replace misinformation with education.
Let us replace neglect with compassion and action.
tacklesicklecellafrica.org – at Gulu, Uganda
Sickle Cell Alliance Uganda -SCAU retweeted
Turning the energy of sport into knowledge, testing and community action. Team Friends is committed for a powerful pray for sickle cell awareness.
Sickle Cell Alliance Uganda -SCAU retweeted
💉❤️ ONE SIMPLE TEST CAN MAKE A LIFETIME OF DIFFERENCE!
Imagine planning your future, falling in love, starting a family, and pursuing your dreams. Now imagine discovering that a simple screening could have helped you make more informed decisions about your health and the future of your loved ones.
Sickle Cell Disease affects many families, but knowledge is a powerful tool. Knowing your sickle cell status helps you understand your health, make informed reproductive decisions, and protect future generations through awareness and early intervention. ❤️
That is why the Uganda Sickle Cell Rescue Foundation (USCRF), together with its partners, invites you to take advantage of our FREE Sickle Cell Screening!
📅 Date: Wednesday, 28th October 2026
⏰ Time: 9:00 AM – 4:00 PM
📍 Venue: BMK House, First Floor, Plot 4–5, Nyabong Road, Wampewo Avenue, Kampala (near Hotel Africana).
📞 Call: 0750956008 for more information.
Don't wait until sickle cell affects your family to take action. Whether you are young or old, single or married, knowing your status matters.
❤️ Come and know your status. Encourage a friend, bring a loved one, and help us build a community that is informed, empowered, and free from preventable suffering caused by sickle cell disease.
Together, We Can Fight Sickle Cell! ❤️🖤
#FreeSickleCellScreening #KnowYourStatus #SickleCellAwareness #USCRF #TogetherWeCanFightSickleCell
Sickle Cell Alliance Uganda -SCAU retweeted
Support us to acquire a dedicated outreach vehicle for our sickle cell and hemophilia activities at @TackleSickle in Northern Uganda.
buymeacoffee.com/derrickmedi… – at Gulu, Uganda
Sickle Cell Alliance Uganda -SCAU retweeted
Today we celebrate a life of a sickle cell warrior and powerful Sickle Cell Advocate
Sickle Cell Alliance Uganda -SCAU retweeted
Replying to @TackleSickle
@TackleSickle will be there.
Recognizing Sickle Cell Disease asa significant cause of mental health challenges both to warriors and their caregivers.
Sickle Cell Alliance Uganda -SCAU retweeted
Please Note📌
Official Registration link to the Sickle Cell Alliance Uganda ⬇️
ee.kobotoolbox.org/x/vGo8Vpi…















































