A health education company dedicated to IC and pelvic pain patients! Get the latest news, research, self-help tips in our live IC support group meetings!
Sonoma County, California
Joined December 2008
- Tweets69
- Following34
- Followers601
- Likes103
Interstitial Cystitis Network retweeted
Constant urination ruled her life and now she has finally found relief beaumont.org/health-wellness…. @BeaumontHealth
Interstitial Cystitis Network retweeted
We had a fantastic support group stream yesterday on YouTube and Facebook - 5 hours. Thank you to everyone who asked questions. Together we are stronger. Every single one of your stories matter. All the gift Aloe Paths went out today!!
Interstitial Cystitis Network retweeted
New IC Study & Survey Needs Your Participation. Would you please help Dr. Tony Buffington and colleagues at UC Davis understand what your life with IC has been like? ucdavis.co1.qualtrics.com/jf…
Interstitial Cystitis Network retweeted
For more information about Chronic Pain Anonymous and to find a meeting, visit our website: chronicpainanonymous.org
#mecfs #dysautonomia #spoonies #endometriosis #Lupus #fibromyalgia #interstitialcystitis #ehlersdanlossyndrome #fibroids #arthritis #copd #chroniclyme #neuropathy
Interstitial Cystitis Network retweeted
Take what you need this August long weekend
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#PositiveVibes #PositiveThinking #WordsOfEncouragement #Depression #Anxiety #SelfcareSaturday #SelfLove #PositiveMeme #PositiveQuotes #MentalHealthAwareness #AnxietyAwareness #BeKindToYourMind #ChooseYourself #MentalHealthSupport
Interstitial Cystitis Network retweeted
Calling #medtwitter. Aside from potential UTI and cancer, what else triggers microhematuria? Viral infection? We know that polyoma BK is linked to hemorrhagic cystitis. Do they screen for viral infections in younger patients? HPV?
Interstitial Cystitis Network retweeted
Sexuality + Growing Up as a Millennial with Pelvic Pain. In this blog post I discuss the sexuality driven pop culture in the 1990’s and early 2000’s, and growing up as a Millennial with chronic pelvic pain. #vulvodynia #interstitialcystitis #endometriosis thehappypelvis.ca/sexuality-…
Interstitial Cystitis Network retweeted
(1/2) @liveutifree recently wrote an article about one of our partners and how our Guidance UTI test has also helped patients previously diagnosed with #interstitialcystitis.
#bladdersmatter #PatientCare
Interstitial Cystitis Network retweeted
This is a very helpful list w/reviews. I use @Speaxbythinx for #InterstitialCystitis, so thankful for this product. Brings peace of mind & is comfortable and stylish.
'Anything too tight, too scratchy or that will aggravate my symptoms has long left my wardrobe. Now shopping trips are about finding clothes that are cute and comfortable!' #chronicillness #spoonies #invisibleillness #health #potssyndrome throughthefibrofog.com/cloth…
Interstitial Cystitis Network retweeted
This USA great opportunity for anyone trying to learn about the pelvic floor and how to relax those muscles! I recommend highly!!
We are SO excited to announce that we will be hosting a zoom class Saturday, July 25th @ 11am - 12:00 PST. Karah Charette, DPT of PHRC Berkeley and SF will be walking us through key movements for pelvic floor release 🦋⠀
To sign up: calendly.com/phrc/fundraiser…
Interstitial Cystitis Network retweeted
Visit our new website on 27th of July to download our Diet Leaflet – keeping to a bladder-friendly diet is the first step in living positively with bladder illness!
#BladderSupport
#LivingPositively
#NewWebsite
Interstitial Cystitis Network retweeted
Did your IC/BPS symptoms begin after you started oral contraceptives? A new case study gives validity to thousands of women who have wondered, and continue to wonder, if birth control pills have triggered their IC!
ic-network.com/could-birth-c…
Interstitial Cystitis Network retweeted
#Book of the week.
"Why did I not know that?"
Women were misinformed by their guys, their poor doctors and various "cyber doctors" about their vagina.
Check out "The Vagina Bible" by @DrJenGunter. is now #available in stores.
🔗vimeo.com/416772807
Interstitial Cystitis Network retweeted
The lack of open public toilets has been really hard for the #IBD community. Here is a really good post about how it’s effecting those with an #ostomy.
I’ve seen quite a lot of posts recently about the lack of open public toilets due to COVID-19. I even got caught with a rapidly filling ostomy bag myself whilst in the queue for the supermarket! Fortunately for me, it stopped before becoming unmanageable… instagr.am/p/CCnyD12D1xV/
Interstitial Cystitis Network retweeted
“Because the body’s nerves are constantly firing they never get a rest, so when they get triggered by “smaller” things, they will hurt more than a “regular” person.” Please Don't Confuse My #ChronicPain With 'Low Pain Tolerance' buff.ly/305CB5f #intractablepain #cpp
Interstitial Cystitis Network retweeted
UPDATED: Discover the link between interstitial cystitis and Lyme disease, the role of microbes like #mycoplasma, plus effective natural remedies and immune boosters: ow.ly/ytvz30l5jbm #interstitialcystitis #lyme
Interstitial Cystitis Network retweeted
Wear loose clothing if you suffer from IC/BPS as clothes such as tight jeans can worsen symptoms.#BladderSupport
#LivingPositively
Interstitial Cystitis Network retweeted
Did you take Elmiron for your IC/BPS? We are gathering more data on how this medication may have affected your eyesight. Would you help us by completing this survey? surveymonkey.com/r/ZJ6KHN5
Interstitial Cystitis Network retweeted
If you have an invisible illness like #InterstitialCystitis you are always in pain - always, every moment of every day!
