A health education company dedicated to IC and pelvic pain patients! Get the latest news, research, self-help tips in our live IC support group meetings!

Sonoma County, California
Joined December 2008
IC Awareness Month Daily Fact #1 - Interstitial cystitis is a pelvic pain condition that affects millions around the world. icawareness.org/ic-awareness…
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Menopause is not a disease. GSM is real and treatable!
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September is IC Awareness Month! Do you struggle with bladder pain? Feel like you have a UTI though the cultures are negative? Have you been told that it is all in your help? You are not alone! IC is real and treatable! icawareness.org
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The IC Network Store is now closed due to a mandatory evacuation effective a few minutes ago. You can see from the picture below that the fire is quite close though, we think, going in the other direction. No-one will be sleeping tonight. There are many fires due to lightning.
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New on the Blog: IC’s Related Conditions: Fibromyalgia IC’s Related Conditions” series takes a look at conditions that can go hand-in-hand with IC. ic-network.com/ics-related-c…
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Yes We Can! #bidenharris2020 will fight for the rights of everyone struggling with disability and health care. We stand behind this team who will protect the rights of anyone with pre-existing conditions, including interstitial cystitis.
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Would you like to attend a ZOOM meeting with some of the lawyers representing IC patients against the manufacturers of Elmiron? myemail.constantcontact.com/…
Did you take #Elmiron? Have you experienced vision changes? We're having a special ZOOM meeting next Thursday (8/13 at 4PM EST, 2PM MST, 1PM PST) with attorneys representing IC patients in current lawsuits. Learn more about the event and register here! tinyurl.com/y3s5cq6w
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Interstitial Cystitis Network retweeted
We had a fantastic support group stream yesterday on YouTube and Facebook - 5 hours. Thank you to everyone who asked questions. Together we are stronger. Every single one of your stories matter. All the gift Aloe Paths went out today!!
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Interstitial Cystitis Network retweeted
New IC Study & Survey Needs Your Participation. Would you please help Dr. Tony Buffington and colleagues at UC Davis understand what your life with IC has been like? ucdavis.co1.qualtrics.com/jf…
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Have you tried Bladder Builder yet? Comprehensive, bladder health support for pain relief and better function. Supports inflammation reduction, pain relief, increased nitric oxide production for better circulation, and enhanced digestive and immune system. rb.gy/lsqfwo
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Interstitial Cystitis Network retweeted
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Interstitial Cystitis Network retweeted
Calling #medtwitter. Aside from potential UTI and cancer, what else triggers microhematuria? Viral infection? We know that polyoma BK is linked to hemorrhagic cystitis. Do they screen for viral infections in younger patients? HPV?
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Interstitial Cystitis Network retweeted
Sexuality + Growing Up as a Millennial with Pelvic Pain. In this blog post I discuss the sexuality driven pop culture in the 1990’s and early 2000’s, and growing up as a Millennial with chronic pelvic pain. #vulvodynia #interstitialcystitis #endometriosis thehappypelvis.ca/sexuality-…
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Interstitial Cystitis Network retweeted
(1/2) @liveutifree recently wrote an article about one of our partners and how our Guidance UTI test has also helped patients previously diagnosed with #interstitialcystitis. #bladdersmatter #PatientCare
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Interstitial Cystitis Network retweeted
This is a very helpful list w/reviews. I use @Speaxbythinx for #InterstitialCystitis, so thankful for this product. Brings peace of mind & is comfortable and stylish.
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