Tamsyn @ 💖💀VelvetVolcano💀💖 (@VelvetVolcano) header
Tamsyn @ 💖💀VelvetVolcano💀💖 (@VelvetVolcano) profile picture

Colourful custom creations for those 'allergic' to the norm. Chronically ill business owner living with rare disease(s) She/Her #MCAS #Erythromelalgia 🏳️‍🌈💜

Cornwall, UK
Joined September 2009
Photo by Tamsyn @ 💖💀VelvetVolcano💀💖 (@VelvetVolcano)Photo by Tamsyn @ 💖💀VelvetVolcano💀💖 (@VelvetVolcano)Photo by Tamsyn @ 💖💀VelvetVolcano💀💖 (@VelvetVolcano)Photo by Tamsyn @ 💖💀VelvetVolcano💀💖 (@VelvetVolcano)Photo by Tamsyn @ 💖💀VelvetVolcano💀💖 (@VelvetVolcano)Photo by Tamsyn @ 💖💀VelvetVolcano💀💖 (@VelvetVolcano)Photo by Tamsyn @ 💖💀VelvetVolcano💀💖 (@VelvetVolcano)Photo by Tamsyn @ 💖💀VelvetVolcano💀💖 (@VelvetVolcano)Photo by Tamsyn @ 💖💀VelvetVolcano💀💖 (@VelvetVolcano)Photo by Tamsyn @ 💖💀VelvetVolcano💀💖 (@VelvetVolcano)
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
“don’t cry, craft” is actually a very beautiful profound philosophy to have if you don’t know the context
32
1,866
95
21,021
257,577
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
Absolutely terrifying experience on my flight home yesterday! Informed the crew on arrival about my severe airborne NUT ALLERGY. I was reassured no nuts on the flight. THEN THEY GAVE EVERYONE FREE ALMOND BISCUITS!! I went into anaphylaxis and had to use 2 epipens on the flight😭
16
12
10
39
11,475
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
I read a memoir by an “autism mom” and she used an example of her son “learning empathy” because when they had another kid he was worried the baby would “be like me.” Congratulations you taught your son to hate himself. [quote tweet]
You’re unable to view this Post because this account owner limits who can view their Posts. Learn more
62
1,369
33
17,331
1,035,332
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
Ask your partner: How do you like to be loved? What makes you feel safe? How can I give you more peace? What’s something I can take off your plate?
69
1,454
96
10,267
1,014,972
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
1) #TheNHSisBroken What drs are reduced to during current extreme hospital pressures. From an anon doctor, a 🧵: This wkend I have done things I have never done in my working life, now expected, it’s breaking me! My standard of care is being dropped to accommodate this fiasco
104
1,536
256
3,714
856,491
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
With the new Twitter Blue “suppress your tweet unless you pay $8” feature rolling out tomorrow, I HIGHLY recommend making lists of your fave writers, artists, indie sources, etc (perhaps a lists for different types of creators) so that you don’t lose them
128
6,431
1,018
26,780
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
People with chronic illnesses will have stomach cramps, headaches, joint pain, muscle pain, fatigue, nausea, dizziness and more every single day... and still act completely normal in public. Remember you never know the pain someone may be in just by looking.
80
2,831
251
11,048
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
It's impossible to explain how it really feels to live with MCAS. But sharing this graphic might help to paint just a little of the picture of life with MCAS. Please share to raise awareness. #mcas #awarenessday #mastcells #mastcellactivation
17
35
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
PLEASE Don’t follow the advice of The Secretary of State for Health and Social Care Rt Hon Theresa Coffey @theresecoffey Only use prescribed antibiotics Finish the course Don’t use left over antibiotics Never share with others (Share widely)
210
4,284
287
7,252
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
Now we’re getting into snuggly sweater weather, did you know we can make your dream striped cardigan? 😍 Choose from 42 yarn colours (pastels, neons, brights, neutrals, rich jewel tones & more!) 16 sizes & even custom pocket details 😊 What would your perfect cardigan look like?
1
3
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
This is my new favourite outfit, I love how well these @koifootwear boots go with our Pastel Rainbow Cloud Bag & Beret and the addition of pink is of course always a winner 😁. Bag & Beret: @VelvetVolcano Leggings: @Nike Skirt: @Mango Top: @lazyoaf Glasses: Where Light 🌈💖
1
1
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
I got off a plane to find my independence stripped from me. This cannot continue happening to disabled people. This #wheelchair is my mobility. My entire life is powered by this wheelchair. Another flight, another broken wheelchair damaged by #airlines.
698
6,849
797
24,824
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
#Competition time! In collaboration with Big Potato, we are giving away 3 bundles of some of their best games, it’s a great way to get friends and family together 💕 To win these 5 games + a potato plush, you need to follow @dungareesdonuts & @bigpotatogames and RT! Ends 19/09
176
417
3
291
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
Doctors many times in my life have been like "oh it won't be that, that's really rare". But if they aren't checking for it, even when everything else draws a blank, then it's going to seem a whole lot rarer than it is.
20
251
11
1,764
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
New ceramics just dropped! 🥰
9
210
6
1,742
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
When people tell me that they want to get back into reading but can’t seem to find THAT BOOK, I have some go-to recs based on what made them love reading in the first place — here are 56 of them 🧵
363
15,007
1,291
72,893
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
There’s a viral thread going around about how teens who are still bad at art by 16-17 should give up and realize art isn’t for them (not gonna share it to give it more engagement). I would just like to say as a professional artist, this is NONSENSE and wrong, DO NOT listen to it
599
15,222
1,682
86,346
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
I don’t even know that dog, why is he outside yelling at me
103
397
23
10,918
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
We are delighted to share this years big fundraiser 'Move 4 Mast Cell'! Whatever you fancy doing, sign up, have fun and raise some money to fight MCAS! Get in touch to receive your free t-shirt and any support you need to get planning your event! #move4mastcell #mastcells #mcas
2
6
Tamsyn @ 💖💀VelvetVolcano💀💖 retweeted
Journalist friends: here’s an important story I can’t write. About half of long Covid patients develop ME/CFS. There are only a couple dozen, max, ME/CFS clinicians in the US, and that’s better than in other countries. And most are old. 1/
78
642
89
2,323