Visual Snow Initiative

💙 Sierra Domb, Founder Emeritus of the Visual Snow Initiative, was recently featured by CNBC Cures to share her journey with Visual Snow Syndrome (VSS). 🔗 Read more: visualsnowinitiative.org/res…

Read more: visualsnowinitiative.org/awa…

developing an eye condition, demonstrating how changes in vision can become a subject of artistic expression. We'd love to see your artwork! Tag @visualsnowinitiative in your creations or submit your artwork through our Warrior of the Week form via the link in our bio.

visually resembles the static-like appearance of visual snow. 🌅 Claude Monet used soft brushstrokes, shimmering light, and blurred details to capture the world through Impressionism. 👁️ Edvard Munch documented his own visual disturbances through paintings and drawings after

skies, glowing stars, and radiant halos in works like The Starry Night, creating visual effects that may feel familiar to some individuals with VSS. 🎨 Georges Seurat developed Pointillism, constructing entire paintings from thousands of tiny coloured dots, a technique that

transforming patterns, colours, and visual phenomena into something others can see and better understand. Interestingly, some of history's most famous artists created works that bear striking similarities to these visual experiences. 🌌 Vincent van Gogh painted swirling

When your vision is filled with persistent static-like dots, afterimages, light sensitivity, and other visual disturbances, describing what you see to someone who has never experienced it can be difficult. Art offers a way to make these invisible experiences visible,

Join us TODAY for our Visual Snow Syndrome Support Group @ 8:00 PM (EST)! 💬 👉 Join using the link in our bio or visit: ancan.org/visual-snow-syndro… We hope to see you there! 🩵

POV: Me trying to understand all my Visual Snow Syndrome symptoms. 😵‍💫👀

We live with something that other people may never fully understand. But we do. And that is why we need to support one another, keep raising awareness, and never give up hope. 📷 visualsnowinitiative.org/war…

everything I had been through. This year, I’m learning how to live with my symptoms and understand my triggers. I’m trying to avoid unnecessary stress, slow down, and take things one day at a time. To everyone living with Visual Snow Syndrome: We are incredibly strong.

prepared. I had written everything down, describing my symptoms and experiences in the smallest detail. And for the first time, I felt heard. They listened to me. And finally, I received my diagnosis: VISUAL SNOW SYNDROME. I was incredibly happy to finally have an answer after

scrolling through TikTok, I came across a video demonstrating what it’s like to see the world through the eyes of someone with Visual Snow Syndrome. And my immediate reaction was: “YES! THIS IS EXACTLY HOW I SEE THE WORLD!” On November 14th, I went to my appointment fully

neurologists, physiotherapists, and many others. The examinations revealed nothing unusual. According to the doctors, my eyes and vision were perfectly fine. But I knew something was wrong, and no one seemed to understand what I was experiencing. About a month later, while

having a migraine attack and that everything would eventually be fine. Over the following days, I kept telling myself the same thing, but nothing changed, especially my vision. And that’s when my seemingly endless journey of doctor’s appointments began—ophthalmologists,

My name is Marija, and I’m from Latvia. On January 28th, everything changed. That morning, I was getting ready for a client when, suddenly, my vision began to blur. I remember looking in the mirror and not being able to see myself clearly. At that moment, I thought I was just

New research from the University of Minnesota explores a possible connection between brain activity and visual snow. 🧠 visualsnowinitiative.org/res…

What’s your story? Share what living with VSS is like for you, what helps, or a few encouraging words for another kid. Read more stories or share yours at vsikids.org 🧡

VSI 4 Kids gives children a place to learn about VSS and share their experiences. Swipe to meet Touré Yvan, who shares his journey with #VisualSnow, his dreams of working in aviation, and his hope that we can support one another. ✈️

knowledgeable about VSS but not yet listed in our directory, please email us at [email protected]. 🔎 Explore the directory via the following link: visualsnowinitiative.org/doc… Stay tuned for more updates!

individuals living with #VisualSnowSyndrome (VSS) in France. We are always accepting additions of #doctors worldwide who are aware of VSS and able to provide proper diagnosis and care. 💡 If you’ve been diagnosed by a physician in your area who is