President and CEO @SjogrensOrg. Blog https://xitter.cf/t.co/jXWfLb2lCR. Loves Jazz, Food & Wine, Laughter! #sjogrens #thisissjogrens #rheum
Washington, DC
Joined March 2010
- Tweets2.4K
- Following0
- Followers532
- Likes213
Janet Church retweeted
Congrats! @SjogrensOrg rang the closing bell at NASDAQ just now to bring awareness to #Sjogrens Awareness Month! Sjogren's disease is a systemic autoimmune disease that is underdiagnosed and affects 2-3 million Americans. Good job @janetchurch and all at the Foundation!
Janet Church retweeted
Taylor 25: Sjögren's can display as an invisible disease.
I cope with my symptoms by actively advocating for a cure. Sjögren's has taught me that I am a conqueror and together we will conquer Sjögren's. #ThisIsSjögrens #SjögrensAwarenessMonth #Sjögrens
sjogrens.org/member-communit…
Janet Church retweeted
Jacqueline 36: My dry eye symptoms evolved into corneal ulcers and scarring, which has caused me to go blind in one eye. Sjögren's has taught me humility. I have limitations and that's okay.
#ThisIsSjögrens #SjögrensAwarenessMonth #Sjögrens
Learn more: sjogrens.org/blog/2019/sjogr…
Janet Church retweeted
It's #DysautonomiaAwarenessMonth! Sjogren's is the second most common cause of autonomic neuropathy. If you have chronic dry eyes or dry mouth, and a form of dysautonomia, we encourage you to talk to your doctor about getting screened for Sjogren's syndrome.
Janet Church retweeted
Kenya 47 (diagnosed at 43)
Since I was diagnosed with Sjögren’s, I have learned that I am stronger than I thought I was. I have to be! My three most difficult Sjögren’s symptoms are muscle pain, joint pain & fatigue. The pain I experience is sometimes unbearable. #ThisIsSjögrens
Janet Church retweeted
Cyndi 52 (diagnosed at 43)
Since I was diagnosed with Sjögren’s, I have learned to find my voice. I want to encourage all patients to find their voice. It took me years to find mine. Don’t try to hide your disease – once you own it, you gain all of your power back #ThisIsSjögrens
Janet Church retweeted
Suzanne 34 (diagnosed at 33)
I wish people understood that even though I don’t look sick, there are days when I can’t function. I rarely talk about how bad I’m feeling because I look “OK.” If you’re living with Sjögren’s, you’re not alone. #ThisIsSjögrens
sjogrens.org/blog/2021/sjogr…
Janet Church retweeted
Grace 15 (diagnosed at 8)
After being diagnosed, I tried to “suck it up” because I didn't want to be seen as attention-seeking. The only place that ever got me was in the ER. It’s important to educate people about this disease. #ThisIsSjögrens #PediatricSjögrensAwarenessDay
Janet Church retweeted
Questions about the COVID-19 Vaccine and Sjögren's?
Watch a free recording of the Sjögren's Foundation webinar featuring Cassandra Calabrese, DO: sjogrens.org/news/2021/watch…
#Sjögrens #COVID19 #COVIDvaccine #COVIDVaccination #Health #ThisIsSjögrens
Janet Church retweeted
Char 40 (diagnosed at 38)
Sjögren’s means I struggle to do what used to be simple tasks. I’ve accepted that my diagnosis isn’t my fault & I must be kind with myself. A lot of people have never heard of Sjögren’s. We need to raise awareness! #ThisIsSjögrens
sjogrens.org/blog/2021/sjogr…
Janet Church retweeted
New Sjögren’s clinical trial locations! A clinical trial provides participants an opportunity to receive potential benefit from a drug, medical device or procedure and the results can make a difference in the care and treatment of all patients. #Sjögrens
sjogrens.org/living-with-sjo…
Janet Church retweeted
#TipTuesday: Be your own best advocate! If you feel your Sjögren’s symptoms are dismissed by a physician, help educate them or find another physician. By staying informed, you will feel more in control of your disease.
sjogrens.org/member-communit…
Janet Church retweeted
We are delighted to announce the participation of Steven Taylor, Sjögren’s Foundation CEO and partner of the @HarmonicSS_Proj consortium, at Pharma & Patient USA. Stay safe and tuned (Dec. 1-4, 2020).
@SjogrensOrg
@HarmonicSS_Proj
@SjogrensCEO
Janet Church retweeted
Help Sjogren's Syndrome Foundation every time you shop: iGive.com/cEmxYd #iGiveDoYou
Janet Church retweeted
Please join us, November 7th, for a one-day virtual patient conference. This educational experience will help you take control of your health while you learn how to manage and understand your Sjögren’s symptoms and complications from leading experts.
sjogrens.org/2020-virtual-on…
Janet Church retweeted
I've been in practice since '96, & it's still hard for me to get my head around just how much trauma stems from chronic illness-
Especially when it happens in childhood, &
Especially when the illness isn't well understood.
Janet Church retweeted
New Brandle Features Monitor Social Media Compliance in Posts! Announcing POP Post Governance. hubs.ly/H0xstQt0 #socialmediasecurity #socialmediacompliance #NCSAM #socialmediagovernance
Janet Church retweeted
How many Apps are connected to your Twitter account? Navigate to xitter.cf/settings/applications to see the list and please select a range below:
38%0-5
11%6-10
20%11-20
31%21+
88 votes • Final results Janet Church retweeted
View the Foundation’s recent blog post: “Ask the Expert: CBD Oil & Sjögren’s.”
sjogrens.org/blog/2020/ask-t…
#Sjögrens #SjögrensFoundation #ThisIsSjögrens #ConqueringTheComplexitiesOfSjögrens #CBDoil #ConqueringSjögrens #SjögrensAwareness #AskTheExpert
Janet Church retweeted
On Thursday, August 6, we hope you will join the Sjögren’s Foundation, our CEO Steven Taylor, and more than 40 other patient advocacy groups for a free Virtual Resource Fair. Chat with advocacy representatives and connect with other patients. covidadvocacyexchange.com @GRYTHealth
