Saving lives through stem cells. š¬ We aim to respond to DMs within 2 working days
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Joined February 2009
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We save and improve the lives of people with blood cancer and blood disorders. Want to know more? Visit our website ā¬ļø
anthonynolan.org/?utm_sourceā¦
We're deeply disappointed by NICE's decision to remove NHS access to the CAR T-cell therapy Tecartus for people with MCL in England and Wales.
Tecartus can offer a crucial lifeline for people who havenāt responded to other treatments.
The decision also reflects a wider challenge for cell and gene therapies in the UK. Innovative treatments can only fulfil their potential if patients can access them.
We need government, industry and the NHS working together to bring these therapies to patients.
We know this news may be incredibly tough for people affected by MCL ā please reach out to us if you would like to talk or have any questions.
Call us on 0303 303 0303, email [email protected] or share any questions with us here.
We're already a third of the way to 100,000 signatures!
If everyone who has signed the petition shared it with just 2 friends, we'd be one step closer to ensuring more patients aren't denied a potentially lifesaving second stem cell transplant.
Sign here:petition.parliament.uk/petitā¦
ALT This image shows a progress bar for a petition, with 33,572 signatures out of a goal of 100,000. Beneath it are logos for Anthony Nolan, Leukaemia UK, and DKMS, indicating collaboration.
ALT A digital petition header calls for funding second stem cell transplants on the NHS for relapse within 12 months. Created by Faith Hinitt and closing on 12 February 2027, it emphasizes the goal of reaching 100,000 signatures to initiate change.
Anthony Nolan retweeted
VERY IMPORTANT MESSAGE!
For some people with blood cancer, a second stem cell transplant isn't just a treatment option - itās their only chance at survival.
Thatās why Iām joining @AnthonyNolan, @DKMS_uk & @LeukUK in calling on @NHSEngland to update their policy on second transplants, so no one is denied potentially lifesaving treatment
We need 100,000 signatures which would mean the petition is considered for debate in Parliament. Please sign the petition - it only takes a moment and letās give all patients the fair chance they deserveš
petition.parliament.uk/petitā¦
Itās #WorldMarrowDonorDay! And weāre at @unibirmingham campus this week raising awareness of the stem cell register.
Know a student who hasnāt joined yet? Tell them to sign up - we're sure theyāve done worse!
Stem cell transplants can have an impact on bone health.
Weāre supporting an inquiry into how bone health risks are being assessed and managed.
Tell us about your experience in our 15-minute survey š
bit.ly/4ixQZgG
ALT The image features a message asking if a team discussed potential bone health issues after a stem cell transplant, with logos of Anthony Nolan and the Royal Osteoporosis Society at the bottom.
At Anthony Nolan, we know all too well the financial challenges that many patients and families face when going through treatment.
Our head of policy and public affairs, Yasmin Sheikh, explores this issue in more detail:
healthawareness.co.uk/rare-dā¦
We've hit 10,000 signatures in just 24 hours!
The government now has to respond in writing, but we need 100,000 signatures for a debate in Parliament.
Lets give every patient a fair chance.
Sign here: lnkd.in/e9DZmP7Z
Anthony Nolan retweeted
Sign a petition, save a lifeāļø - PLEASE SHARE!
Today @AnthonyNolan @DKMS_uk & @LeukUK launched their campaign to provide NHS funding to make second stem cell transplants available on the basis of individual circumstances instead of arbitrary timelines.
š petition.parliament.uk/petitā¦
Sign the petition today to help more people like Faith get access to the lifesaving treatment they need: petition.parliament.uk/petitā¦
Faith is campaigning with other blood cancer patients and charities including @AnthonyNolan for @NHSEngland to change the rules on second transplants bbc.co.uk/news/articles/c8xkā¦
Anthony Nolan retweeted
Faith is campaigning with other blood cancer patients and charities including @AnthonyNolan for @NHSEngland to change the rules on second transplants bbc.co.uk/news/articles/c8xkā¦
Under NHS Englandās current policy, patients who relapse within 12 months of their first stem cell transplant arenāt eligible for a second on the NHS - leaving access to potentially lifeāsaving treatment dependent on personal finances, not clinical need.
This policy was introduced almost a decade ago, and urgently needs changing ā clinical evidence now shows that decisions should consider individual circumstances, rather than a fixed 12 month cut off.
Sign the petition today: petition.parliament.uk/petitā¦
Anthony Nolan retweeted
Will requires a stem cell transplant to give him the best possible chance of recovery. Anyone aged 16-30 can register to become a stem cell donor via @AnthonyNolan
Anthony Nolan retweeted
A great morning with @AnthonyNolan, meeting stem cell donation recipients and talking about their experiences.
Get yourself on the blood stem cell donation register!!
š¬ A CARāT therapy used for blood cancer could also help āresetā the immune system in severe lupus.
In the CARLYSLE trial, obeācel put 5/6 patients with severe lupus into remission - an early but promising sign for autoimmune treatment.
šanthonynolan.org/blog/2026/0ā¦
ALT The image features a quote highlighting the benefits of CAR T-cell therapy for blood cancer and autoimmune conditions, attributed to Yasmin Sheikh, Head of Policy and Public Affairs at Anthony Nolan. The text is set in a green and white colour scheme, and reads: āWeāve seen how transformative CAR T-cell therapy can be for people with blood cancer. Weāre excited to see results which highlight its potential benefits for people living with autoimmune conditions.ā
In December, NICE published final guidance recommending the removal of Tecartus for patients with relapsed or refractory mantle cell lymphoma from the NHS.
We submitted a joint appeal with @bloodcancer_uk and @LymphomaAction and today NICE announced they will reconsider.
We welcome this decision by NICE and will continue to advocate for access to this treatment on behalf of patients and families.š
Find out more: anthonynolan.org/blog/2026/0ā¦
