Biripi, she/her. Chronically ill and partly immobile. MECFS/Dysautonomia survivor. Tired
Melbourne, Victoria
Joined June 2012
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Bye all. After today I've decided it's better not to really know how crappy the world really is. Elmo gets to play with his toys and abhorrent men that resemble rotting hot faeces get to destroy things. I'd rather just conserve what little energy I have. I'll disable tonight.
Just leaving my neuro specialist where he injected a nerve block into my head but unfortunately it only numbed part of it so I'm still feeling my dystopian future as the US election rolls on.
Tess Ryan retweeted
"For years and years I've been passed from doctor to doctor with me saying I'm so fatigued I've got all this pain... and noone could give me any answers."
Miranda Hart talking about her diagnosis of ME caused by Lyme Disease on the Graham Norton show. #MECFS
True story - my sister once moved into a house in the Hunter valley where she felt weird energy. Later she discovered this was the house. She left soon after. theguardian.com/film/2016/ma…
Tess Ryan retweeted
What does it say about our legal system when the U.S. Supreme Court refuses to stop an execution even when the county prosecuting agency that handled the original trial files a brief in support of a stay and supports vacating the entire conviction? #MarcellusWilliams
We are really witnessing a health system at breaking point here in Australia. These poor fellas are overworked, underpaid, with no improvement on infrastructure with a growing population. I'm sitting here being extremely compliant, but no fluids or check in 4 hrs.
Being chronically disabled means having a BP of 73/36 & deciding whether to go to hospital just for an uncomfortable night with a drip, followed by a resting heart rate of 49, yet your heart is totally fine. Oh, and not being able to eat anything while having a T1 hypo.
Had a lovely outing today with my cuz and while out saw Channel nine filming at a High Tea - Tony Jones present....did all I could to stay quiet as I really felt like doing a WTC but not my country so an Acknowledgement woulda been lost on him.
When I was a child my mother used to take me to weight watchers for a weekly weigh in. She wld try to bribe my brother & I into losing weight, even wrapping plastic wrap around his body to get some off. Both of us have disordered eating & emotional issues. This is a bad idea.
What could possibly go wrong?! We’ve been here before. This isn’t the best approach. Tagging and shaming is so 1990s. Inequalities and social determinants of health best way to tackle root causes. smh.com.au/healthcare/school…
ALT Healthcare School nurses to weigh and identify kids at risk of obesity under contentious plan The Australian College of Nursing is also calling for the "normalisation of collection and discussion of height and weight data of all children" as part of it contentious plan to curb rising obesity rates. By Henrietta Cook • September 08, 2024 - 05.00am
This very windy weather reminds me of a time when I was living in Killarney and decided I'd go for a walk with a friend through the Ross Castle estate just as a storm was brewing. A tree fell down and narrowly missed us. It was both scary and exciting in the strangest of ways.
Ughh... managed to keep down soup today & had two biscuits to keep up Blood sugar. I am so fatigued right now.
I finally saw a neurologist this week and due to hearing many stories of medical gaslighting I was so worked up beforehand. What if they treat me as if I'm wasting their time? What if they don't believe my medical conditions are real?
They were great. Reasonable 1)2
Tess Ryan retweeted
With the help of Lani's tweet (see 2/) I just easily located 31 Bots supporting Reynolds...
Similar wording, sentiment, accounts created last few weeks, max. 3 followers, all posted within a 2 hour time frame...
Who could be paying for them? #Auspol
