@SaimeFulya

Children and Young People Diabetes Lead NHSE | Paediatrician | Liverpool ♥️🐶🪴

Joined February 2015
  • Tweets866
  • Following358
  • Followers620
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About a year ago? We said we would fight Today? Amazing Ava Rose gives us an update Every child- without exception - who has #T1D will have this option And we are nearly half way there already A promise made…. #gbdoc “That’s my pancreas” 🥹 #DiabetesAwarenessMonth
Partha S Kar 🇮🇳🇬🇧🏏🎥
@parthaskar18 Nov 2023
A wonderful,yet poignant video And why we fight with everything to try & ensure ALL children can have this #ClosedLoops #T1Diabetes We aim to start ASAP (thank you @NICEComms) And why scientists must find a cure x (Shared with permission of family) "It's my superpower..." 🥹
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‘The future for children with type 1 diabetes is bright’ quoted by @SaimeFulya at the paediatric national networking forum London @DiabetesNNF
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Paediatric Diabetes National Networking Forum! Great to see so many people here for this insightful day, a huge thanks to all our amazing speakers and sponsors for making this day possible! We hope you enjoy🤩 #Diabetes #London #T1D #Paediatrics #NHS
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1. 🚀 Exciting News! We’re launching the new #NPDA Dashboard, providing timely updates on paediatric #diabetes services. Stay tuned for the latest data and insights! rcpch.ac.uk/resources/NPDA-d…
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Those with #T1Diabetes & carers will understand the significance of this tweet As will relevant clinicians “What HCL system is now in the cost effective framework as of 10/7/24?” Answer: ALL of them Access is important As is choice It’s been a long exhausting road #T1D 💙
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Thanks to everyone who joined us this lunchtime for our introduction to the GIRFT CYA diabetes workstream 🙏And to our fantastic line-up of speakers @SaimeFulya @DrDita @GerryRaDrGMagic @parthaskar @emma_page1 & Lucy Holmes Recording coming soon: bit.ly/47QwMea
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640 people have registered so far – make sure you don’t miss out! Join our webinar to hear how GIRFT’s new workstream aims to tackle variations in care and outcomes 🗓️20/6 ⏰1.00 pm Register now: 🔗 bit.ly/3Vqzd2Q
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#TAD2024 team A humbling surprise at the end A national role is amazing A video titled “Thank You Partha” developed by those living with #T1D & a standing ovation for work done ? Beyond one’s wildest dream Unquestionably Speck of dust or two in the air today You guys 🥹
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A special moment. Thanking “the boss” - for what he’s done for each and every person living with #type1diabetes on these shores 👏 This picture will do the rounds….. Sometimes an image speaks a thousand words. @parthaskar #TAD2024 @TADtalkEvents
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It's the second pilot of our new diabetes workstream for children & young adults this pm, meeting w/ colleagues @ULHT_News... focusing on access to tech, transition from paediatric to adult services & workforce Read more: bit.ly/3HtcA5Z @parthaskar @drdita @SaimeFulya
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• Children and Young People transition pilots now moving into evaluation phase • Healthy Living has 40,000+ users with 35% of GP practices now referring • First ever National Diabetes Experience Survey launched #DUKPC @DiabetesUKProf
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Great to see @ClareHambling showcase our children and young adults diabetes work!
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2019 #NHSLongTermPlan promises for #T1D: 1. 20% to get #Libre 2. All🤰🏾to get #CGM 3. Online self management programme for all 2024: 1. 97% 2. 98% 3. Free via @DigiBeteUK @MyWayDigital HbA1c markers improved; DKA admissions lower -across population Have a good weekend x
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One of the last things to do in policy space re #T1Diabetes Supporting creation of a #T1D registry for those at risk of developing this Backed by @DiabetesUK with support @NHSDiabetesProg @SaimeFulya And leadership from @BesserBesser @parthnarendran bbc.co.uk/news/uk-england-ox…
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It's March 2024 By 2026? The vast majority of children with #T1Diabetes in @NHSEngland will have moved away from daily Insulin injections #ClosedLoops Regular finger pricks already a thing of the past Injections next Bring the cure, scientists, let's take the machines away too
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#T1Diabetes population on any form of ‘non invasive’ glucose sensors: 2019: 5% (appr) 2024: 95% (appr) No deprivation gaps Population level ⬇️ of HbA1c Global leader in access to CGM Mission: Complete Next challenge? #ClosedLoops as standard of care I am ready. You?
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*NEWS* Publication of Hybrid closed loop technologies: 5-year implementation strategy via @NHSEngland Implementation of @NICEComms TA943 Read, digest and let's start the work. It is the next step in the evolution of #T1D technology #gbdoc 💙 Link: england.nhs.uk/publication/h…
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*NEWS* The next step to ensure those living with #T1Diabetes have information at their fingertips tips Decision Support Tool for managing #T1Diabetes Via @NHSEngland Thank you to all who helped develop this Please RT, use & cascade #gbdoc Link: england.nhs.uk/publication/d…
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Congratulations @ClareHambling for appointment to the National Clinical Director role in #Diabetes and #Obesity @NHSEngland Tough challenges ahead Yet? As a community- we wish her all the best & support May your tenure be blessed with success @kamleshkhunti @NHSDiabetesProg
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In time of grief? The #T1D community is there In time of joy - my birthday? The same So…on this day? Letter to system re plans to start work on #ClosedLoops 1. Mobilisation fund 2. Local process continue 3. National work starts 4. Ringfenced funding 5. Audit Let’s begin
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